I'm feeling numb as we go through end of life. I feel as though I've been in mourning for almost 6 years. Each loss since diagnosis has brought some mourning....speech, swallowing, balance, dexterity, walking, talking, loss of control of eye movements, bladder, everything! Everything, until he was completely bed ridden. Bob has been on tube feed for over 5 years because of chewing and swallowing difficulties, and now is finally at the last stage of this disease... last stage of life. He looks comfortable and peaceful, sometimes seems aware of our presence. So, so sad. He seems more comfortable now than he has in a very long time. He has diminished to no more than skin loosely draped over his frame, but he looks so peaceful. It's seems surreal to think this is the last and final loss. My heart aches with sadness, but I know he needs release from this diseased body, from PSP.
So grateful for your support!