Thank you everyone for your prayers and well wishes. They mean so much to Liz and I.
You are such wonderful people.
I am going to read some of the posts to Liz today - She is still very aware and still with us.
I am doing short visits three times a day. Liz prefers that as she does not like the Victorian idea of folk sitting with her for hours. She still prefers a good audio book or Coronation Street!
Good News:
Liz was very aware that with her bottom lip trapped she could not get food or fluids. Last night when I went to see her she hat all but freed her lip herself. Together we finished freeing it. I then ran off and got a nurse and she treated it as best she could. It had ballooned up inside her mouth and was horribly bitten. They then gave her morphine for the pain and started getting fluids into her using a large syringe (no needle). So now she is not slipping away feeling thirst and hunger.
What jubilation!
I left her listening to Jo Brands book, "Born Lippy". The irony was not lost on Liz!
I'm having to take my turn seeing her at the moment. Friends and her sisters and nieces are all queuing up to visit her. Everyone is bathing her with love as are you wonderful folks.
Thank you from the bottom of our hearts.
Liz and Kevin
Written by
Kevin_1
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My thoughts for Liz are filled withprayers for her peace and comfort. It sounds like she is headed in that direction .
That’s wonderful news for both of you. Your love and thoughts have been a true gift to all those suffering with PSP and those who love and care for them. Thank you to both you and lovely Liz.💜
Thank you for all you do for this forum. You are one of the pillars of this community for wisdom, information, and support. I always enjoy reading your posts. Give our love to Liz.
What a relief that Liz’s lip no longer trapped and she can get some fluids. Even better news to hear good pain relief is on hand. I hope you both can feel the love from all of us on HealthUnlocked
I remember that Ben bit into his gums and it caused horrible ulcers and a lot of discomfort so know exactly what is going on with dear Liz. So pleased she has been able to release the locked jaw and able yo take fluids. Your account brings everything flooding back Kevin, 9 months since Ben left me abs it feels like yesterday. Sending lots of love and support to you both.
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