I have not posted for some time. Unfortunately my husband Edward Hunter, who had progressive supranuclear palsy passed away on the 22 July 2019. He is at peace now out of his suffering.
Jeanie70
Out of his suffering and at peace - PSP Association
Out of his suffering and at peace
68 Replies
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Sorry to hear this xxxx
in reply to Yvonneandgeorge
Thank you. We made our 50 anniversary on 14 June. It was as if he held on for our celebrations with our neighbours. Then 5 weeks later he passed away. He was a brilliant husband, father and grandfather.
fletchnojob in reply to
Sorry to hear of your loss but glad that he is not suffering anymore. My husband has PSP and is in care permanently. It may seem indelicate but how bad were his symptoms towards the end. I am terrified of how this is going to go. XX
in reply to fletchnojob
It is very hard to say really. He seemed to get one illness after another which escalated is passing. I cared for him at home. The doctors, district nurses were brilliant . As was the carers who came in four time a day. Only for 21 days then he passed away. I think it was the streptococcus throat that started things then. Then all went downhill from then. He never complained about anything, just suffered this illness. I think to help me cope. The main thing I feel is you have to be positive all the time and make everything as normal you can. I think this made a massive difference. He seemed happy to the end smothered in my love for him. And his for me.
Be strong, most of all take care of yourself as you need your strength and energy to help him. Best wishes
Hi, I’m sorry you are going thru this. Towards the end my aunts appetite changed.. started to eat less, stopped eating foods she liked, her taste changed.. slowly solid food was not wanted just liquids, then that subsided.. and her moaning became very weak sounding ..
in reply to Darl
Yes it is terrible, at least he’s at peace now..
HilsandR in reply to
What a very special day that must have been Jeanie, despite the underlying sadness, to have celebrated 50 years together, such a testament of the love you held for each other and I have no doubt a love you will always hold for your darling husband. Wishing you the love and support of good family and friends as you negotiate the ups and downs of life without Edward. People talk about good memories sustaining us, they really do once we are ready to take a diversion on that seemingly endless road of grief and take that walk down memory lane. Hils. xx
in reply to HilsandR
Yes it was a special day. He did respond well to all our friends he had around him. We do have wonderful memories being together for 56years, 50 years married we have two wonderful children who supported us so well. And we had a wonderful celebration of his life after his cremation. Relatives came from all over the country to pay their respects. It too was a special day. Thank you for you kind words.
Hi Jeanie,
I’m so sorry for your loss. Try to celebrate the good life you shared together before PSP. Sometimes we nurse our loved ones for so long that it’s hard to remember the good times. May he rest in peace. Now it’s time for you to take care of you. Grieve in your own way and learn that one day too this shall pass and you will cherish life in a whole be way. Sending huge hugs from I SewBears.
Xoxo
in reply to SewBears
Thank you, it is so strange, your whole day is taken with loving and caring for them. Then your on your own. He donated his brain to help others. He was truly a lovely caring man. I loved him so much.
You are right about difficulty remembering the good times ... my aunt just passed away from PSP in June.. and right now the only memory I have is of her sick.. I was her primary care giver.. I miss her terribly.
in reply to Darl
You have to think of the good memories prior to this illness which takes the true man or women away. We all miss them but do not want them to suffer.
Sending you massive hugs.
I'm so deeply sorry to hear of the loss of your husband.
I imagine you are feeling such pain and conflicting emotions as you grieve his death.
Hugs x
in reply to Spiralsparkle
Thank you
So very sorry for your loss. I know that one day, I, too, will be posting this about my husband, and it brings tears to my eyes each and every time that I learn of the passing of a loved one from PSP.
May you hold the good memories that you shared with your husband close in your heart, and may your family and friends surround you with love and support.
Kerry
in reply to Inparadise
Thank you. He was a special man. Loved by all
So sorry for your loss Jeanie. May you remember the happy times you had together. Take care, sending hugs. Xx
in reply to Toddet
Thank you so much
So sorry for your loss.
Your husband was truly a wonderful man, to donate his brain to help others with this horrid illness.
He is free from pain now and walking by your side.
Big hugs
Sue x
in reply to
Yes he’ll be with me always. Thank you
So sorry you and your husband had to endure this terrible illness. As you said he is at peace now, PSP no longer has him in its evil grip. Now it's time to look after you and remember the happy times you shared together as PSP fades away. Sending a big hug, Nanny857xx
in reply to Nanny857
Thank you, he always wanted to help others
These diseases seem to get the loveliest of people. It's not fair. Big hug to you xx
in reply to Northstar1
Yes it does thank you for your thoughts
I am so sorry, may he rest in peace, finally free from this evil disease.
Sending big hug and much love
Lots of love
Anne
in reply to Heady
It is a very evil illness, suffering so long then gone. Thank you for your kindness
Hi there, I'm so sorry for your loss, my mum passed away from psp on 7th August, there free once again, no more suffering, take care all my love Julie xx
Thinking of you too Julie, know I will be in a similar position in the not too distant future and dreading it. Wishing you strength to deal with all the necessaries and hope you are able to gain comfort from memories as well.
in reply to Jimjam22
Sorry for loss but it is a great relief that they are out of their suffering. We must now take care of ourselves as we have gone through a terrible time. There is a big huge void, our routine has been broken and we need time to adjust our lives. Little bye little things will get better. And remember they are with us always. X
in reply to Jimjam22
Sorry I put your reply under AJK2001 x
in reply to Jimjam22
Sorry I put your reply under AJK2001 x
Thinking of you & your family at this sad time. Sounds like you have very many special & happy memories, hope that over time they will offer you some comfort. xxx
Thank you
I think I’m losing the plot I better have a cup of coffee x
in reply to
A cup of coffee always helps me get through the day & Someday's it takes a pot of coffee to flush out the uckies of saddness & frustration building up in my brain. It is not a cure all but l swear it helps (somedays).
So sad to hear of your loss but l am so very pleased to hear you both celebrated your anniversary with family & friends. Sending Hugs... Granni B
in reply to
Yes it does, thank you
My sincere condolences to you and your family. May he Rest In Peace free from the evils of PSP. Sending thoughts and prayers for you all. God Bless.💔🙏🙏💔
in reply to georgeg25
Thank you so much
Thank you for sharing your news. I am happy that you made it to a 50th anniversary, and he could delight in that. God rest him .
Marilyn
in reply to Marilyn_cbd12
Thank you
So sorry to hear that you have lost your dear husband, sending my condolences.
Love Kate xx
in reply to Katiebow
Thank you
So very sorry for your loss, but happy to hear that you made it to 50 years.
Tim xx
in reply to daddyt
Thank you our 50th was a wonderful day
I’m so sorry. May your memories sustain you during this sad time. My deepest condolences. He sounded like a treasure.
Bless you.
Cuttercat
in reply to Cuttercat
Thank you he was a treasure. A lovely man with a lovely smile for everyone.
Jeanie . I'm so sorry to read your post about Eddie , it doesn't seem long since Ivor and I last saw you both , Eddie was such a nice man ,, my memory of you both will always be of you and Eddie smiling and waving, as we drove out of the car park , hope we see you one day..love from Brenda and Ivor....xxx
in reply to Brenive
Thanks Brenda, hope you and Ivor are ok. X
Sad news Jeanie. You have been through a lot. Now is the time to take care of yourself.
peace be with you. ... val
in reply to crab2093
Thank you
Dearest Jeanie
I am so sorry to hear your husband, Edward, has left us. Please accept my sincere condolences. Although his suffering has now ended I know the pain of his loss is very hard for you.
My husband, Les, left me in November 2017. Although I knew his pain had ended it still was, and continues, to be so difficult to accept.
Take care of yourself. I am sending hugs and love to you.
Love
Pat
I’m really sorry.. I just lost my aunt to PSP end of June. Such a cruel disease.
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