Has anyone read this book or something similar? I picked it up from my local library and it has been very helpful to me, I really wish I had come across it sooner. It serves to validate and give language to ideas I’ve not been able to articulate. It also normalizes my take on things when conversations with mom about “next steps” has been complicated by her general nonacceptance to the circumstances of her condition (and/or her inability to process it).
I’ve felt like taking a highlighter to many passages so as to then share with mom and/or others to say “see? ...that thought I had... IS inline with what we are dealing with” (but it’s a library book!😁)
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Ettavb
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In all the frustration and confusion, it is rewarding to find anything, a book, a U-tube video, a research paper, that validates your own feelings, suppositions, suspicions- especially when dealing with medical staff who at times seem to have scant knowledge of what is happening to our loved one! And also helps us understand our inarticulate loved one!
I have not read the book, but with your recommendation plan to read it in the future.
My son died of PSP May 4, 2017. I had always talked to my children of death, as it was an integral part of life. In 2006 I bought my son WHAT IS DEATH by Etan Boritzer. I found it at a street faire. It's a children's book but I gave it to my son when he was 44 years old.
When we knew he was dying I pulled it out and would read it to him. It's philosophical and comforting. It still comforts me.
This would have been a great book to use when my kids first experienced the death of a beloved pet... again, wish I'd known about this one earlier too!! (Thanks again)
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