As dad nears the end of this PSP road (only several months so been a sprint rather than a marathon I feel). We look back and celebrate his life and look back on all he has done. If I could gather up all the tears over the last few days that friends and family have shed and turn them into diamonds it would light up the world with a blinding light and just for a moment make everything seem all right We would all be rich beyond our wildest dreams
When the moment comes we will of course be devastated but also I guess feel relief that he’s no longer suffering and in his own way he’s bizarrely ‘beaten’ this dreadful illness
The angels are waiting I know and it’s only a matter of when ...... but we always want ‘just a little bit more time’
God bless you all for your dedication and loving care of your nearest and dearest This forum has been a godsend to me with the comments and true understanding of this road we all travel and has helped us immensely with our journey
Peace to you all
Take a step back just for a moment today and truly absorb the love that’s around you You all deserve it and give yourselves and your partners a huge hug from me to each and everyone of you
Take care and god bless ... stay strong
Caz 💕
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Cazash
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What a wonderful peaceful post. We can all feel your pain and those of us that have been in place you are at this moment, know full well the relief that the end near. This is an evil, evil disease, but one thing in its favour, it does allow a peaceful ending, I hope it will for your Dad.
My heart goes out to you at this very painful time.
May he rest in peace, finally free from PSP. Look after yourself now, grief is just a bumpy road as PSP. It takes time, there is only one way to do it and that's your way.
what a beautiful post in such a poignant and sad tine for you all. your dad musy have been a wonderful man, wishing you all strength and peace at this time x
I feel for you, I've been where you are now and understand the sadness but also relief that his horrid journey is almost over.
My deepest respect to you and your family ( including your Dad) for the way you proceed through this journey. Like many others on here, I have been where you are, so can understand that confusing mix of sadness and relief. Hold him close and let him know how much you love him. I send prayers and big hugs to you all. 💔💔💔
I know how you must be feeling, last week John had a mini stroke followed by a chest infection, I have never seen him so ill and feared the worse, thankfully antibiotics helped him through and I have him back again, I don't want to be there again, but I know we will, can't bear to think about losing him, my heart is so torn,not knowing how much longer we have or have to suffer.
You and your family must be really suffering and all we can do is be there for each other, please do keep writing in and feel the love we can all share from this wonderful blog.
My husband's journey is so different -- 13 years of CBD now -- but the love is all around, as you say, and I was reminded of that today when two men who had known my husband as a boy and young man learned of his condition and shared their memories of how good it was to know him! So kind of them--Yes, the angels are waiting and angels are with him now as you care for him.
What a beautiful post 😢. My sister told me yesterday that the singer Linda Ronstadt was originally diagnosed with Parkinson disease...her doctors have now declared she has PSP...one of my first thoughts was I hope she finds this website, everyone here understands the ups and downs and the sadness that we all feel on a daily basis, I am so sorry Caz, my thoughts and prayers are coming your way 💜💋💜
Hello Caz, so sorry for your loss, your dad is free at last, I'm sitting here in tears, im looking after my mum who is at the end stages, it's only a matter of time, I keep praying that she will fall asleep and pass away the suffering is devastating beyond belief, as in feb/march she was walking, she only became ill after a knee replacement in december, then it all changed, she had no symptoms before that, we could see, the doctors think the operation triggered something and now she has it all, it's very sad I hope she slips away peacefully, sending hugs.Julie xx
So sorry to hear that you have lost your Dad to this awful disease. At least he is now free of this awful condition. Sending you lots of hugs at this difficult time xx
My Dad is still on his journey, and I'm flying back to the UK in about 3 weeks which has given him and me something to look forward to.
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