LDN FOR PSP

[Alpamor]

Has anyone with psp tried LDN

[Dadshelper]

I've never heard of it used for PSP. It's a drug to help addicts stay addiction free. I am not sure what effect it would have on a PSP patient. This is definitely something to discuss with a doctor.

Ron

[Hidden]

An old thread on this topic from two years ago.

healthunlocked.com/psp/post...

[Patsylorium]

Hi Alpamor,

I have been giving my husband LDN ( Low dose naltrexone ) since November 2017. He has had PSP for about 9 years. took about 4 years to get any diagnosis then it was PD and about 3 years ago PSP. We hoped it would do miracles but of course it did not. However he used to wake about 1 am and would not or could not go back to sleep. I would get him in a lounge chair and leave him there for the rest of the night. From when we started the LDN that stopped and he went back to sleeping normally. I think that it is worth while taking the LDN for that alone. There are not supposed to be any side effects from the LDN so hat is there to lose. I found about about it on Colin Potters website which is for PD people of course. From the site you can find doctors that will prescribe it in your country/area. Because very little helps with PSP it has to be worthwhile and possibley it will do even more for some people.

Another thing we use is red light therapy. A helmet on the head with infra red light and near infra red. Shortly after we started this my husband walked on his own for the first time in about 18 months. He has been in a wheel chair for the last 2 years because of the constant backward falls.

Hope this helps.

Patsylorium

[SilP in reply to Patsylorium]

Patsylorium, that's very interesting about the red light therapy. Can I ask how/where your husband has it done? Would love for my mum to try it she has CBD. Does it have long lasting effects?

[Patsylorium in reply to SilP]

Sorry I have taken so long to reply. I can't say if the red light therapy has lasting effects. My husband has PSP which is progressive and really no medications work. So I have tried lots of things and as long as there are no side effects or harm involved what is there to lose. So if you look up Cossack hat red light therapy you will probably get information or I don't know what country you are in but the Men's shed in Dorset, Tasmania, Australia are making the helmets Mine cost $320.00 including delivery. Look that up and I think you will find any info you want. Put in Dorset and Parkinson's. I might say originally my son made one and it cost $250.00 to import the lights alone so I think quite reasonable. My husband is still using his at least 30 minutes a day. Probably should be double that. Good luck with it.

[Alpamor in reply to Patsylorium]

Thank you for a answering.