Journey has ended

[tlovins]

Today is the 6 month anniversary of my dad’s death from PSP. It is also the 1 year mark of a significant decline. From this time last year until his death on Feb. 8, 2019 were the hardest months of my life. I started to write an update on a couple of occasions after his death but decided my bitterness toward PSP and God at the time, would not be helpful to anyone. I continue to pray for those on this dreadful journey.

[HilsandR]

It's so tough isn't it but we all, eventually, will find our own way of making some kind of peace with the heartbreak that PSP brought into our lives. I hope that you will find your own peace and move forward to a place where joy replaces bitterness. For me, ten months after my husband died from PSP, despite grief lurking around every corner ready to pounce when I least expect it, the world is opening up again and I can definitely see light at the end of the tunnel; sometimes you just have to try to make bigger steps towards it. It's not easy but sometimes that extra push makes a heck of a difference. Best wishes, Hils. X

[Willow_rob]

Thank you for your thought and prayers. The bitterness will pass.

[Heady]

I don't think we ever truely get rid of the hatred we feel for PSP. The bitterness does go though. I am 2,1/2 years down the road. Yesterday I was watching some old videos of our holidays. Because I wanted to see a certain place, I watched one that I don't look at very often. Steve was declining very fast and his speech was going. It was quite a shock. My memories of him now are before PSP made an obvious entrance into our lives, I thought I was still struggling to remember him well. It was quite an eye opener. I had to turn the video off, before I got too upset, but it did tell me that life is moving on and I am finally coming to terms with everything.

It will for you as well.

Sending big hug and much love

Lots of love

Anne

[tlovins in reply to Heady]

Thank you Anne

[Hidden]

I believe our recovery (after losing a loved one) is a daily process. Our memories of life before PSP can help us heal our broken hearts. PSP is a journey no one wants to take... but we must muddle through the puddles the best we can. As my mom would say eat your veggies...

Take care to enjoy your days now... you know that's what your dad would want for you. Sending Gentle Hugs... Granni B

[doglington]

I don't think we heal but we become more used to living with the loss.

I still miss contact with my parents who died 25 years ago.

It takes time adjusting our life when the loved one dominated it. So the more involved we were the longer that takes.

Then there is the effect of PSP and the suffering of patient and carer. No wonder I still struggle after 18 months.

We can only support each other.

Love Jean xx

[SewBears]

Your feelings are valid and it’s part of the healing process. You made a big step by posting your thoughts. It’s difficult to express oneself when there is so much emotion and hurt. I’m so sorry for the loss of your dad. There have been many times when I’ve started to post about my sorrows and then I delete it because it comes across as bitter and I don’t want to bring others down with me. It’s just hard sometimes but it takes as long as it takes when grieving for a loved one. Everyone processes things at their own pace. Counseling and sometimes even medication can be helpful. You’re not alone, we sympathize with you.

Love from I SewBears