I'm a "newbie" in dire need of moral support and any advice that can be offered. The problem I'm struggling with is CHC admin for my Mum; I'm happy about Mum's healthcare though we're expecting bad news about her actual condition.
The issue on which I seek your advice is the suggestion from the CHC Operational Lead that we should agree to a new CHC application in 2018; and they'd then do a retrospective review of the original CHC application in 2015 that they failed to complete halfway through the process.
I'm not happy about having a new CHC application done before the outstanding one is completed. What are the views of people who've been through much the same process?
I suspect CHC have lost the paperwork / computer files (fortunately I've got mine and have sent copies to them) … and any retrospective actually done would be on the incorrect basis of Mum's condition 3 years after the original application.
My Mum "passed" her CHC Checklist in 2015 and we waited for a co-ordinator of her case to be appointed and for the case to go to the Decision Support Tool Panel. It's probable Mum would have "passed" the DST Panel too. I tried nagging a number of times but was blocked (the CHC co-ordinator hadn't been appointed; until the co-ordinator was appointed there was no-one I could speak to; and the CHC team were moving offices; then silence).
A few weeks ago I was rung up by a new CHC assessor who told me he was trying to sort out what had happened on my Mum's case. There are now 3 years of nursing home fees to be paid by the CCG if the case goes our way.