“The Art of Dying Well” (or a similar book) - PSP Association

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“The Art of Dying Well” (or a similar book)

Ettavb profile image
11 Replies

Has anyone read this book or something similar? I picked it up from my local library and it has been very helpful to me, I really wish I had come across it sooner. It serves to validate and give language to ideas I’ve not been able to articulate. It also normalizes my take on things when conversations with mom about “next steps” has been complicated by her general nonacceptance to the circumstances of her condition (and/or her inability to process it).

I’ve felt like taking a highlighter to many passages so as to then share with mom and/or others to say “see? ...that thought I had... IS inline with what we are dealing with” (but it’s a library book!😁)

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Ettavb profile image
Ettavb
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11 Replies
honjen43 profile image
honjen43

Have not read the book, but know how you feel!

In all the frustration and confusion, it is rewarding to find anything, a book, a U-tube video, a research paper, that validates your own feelings, suppositions, suspicions- especially when dealing with medical staff who at times seem to have scant knowledge of what is happening to our loved one! And also helps us understand our inarticulate loved one!

Hugs

Jen xxx

enjoysalud profile image
enjoysalud

I have not read the book, but with your recommendation plan to read it in the future.

My son died of PSP May 4, 2017. I had always talked to my children of death, as it was an integral part of life. In 2006 I bought my son WHAT IS DEATH by Etan Boritzer. I found it at a street faire. It's a children's book but I gave it to my son when he was 44 years old.

When we knew he was dying I pulled it out and would read it to him. It's philosophical and comforting. It still comforts me.

Thank you for recommending your book.

Margarita, Los Angeles, CA, USA

Ettavb profile image
Ettavb in reply toenjoysalud

Thank you, I'm looking up your book as well!

Ettavb profile image
Ettavb in reply toEttavb

This would have been a great book to use when my kids first experienced the death of a beloved pet... again, wish I'd known about this one earlier too!! (Thanks again)

enjoysalud profile image
enjoysalud

Who is the author? Amazon.com has several books of that title by different authors.

Ettavb profile image
Ettavb in reply toenjoysalud

Katy Butler

enjoysalud profile image
enjoysalud in reply toEttavb

Thanks! So much to read and so little time.

Spiralsparkle profile image
Spiralsparkle

Dr Kathryn Mannix also has great books on the end of life topic. I follow her on social media.

Inarticulate profile image
Inarticulate in reply toSpiralsparkle

Agreed. It was of great comfort in managing our feelings when mum died and has helped to articulate the acceptance for the normality of death. X

pune_india profile image
pune_india

Here are links to talks given by the author which summarizes the message very well (incase you dont have time to read the book):

youtube.com/watch?v=sUw3qqX...

youtube.com/watch?v=oCDZ-iW...

Ettavb profile image
Ettavb

Thank you for sharing.

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