Benefits

Hello I am new to this site. I am new to a diagnosis of CBT for my husband age 55.

What have people's experience been of applying for PIP please.

[kenh1]

Get help completing the application, your local CAB, welfare rights group, Parkinson's society etc can help.

Get as much written evidence as you can. Doctors Neurologist etc.

In my experience at CAB the majority fail the assessment and have to first ask for a mandatory reconsideration which again in nearly all cases comes back unchanged. Then you have to appeal through the tribunal system. You definitely need help with this. At the CAB I work at our welfare rights specialists are winning more than 70% of appeals.

[Hidden in reply to kenh1]

Many thanks

[Kevin_1 in reply to Hidden]

Kenh1 has this down to a tee.

If you decide to do it yourself, but I would get support because there are 'preferred wording choices' to it, make sure you put the worst scenario down. Not an average day, but the worst. This is what you are expected to do BTW.

Many are turned down and won at tribunal... It is backdated to the day of application.

Oh, and welcome

Best

Kevin

Emphasise risk - big time.

[Hidden in reply to Kevin_1]

Will do thanks

[Helen119]

Hi joy. Welcome

I have applied for PIP and received it, but we had an assessor round, every form you fill, fill it in as if was you worse week in a day, when you see the assessor try to lay it on as thick as you can without lying, mention all the little things, like cannot be trusted near kettle or cooker as might fall or jerk, toilet issues, if you’re hubby falls or can’t walk make sure they know, I found it useful to right down all had happened over the last few weeks and re read them just before they come.

Good luck

Feel free to ask anything on here at least one or more will have been through it.

Love and hugs

Helen xxx

[Hidden in reply to Helen119]

Many thanks

[kenh1 in reply to Hidden]

Helen is right, she has filled in a lot of points I failed to mention. Keeping a diary is very important, also include the effect it has on your own life and other carers.

[Hidden in reply to kenh1]

Will do thanks xx

[maggie4 in reply to Hidden]

I have posted on this in the past, but having gone through the process with my husband there are a few things I wish I had known.

ALWAYS talk about your very worst day/ situation

If necessary feel able to contradict things that your partner may say if he is minimising things

Bear in mind that getting the higher level mobility before age of 65 is important as it can not be awarded after this age.

We had very nice assessors but their hands were tied because Pete thought he could do a lot more than he realistically could (PSP) and I didn’t like to contradict him all the time - mistake.

Good luck

[Hidden in reply to maggie4]

Thanks

[Bargiepat]

I will be trying to get PIP shortly and hope that the fact I live on my own will help.

Patrick.

[Richard33 in reply to Bargiepat]

Patrick,

You should do. I think Ruth is not much different from you and she gets the max £150 a week PIP.

Richard

[Bargiepat in reply to Richard33]

I applied for 'Attendace Allowance' and with the help of someone from Age Concern I was awarded it at the high rate.

[Kaka1234]

i rang the psp assosiation they send someone from the DWP. we filled forms in had an assessment and awarded the highest ammound my husband had CBD and hes 57.

[Hidden in reply to Kaka1234]

How long since diagnosis x

[Kaka1234]

2 years since diagnosis. stil mobile and doing as much as we can. ive just finished work to be home now.

[Hidden]

My husband is 55 I too have finished work. I'm devastated. My husband does not know the prognosis.

[Kaka1234]

neither does my husband we just go with it. As things happen i explain its part of the illness. im devastated to as we are so young im only 47. Keep positive and smilibg together x

[Hidden]

Someone just like me. Have you children ? I cannot tell anyone I feel I am betraying him

[Kaka1234]

Joy73 you hv to talk to someone its such a big thing to deal with on your own. You need all the support you can get.

we hv 3 children 26, 21 and 14 they are all amazing with dad x

[Hidden]

Sorry to mither how did you tell them ? My son is 26 x he knows dad is not well but not the prognosis x

[Kaka1234]

they prob hv noticed things with Dad anyway so its best to just be honest if u ring the psp assosiation. they hv sone really good information books that reads really well for any age.

my children are a great support for us both xx

[Hidden in reply to Kaka1234]

Many thanks

[Katiebow]

We applied for PIP payment when Ben was still able to walk without a frame but was subject to falls if left unattended, he had had to take early retirement and given up driving at this point. A volunteer at a local charity filled in all forms as we sat with her, she said she would be very upset if he didn't get awarded the full amount and would represent us at a tribunal if we didn't get the full award. Fortunately it was awarded on the first application. Hope that helps

Love Kate xx

[Hidden]

Many thanks

[Hidden in reply to Hidden]

Has he had to have a face to face assessment please

[Katiebow in reply to Hidden]

He has now passed away but there was no assessment once awarded the PIP payment.

[Hidden in reply to Katiebow]

Oh Katie I am so sorry x

Thank you x

[jjbruce]

I had assistance from Parkinson Rep for area (Scot), I did a draft of all Carol's condition on the paper work provided, She then completed it using the wording and terminology that would better understood by assessors. PIP granted with out a problem.

[Hidden]

Thanks Bruce

[Yve2018]

I also am new to this site. I have recently been diagnosed with CBD. I am going to show my ignorance! What is PIP?

[Hidden]

Hello welcome sorry about your diagnosis. PIP is a benefit are you in the UK ?

[Yve2018]

Thank you Joy. I doubt that I am eligible for any benefits at the moment, but it is good to know that there there is some financial help when things get tough.

[Hidden]

Are you still in work ?