Hi all,
My wife is in nursing care with P.S.P and I have not been able to see her since the first week in March.She is now declining normal type food and will only have complan and yogurts.Can anyone suggest alternatives that she might accept.
Thanks,Acorneater.
My husband loved mashed potatoes and they are easy to flavor up with nutritious things like mashed veggies and meats. It's a great medium to mix stuff with that seems to stay palatable.
Hello, it might be worthwhile for your wife's Speech Therapist to assess/reassess your wife's swallow. If she doesn't have one ask her GP to refer her urgently. In the meantime, porridge for breakfast dinners can be liquidised, yogurts, custard, rice pudding on their own or with pureed apple/pear added.
These are samples of what I gave W when his swallow had deteriorated.
It is difficult, I hope you get help.
Lots of love, Nanny857xx
2 days ago NannaB Responded with some great tips to Toddet’s post headed ‘Meal Inspiration’. Hope you’ll find something helpful there.
Best wishes,
Hils
Hi Acorneater,
I’m so sorry that you can’t visit your wife. Such trying times indeed! How about ice cream? Chocolate pudding? Those are my go to’s when hubby skips a meal. I don’t know, maybe the nursing staff have already tried that? Any chance they’ll let you inside if you put on the proper gear? Her appetite might pickup again if she could hold your hand? Or, maybe it’s her way of letting everyone know that she’s tired of the cruel disease and she wants to let go now. In any case it sounds like she could be more at ease if she could see you. Have you been able to setup any FaceTime visits or is she too weak for that? I’m so sorry for what your going through. I wish I had something more that I could offer.
Xoxo ❤️ SewBears
You could try milk jelly , egg custard, semolina pudding, and my favourite is trifle, , , I would suggest more but that depends how her swallowing really is,, may be a nice treacle sponge.or everyone's favourite a sticky toffee pudding ....now I'll stop or I'll be too tempted to get up and raid the fridge...Brenda xx
So sorry to hear this, acorneater .
I would echo all that sewbears has said!
Just adding jelly, as I learned that also counted in fluid intake. And some Cadbury chocolate!
Yes, try and get to see her, or Facetime. Must be hellish for you both!
Big hug!
Jen xxx
Dear Acorneater
Sorry to hear this, it must be so very hard not seeing her.
Some great soft food suggestions from others. My husband loved trifle and tiramisu too.
Love Tippy xx
Hi, my mum is in a nursing home and we have a similar situation to you. The home should arrange a SALT team consultation for your wife, even if it has to be virtual at the moment. I am sure they will have other residents on a soft food diet so ask them what is offered. I send my mum giant chocolate buttons to suck! We have also been able to FaceTime her, perhaps ask about that and I was allowed to make a ‘garden visit’ last week with a mask on. Surreal but nice. I wish you well and hope the care home can help you get through this awful time.
Sending love
Denise x
Chris loved soft creamy scrambled eggs and I used to make it with cream and add grated cheese sometimes. Custard was a favourite too. Hope you find some solutions, it is so frustrating for you. Keep on keeping on.
Anne
I'm sorry to hear this Acorneater. To add to the other suggestions.... Salmon mousse if she likes fish. It is nice with some mashed potato and a little touch of horseradish sauce.
My dad has advanced psp he also has a peg tube. He is bedbound has swallowing difficulties but he still loves 2 x weetabix in the mornings warmed in microwave softens it xx wish you well
I would ask for an urgent referral to a dietician. They can prescribe supplementary drinks to boost calorie intake & give balance of vitamins & minerals. These drinks have really improved recently & I couldn't believe how nice they were, you would actually choose to drink some of them yourself. Mum had Nutilis, AltraShot & AltraPlen, the products vary in thickness, so can be matched to the persons swallowing capability. There were some really nice flavours such as hazelnut (like drinking liquid Nutella) and Mango, as well as strawberry & vanilla.
Also ask the home to use fortified milk for cereal & drinks if not already, you add a spoon of milk powder to full fat milk & it boosts the protein level.
If you can take some desserts in, Pots & Co. do some very calorific creamy fruit desserts, lemon posset & a raspberry & vanilla one, which our dietician said had as many calories as anything she could prescribe. I know Sainsburys & Waitrose stock them.
I really do feel for you. It must be so difficult not being able to see your wife.
Take care of yourself. xxx
If your wife is on Hospixe, you can see her. My husband was declining emotionally and losing weight. I had him put on hospice and started to see him April 17. His weight and attitude are better, he is calmer. There is protocol of getting my temperature and wearing a mask when I go in. I see him almost every day. His doctor gave him 6 months to live in March becauseoftheweightloss. No one else is allowed to see him but me. Check into it. God Bless you both.
Thanks for your message,she is in a care/nursing home with no admittance for loved ones.Doing my best from afar and I will leave an update message as soon as I can.
Thanks again,Acorneater.
P.S. Hormel Magic Cups are full of protein. They can be eaten as puddibg or frozen as ice cream. Various flavors. Chocolate is Davids favorite. You can find them on Amazon, but our Care Center orders them.
You can give her liquid meal suppliments. You can pick these up at walmart. The chocolate is good. Also comes in vanilla and strawberry. Im sorry you or any of us have to go through this. Psp is a wretched and unrelenting disease. Mom fought it for 8 years until finally losing her battle last August. I still cant get through a day without a breakdown. I pray peace and a cure comes soon for all of us. Hugs and prayers for you and yours.
Christy (mother's battle)
Any suggestions about how to gently suggest respite?
Suggestion required on liquid diet 
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