At peace now

[Jimjam22]

Mum passed away at 1.52 am today, she's free from this dreadful disease, we love you Mum ,you will be very much missed xx

[Westerngirl]

Free from psp.

My love to you all.

[Jimjam22 in reply to Westerngirl]

Thank you, sending hugs x

[Tippyleaf]

So sorry for your loss

Love Tippy xx

[Jimjam22 in reply to Tippyleaf]

Thank you Tippyleaf xx

[honjen43]

Am so sorry to hear you have lost your mum to PSP such a short time after diagnosis. She is now free of pain and suffering and flying with the angels.

This must have been a frantic year for you all. No one expects such a dramatic deterioration after a knee operation.

I hope this site has been of help to you along the journey. Getting your mum to a neurologist who understood the symptoms must have been a relief, although not what you wanted to hear. It did prepare you for what has followed and must have given you satisfaction that you knew something unusual was wrong, and found someone who knew what that was.

I hope that you will be able to celebrate her life with the family and then settle down to relax and remember her as she was, rather than the PSP.

I had a similar journey with my husband who was diagnosed with CBD 3 months before he died. I thought ours was a fast progression!

I remember the relief at finding a doctor who could explain the symptoms I could see, and that I had been right to keep looking for answers.

Now a time for some peace and reflection!

((BIG HUG))

Jen XXX

[Jimjam22 in reply to honjen43]

Thank you Jen for your kind words, I Now understand from reading so many heart breaking stories about psp that we actually got off lightly, only going through this cruel illness for such a short time, even though it was all a shocking nightmare, how can you become so I'll in such a short time, thank goodness it's over for my Mum, there's no happy endings for anyone, but when they pass away it's such a blessing it's finally over and they have peace, sending love and hugs, Julie xx

[honjen43 in reply to Jimjam22]

Yes. You are right! It is relatively easy to put our own lives on hold when we are pretty sure it will not be long. I could see my lovely husband deteriorating week by week, then day by day. It all seems like a nightmare now.

I am still watching and contributing here because it has helped me heal. I hope I have been able to help others by my experience and observations.

This site was a godsend to me and the knowledge here of how to recognize and deal with PSP and CBD has grown heaps while I have been involved.

Sadly, the number of people who find us seems to be endless and ever increasing!

My heart goes out to you all!

Hugs to you all!

Jen xxx

[bazooka111 in reply to honjen43]

Jen - you are amazing — the contribution has been a godsend for me - grateful

[Jimjam22 in reply to honjen43]

It's so very helpful reading and understanding what so many people are going through in there lives, exchanging stories about there journey with psp and cbd, helping one another along the way, keep up the good work Jen, sending lots of hugs to you and your family Julie xx

[doglington]

So sorry for the loss of your mother. May she rest in peace.

Jean xx

[Jimjam22 in reply to doglington]

Thank you Jean xx

[SewBears]

I’m so sorry for the loss of your mum. It does make one wonder if anesthesia is behind this dreadful disease in some way. Especially if your mum was in good health before her knee surgery. There have been folks on this site, myself included, who have questioned previous operations that seemed to have set PSP/CBD in motion. I hope one day that scientists will figure this all out. Enjoy the memories of your mum and celebrate her life. I’m sure that’s what she would want. May she Rest In Peace!

Love from I SewBears

[Jimjam22 in reply to SewBears]

Thank you for your kind words, yes I think your right the anaesthetic triggered something, luckily for mum it was extremely progressive, so even though she suffered all the symptoms it was all very quick, sending love to you and your family Julie xx

[Toddet]

So sorry for your loss. May your Mum Rest in Peace and your family remember the good times together. Take care of yourself, I imagine that this has been quite a shock from the knee op to today.

Thinking of you and your family.

Best

Helen

[Jimjam22 in reply to Toddet]

Thank you Helen for your kind words, yes it was all very sudden and progressive,we will remember all the good times we had with mum and give her a good sendoff, love to you all Julie xx

[Hidden]

Sorry to hear. She is free.

[Jimjam22 in reply to Hidden]

Thank you, your quite right that's just what mum wanted to be free, sending hugs, Julie xx

[Hidden]

Sending Hugs Jimjam. PSP is such a rotten way to lose our moms, my heart is with you. Take care... Granni B

[Jimjam22 in reply to Hidden]

Thank you for your hugs, they all help, yes I wish I had never heard the words psp, dreadful disease, sending hugs back to you xx

[Heady]

Really sorry to hear that your Mum has passed away. May she rest in peace, finally free from this evil disease.

Sending big hug and much love

Lots of love

Anne

[Jimjam22 in reply to Heady]

Thank you for more hugs, I'm feeling better with all the kindness people keep showing me, sending hugs back love to all xx

[Cazash]

Hi jimjam

So sorry for your loss. We too lost dad only two weeks ago so understand exactly where you are at this point. Freedom from suffering but oh would give anything for just a little bit longer with them too.

Take comfort they are no longer suffering from this evil illness and mum is finally at peace

Be strong over the coming days. Take pride that you did all you could to makes mums life as comfortable as you could and take comfort from those around you when you can

Big hugs and love

Caz 💕

[Jimjam22 in reply to Cazash]

Thank you Caz for your kindness, your Dad and my Mum, yes free from this dreadful disease, sending hugs and love to you and your family, Julie xx

[Yvonneandgeorge]

So sorry xxxx

[Jimjam22 in reply to Yvonneandgeorge]

Thank you xx

[Dadshelper]

You have my deepest condolences. May she rest in peace now.

Ron

[Jimjam22 in reply to Dadshelper]

Thank you Ron xx

[dollydott]

Love to you Jimjam

May your dear mum rest in peace.

Please take time to rest a while now. You have watched over your mum with love

Lynda 💜

[Jimjam22 in reply to dollydott]

Thank you, Lynda yes it's time to sit and think and sit back for a moment, remembering all the good times with Mum, sending hugs xx

[Sam_S]

So sorry for your loss.

May she rest in peace !

[Jimjam22 in reply to Sam_S]

Thank you xx

[acorneater]

Like the rest of the forum,I send you my best wishes at this sad time,

Love,Acorneater.

[Jimjam22 in reply to acorneater]

Thank you, your all so kind xx

[Tunupup]

Love to you all xx

[Jimjam22 in reply to Tunupup]

Thank you xx

[Inparadise]

Very sorry for your loss. May she Rest In Peace. Prayers for you and your family.

Kerry

[Jimjam22 in reply to Inparadise]

Thank you Kerry xx

[Spiralsparkle]

I'm am very sorry to hear of your loss.

I imagine you are feeling many conflicting emotions.

Your grief is normal and natural.

I hope you have someone you can talk to about how you are feeling.

Hugs x

[Jimjam22 in reply to Spiralsparkle]

Thank you for your kind thoughts, just talking and reading about others on this site, is so very helpful sending love to all xx

[Dickenson2]

Very sorry for your loss. I too wonder about an anaesthetic as PSP seemed to rear its head after John had one xx

[Jimjam22 in reply to Dickenson2]

Hi there, yes we do wonder if the anesthetic, triggered something, mum was just mum until all this, sending hugs xx

[AJK2001]

Thinking of you xxx

[Jimjam22 in reply to AJK2001]

Thank you xx

[bazooka111]

I am so very sorry for your loss, and I pray that our Fathers angels surround you and your family. 🙏🏻

[Jimjam22 in reply to bazooka111]

Thank you so much, sending hugs to all xx

[georgeg25]

My sincere condolences to you and your family. My thoughts and prayers are with you all. 🙏🙏🙏

[Jimjam22 in reply to georgeg25]

Thank you xx

[Marilyn_cbd12]

So deeply sorry for your loss and the cruel disappointments of these conditions. I wish you peace, grace and memories that shine with all the goodness that defined that precious life.

Marilyn

[Jimjam22 in reply to Marilyn_cbd12]

Thank you for your kind words xx

[Cinnylou]

I am so very sorry for your loss. You will be in my thoughts and prayers.

Cindy

[Jimjam22 in reply to Cinnylou]

Thank you Cindy xx

[bgentges]

So sorry! Thankful your mum is at peace, pray you find peace also

[Jimjam22 in reply to bgentges]

Thank you xx

[daddyt]

So very sorry for your loss.

Tim x

[Jimjam22 in reply to daddyt]

Thank you xx

[connc]

I am so sorry for your loss.

Connie

[Jimjam22 in reply to connc]

Thank you xx

[Dickwin]

Truly sorry for your Mom’s loss. Know that you did your best for her and she is free from this damned disease. Hang in there.

Dick

[Jimjam22 in reply to Dickwin]

Thank you, dreadful disease, yes mum was well looked after right to the very end, thanks again Julie xx

[bazooka111]

My heart breaks for you - as I care for my sweet mom with CBD - May you feel the brush of angels wings as they surround you in this most difficult time. ((Virtual Hugs))

[Jimjam22 in reply to bazooka111]

Thank you for your kind words, I'm keeping myself busy, I think I'm in the calm after the storm stage, I'm sure there will be many stages, over the next few weeks, my mum was very much into the after life, often attending spiritualist church on many occasions, so I keep looking for signs that she ok and now with my dad, sending much needed hugs to you, your mum and your family xx

[bazooka111 in reply to Jimjam22]

I will be praying for you this morning - asking God to send you comfort and peace in knowing that she is completely whole and in His presence

[Jimjam22 in reply to bazooka111]

Thank you that's so thoughtful xx