Out of his suffering and at peace - PSP Association

PSP Association

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Out of his suffering and at peace

I have not posted for some time. Unfortunately my husband Edward Hunter, who had progressive supranuclear palsy passed away on the 22 July 2019. He is at peace now out of his suffering.

Jeanie70

68 Replies

Sorry to hear this xxxx

in reply to Yvonneandgeorge

Thank you. We made our 50 anniversary on 14 June. It was as if he held on for our celebrations with our neighbours. Then 5 weeks later he passed away. He was a brilliant husband, father and grandfather.

fletchnojob profile image
fletchnojob in reply to

Sorry to hear of your loss but glad that he is not suffering anymore. My husband has PSP and is in care permanently. It may seem indelicate but how bad were his symptoms towards the end. I am terrified of how this is going to go. XX

in reply to fletchnojob

It is very hard to say really. He seemed to get one illness after another which escalated is passing. I cared for him at home. The doctors, district nurses were brilliant . As was the carers who came in four time a day. Only for 21 days then he passed away. I think it was the streptococcus throat that started things then. Then all went downhill from then. He never complained about anything, just suffered this illness. I think to help me cope. The main thing I feel is you have to be positive all the time and make everything as normal you can. I think this made a massive difference. He seemed happy to the end smothered in my love for him. And his for me.

Be strong, most of all take care of yourself as you need your strength and energy to help him. Best wishes

Darl profile image
Darl in reply to fletchnojob

Hi, I’m sorry you are going thru this. Towards the end my aunts appetite changed.. started to eat less, stopped eating foods she liked, her taste changed.. slowly solid food was not wanted just liquids, then that subsided.. and her moaning became very weak sounding ..

in reply to Darl

Yes it is terrible, at least he’s at peace now..

HilsandR profile image
HilsandR in reply to

What a very special day that must have been Jeanie, despite the underlying sadness, to have celebrated 50 years together, such a testament of the love you held for each other and I have no doubt a love you will always hold for your darling husband. Wishing you the love and support of good family and friends as you negotiate the ups and downs of life without Edward. People talk about good memories sustaining us, they really do once we are ready to take a diversion on that seemingly endless road of grief and take that walk down memory lane. Hils. xx

in reply to HilsandR

Yes it was a special day. He did respond well to all our friends he had around him. We do have wonderful memories being together for 56years, 50 years married we have two wonderful children who supported us so well. And we had a wonderful celebration of his life after his cremation. Relatives came from all over the country to pay their respects. It too was a special day. Thank you for you kind words.

You have my deepest condolences.

Ron

in reply to Dadshelper

Thank you

Sorry for your loss, sending love st this difficult time

Tippy xxxx

in reply to Tippyleaf

Thank you

Hi Jeanie,

I’m so sorry for your loss. Try to celebrate the good life you shared together before PSP. Sometimes we nurse our loved ones for so long that it’s hard to remember the good times. May he rest in peace. Now it’s time for you to take care of you. Grieve in your own way and learn that one day too this shall pass and you will cherish life in a whole be way. Sending huge hugs from I SewBears.

Xoxo

in reply to SewBears

Thank you, it is so strange, your whole day is taken with loving and caring for them. Then your on your own. He donated his brain to help others. He was truly a lovely caring man. I loved him so much.

Darl profile image
Darl in reply to SewBears

You are right about difficulty remembering the good times ... my aunt just passed away from PSP in June.. and right now the only memory I have is of her sick.. I was her primary care giver.. I miss her terribly.

in reply to Darl

You have to think of the good memories prior to this illness which takes the true man or women away. We all miss them but do not want them to suffer.

Sending you massive hugs.

I'm so deeply sorry to hear of the loss of your husband.

I imagine you are feeling such pain and conflicting emotions as you grieve his death.

Hugs x

in reply to Spiralsparkle

Thank you

So sorry for your loss. It's a terrible illness. Xx

in reply to Tunupup

Thank you

a big hug.

Luis

in reply to LuisRodicioRodicio

Thank you

So very sorry for your loss. I know that one day, I, too, will be posting this about my husband, and it brings tears to my eyes each and every time that I learn of the passing of a loved one from PSP.

May you hold the good memories that you shared with your husband close in your heart, and may your family and friends surround you with love and support.

Kerry

in reply to Inparadise

Thank you. He was a special man. Loved by all

So sorry for your loss.

in reply to Willow_rob

Thank you

So sorry for your loss Jeanie. May you remember the happy times you had together. Take care, sending hugs. Xx

in reply to Toddet

Thank you so much

Sorry for your loss.

May he rest in peace !

in reply to Sam_S

Thank you

So sorry for your loss.

Your husband was truly a wonderful man, to donate his brain to help others with this horrid illness.

He is free from pain now and walking by your side.

Big hugs

Sue x

in reply to

Yes he’ll be with me always. Thank you

So sorry you and your husband had to endure this terrible illness. As you said he is at peace now, PSP no longer has him in its evil grip. Now it's time to look after you and remember the happy times you shared together as PSP fades away. Sending a big hug, Nanny857xx

in reply to Nanny857

Thank you, he always wanted to help others

sending hugs ,at peace and free xx

in reply to lindaD_

Thank you

These diseases seem to get the loveliest of people. It's not fair. Big hug to you xx

in reply to Northstar1

Yes it does thank you for your thoughts

I am so sorry, may he rest in peace, finally free from this evil disease.

Sending big hug and much love

Lots of love

Anne

in reply to Heady

It is a very evil illness, suffering so long then gone. Thank you for your kindness

Hi there, I'm so sorry for your loss, my mum passed away from psp on 7th August, there free once again, no more suffering, take care all my love Julie xx

AJK2001 profile image
AJK2001 in reply to Jimjam22

Thinking of you too Julie, know I will be in a similar position in the not too distant future and dreading it. Wishing you strength to deal with all the necessaries and hope you are able to gain comfort from memories as well.

in reply to Jimjam22

Sorry for loss but it is a great relief that they are out of their suffering. We must now take care of ourselves as we have gone through a terrible time. There is a big huge void, our routine has been broken and we need time to adjust our lives. Little bye little things will get better. And remember they are with us always. X

in reply to Jimjam22

Sorry I put your reply under AJK2001 x

in reply to Jimjam22

Sorry I put your reply under AJK2001 x

Thinking of you & your family at this sad time. Sounds like you have very many special & happy memories, hope that over time they will offer you some comfort. xxx

Thank you

I think I’m losing the plot I better have a cup of coffee x

Mottsie profile image
Mottsie in reply to

A cup of coffee always helps me get through the day & Someday's it takes a pot of coffee to flush out the uckies of saddness & frustration building up in my brain. It is not a cure all but l swear it helps (somedays).

So sad to hear of your loss but l am so very pleased to hear you both celebrated your anniversary with family & friends. Sending Hugs... Granni B

in reply to Mottsie

Yes it does, thank you

My sincere condolences to you and your family. May he Rest In Peace free from the evils of PSP. Sending thoughts and prayers for you all. God Bless.💔🙏🙏💔

in reply to georgeg25

Thank you so much

So sorry for your loss but glad for the love you had x

in reply to Westerngirl

Thank you

Thank you for sharing your news. I am happy that you made it to a 50th anniversary, and he could delight in that. God rest him .

Marilyn

in reply to Marilyn_cbd12

Thank you

So sorry to hear that you have lost your dear husband, sending my condolences.

Love Kate xx

in reply to Katiebow

Thank you

So very sorry for your loss, but happy to hear that you made it to 50 years.

Tim xx

in reply to daddyt

Thank you our 50th was a wonderful day

I’m so sorry. May your memories sustain you during this sad time. My deepest condolences. He sounded like a treasure.

Bless you.

Cuttercat

in reply to Cuttercat

Thank you he was a treasure. A lovely man with a lovely smile for everyone.

Jeanie . I'm so sorry to read your post about Eddie , it doesn't seem long since Ivor and I last saw you both , Eddie was such a nice man ,, my memory of you both will always be of you and Eddie smiling and waving, as we drove out of the car park , hope we see you one day..love from Brenda and Ivor....xxx

in reply to Brenive

Thanks Brenda, hope you and Ivor are ok. X

Sad news Jeanie. You have been through a lot. Now is the time to take care of yourself.

peace be with you. ... val

in reply to crab2093

Thank you

Dearest Jeanie

I am so sorry to hear your husband, Edward, has left us. Please accept my sincere condolences. Although his suffering has now ended I know the pain of his loss is very hard for you.

My husband, Les, left me in November 2017. Although I knew his pain had ended it still was, and continues, to be so difficult to accept.

Take care of yourself. I am sending hugs and love to you.

Love

Pat

I’m really sorry.. I just lost my aunt to PSP end of June. Such a cruel disease.

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