Hey in my defense, I was left unsupervised!
But ... Momma loved it! We were working in the kitchen today for our Easter lunch, and I decided to make googly eyes and sing a silly song for Momma in the kitchen, while I gave her the job to fill the deviled eggs and shake paprika- she loved that job!!
There is a certain happiness in being silly and ridiculous 🤪
Silly is fun! Great job entertaining your momma and your virtual friends. Keep being silly 🤣
YOU made me laugh out loud! Thanks.....
I love when I'm left "unsupervised". Never know what fun things are going to happen.
Hi Kim
Your blog is always so entertaining. Thanks.
I don't reply to you much.
I tend to be more focused on those struggling with PSP issues, with which you seem to have few struggles, which is great.
So, just wishing you all a Happy Easter.
Be well and stay safe.
Kevin
Everyone on this site struggles, Kevin, and I am sure Kim has more than a few struggles. Everyone has their way of dealing with it. This is Kim's way and a positive message for all that life can still be fun.
Hils
X
There is no-one that doesn't struggle with PSP, but different people have different ways of coping. I like Kim tried to find what joy in life I could with Mum. Time is short for all of us and if you can find something to smile or laugh at in the midst of the awful and absurd situations we find ourselves in, well all well and good, it doesn't take away or lessen the heart break of seeing our loved ones being taken away from us little by little but as my Mum was a great one for saying, self pity doesn't help anyone.
I too am a member of the Silly & Ridiculous Club. I put goggly eyes on our brownies today. Sending hugs... Granni B
Hi Kim,
Silly and ridiculous is just what we all need a dose of at the moment. Great therapy for your mum and for us, come to that. Without understating the reality of your daily challenges, yours is such a happy house and finding things to laugh about, however silly, is so important. Well done!
Best wishes to you all,
Hils
X
Keep being silly. It helps to relieve some stress. Oh and keep smiling. 😆😆
Love it! My birth certificate says I’m 55 but my heart often times is still a teenage girl! It keeps laughter and joy present amidst challenging times! You made me smile today! Thank you!
"My heart often times is still a teenage girl" - what a lovely thought and yes, laughter most definitely gets us through the most challenging times. Stay young and hold onto the fun.
Hils
xx
And THAT ... was my intention Strawhalos.
Mission accomplished. Through the struggles that we all are trying to navigate with this horrific disease, I am choosing to smile and seek out the slivers of joy. Mental health is so important —- and offering moments of silliness for my Mom, allows us to laugh instead of cry. The struggle is real ... and WE ALL STRUGGLE DAILY. Seek out the smiles ... some days it’s hard, but it’s so important not to be pulled into the darkness of this disease ... by the way, I, too, am 55 ... my license plate says “29 again”
You’re speaking my heart bazooka111! The struggles cannot be denied. We must feel what we’re feeling but I choose to visit the sadness, grief, fear. I make a conscious choice to make joy, appreciation and gratitude my home. For me it’s a daily self reminder that there is joy in the smallest, seemingly minuscule moments. All we truly have is this moment. I try to make each moment count! My precious husband of 24 years was diagnosed with CBD/CBS 2 years ago and it’s been a steady decline. We are embracing what we DO have today, not what we don’t have! 🙏
Exactly! I am so sorry to hear this news of your husbands diagnosis; so young. I could have never imagined a disease like this in our lives. My father passed away 3 years ago, after an 18 month battle of colon cancer; he and my mother were soulmates - picture of health, but he was a force to reckon with ... did NOT go to Doctor visits, refused. I believe a colonoscopy at 45- 50 years old, would have saved his life.
We noticed some signs of CBD (hindsight) early; Mom thought she had a stroke ... 2 years later, we finally got a firm diagnosis at the Cleveland Clinic. After my father passed, we sold our home, and built a home that would accommodate my sweet Momma with a first floor bedroom; this has raised her quality of life dramatically. She has been spared from major injury after several significant falls, and as I’ve said before ... change results in adjustments, and we’ve had our share. My Mom has suffered great loss in the last three years of her life - my father, and two of her brothers —- physically, she cannot speak more than a whisper, and mobility has resulted in her having to depend on me. The hardest part of all of this, and THE STRUGGLE IS REAL... is that she is FULLY AWARE of everything going on, and she sits there...,looks into my eyes, as I now have to feed her, clean her up at the potty, shower her, dry her body, dress her, and the list goes on .... every single day is a struggle.
So .. as we all struggle through these grey days, with clouds that seem to roll in our lives with thunder and lightning ... It’s seems
you and I choose to get out the rubber boots and umbrellas and go SINGING IN THE RAIN!
I pray that you continue to find the joys in the midst of the storm Strawhalos ... few understand the role of the caretaker ... I wear the uniform with great pride and honor.
Blessings to you,
Kim
We have similar stories, Kim! My husband was also diagnosed at Cleveland clinic in Las Vegas. I too have to take care of all bathroom, hygiene needs as well as feeding and most basic tasks. We’re converting a downstairs bedroom and bathroom to accommodate his ever changing needs. He’s still slowly managing our stairs with my help but that’s not going to be the case much longer. A couple major falls resulted in a brain bleed and then surgery.
But all the while he and I are donning those rubber boots and twirling our umbrellas!
Bless you and find the joy in the most common places! You are an inspiration!
Tonda
I am so fortunate that my husband wakes every day with a smile. I call it my Love Vitamin and it helps me get through the day . There is such power in a smile!
Marilyn
Love Vitamin!! Oh, I love that!
.......... And of course, the STRUGGLE isn't just around the wonderful 1:1 care you are so lovingly giving your mum, it's the impact it has on family life that doesn't show in a photo of a happy moment, and I am sure this will resonate with many. Let's not forget the toll it must be taking on your relationship with your husband? I know he must be one very special man but the reality is he is having to take a back seat because your mum needs your care. A photo really does hide the STRUGGLE behind the smiles. Keep smiling and keep us smiling - you are a real tonic.
Hils
X
Hils ... you are so right. I am sure everyone here can understand so clearly the toll
that this disease takes on the entire family. My husband is literally applying our wedding vows to our daily lives - - through sickness and health. As I write this response to you, I am waking up from a nap, struggling from a sciatica nerve issue ... my husband serving lunch to my sweet Momma; touches my heart. “We are all in this together” 😘
Oh heck, sorry to hear that, problems with the sciatic nerve can really lay you low, you really don't need that on top of everything. Three cheers for your fabulous husband taking the reins.
Hils
x
Traumatized by psp!!!!
