Hi. Mums had PSP for about 6 years or maybe more.
We all moved in together so I could help dad care for her last year.
She was, as expected gradually deteriorating at a slow steady pace, but then last week she began to almost withdraw, not even trying to speak (her speech was really bad, but she could still say "yes"). She also stopped reaching for the commode, and just began to wet herself without even trying to alert me that she needed the commode.
Since then she has been completely non verbal - not even making one noise, has been wearing pads 24/7
The doctor says she has crackles on her chest and has given one a day antibiotic liquid which she's been on for 3 days now, but would a chest infection explain the non verbal bit??.
She also used to feed herself up to a week ago, but now just looks at the plate of food and has to be fed.
It's like she suddenly forgot how to do everything.
Could she have had a stroke?
the hospice have been out and said she looks quite poorly, but just to monitor her.
Also, her chin is on her chest, and it's really hard to get liquids down.
Her head wasn't like that before, she always laid it back in the reclining chair but now it's bent forward.
I wonder if this is the beginning of the end.
Sorry for the long post