Head noise: Does anyone with PSP suffer from... - PSP Association

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Head noise

JCRy profile image
JCRy
7 Replies

Does anyone with PSP suffer from acute head noise? Tinnitus in the head rather than ringing in the ears. Ian is finding this more unbearable than the mobility issues as it is 24/7.

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JCRy profile image
JCRy
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7 Replies
Yvonneandgeorge profile image
Yvonneandgeorge

No sorry George has never complained off that, sure someone will have the answer. Yvonne xxxx

JCRy profile image
JCRy in reply toYvonneandgeorge

Had a feeling it was a separate issue. Thanks for a speedy response, Yvonne.x

steph-02 profile image
steph-02

I have suffered from tinnitus for at least 10 years, I't doesn't bother me any more if you ignore it it tends to go by itself not much help i know. i a m not sure whether its a psp thing.

honjen43 profile image
honjen43

My hubby with CBD was diagnosed with tinnitus for a long time and then was fitted for hearing aids that he generally refused to wear as he said they did not help.

Now, it is a moot point as to whether it was correctly diagnosed and treated!

I have also documented skin problems, possibly psoriasis, when he got warts and excess skin all over his body. An alternative diagnosis was given as ichthyosis. Either way, to me it seemed the body/brain had lost the ability to control the production of skin cells.

Don't know that either has been clinically linked to brain dysfunction, but they have appeared as problems here on this site!

Hugs

Jen xxx

JCRy profile image
JCRy in reply tohonjen43

Thanks Jen. It is an horrendous issue to manage, on top of these new PSP developments. I don't know how he bears it with such courage and grace. We have the hearing aids that emit a special frequency to try to reeducate the receptors in his brain, but not doing a great deal at the moment, though at least it is something.

The brain is still such a mystery, it seems.

Kevin_1 profile image
Kevin_1

Hi

I have nor heard of this as a PSP/CBD symptom. Though I can imagine it might well be.

I'm sorry the hearing aids don't help.

Best to you both.

Kevin

Hi JCRy!

After 6,5 years of PSP no head noise.

Hugs and luck.

Luis

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