Doctor in India for psp

[amrittsk]

Is any one from India, who can guide me abt best neuro doctors psp, i live in Rudrapur, Uttarakhand, India

[Kevin_1]

Hi amrittsk

I've just been reading your previous posts. Your Mum has really had a hard time. I am so sorry.

Is she still fit enough to make the journey to Delhi? There seem to be so many top neurologists there. But try as I might the best I could come up with was these.

practo.com/delhi/treatment-...

The other way to go is to look for a Movement Disorder Neurologist. They encompass a range of similar illnesses PSP, CBD, Parkinsons, MSA etc.

There are a few on this list:

medifee.com/best-doctors/ne...

I'm sure your aware of these - sorry I couldn't do better.

Did you ever find an answer as to whether or not you Mum has PSP or Parkinson's?

Hopefully someone with local experience will chime in.

How is you Mum now?

Wishing you the best

Kevin

[amrittsk in reply to Kevin_1]

Thanks for replying, doc has told possible psp, but no one has confirmed, but i think its psp, coz psp symptoms are matching a lot

[Kevin_1 in reply to amrittsk]

No problem

Though you have already covered this ground, here is a quote from a study which aimed to distinguish between this family of illnesses:

"The CART identified similar features and was also helpful in identifying particular attributes that separate PSP from each of the other disorders. Unstable gait, absence of tremor-dominant disease and absence of a response to levodopa differentiated PSP from PD. Supranuclear vertical gaze palsy, gait instability and the absence of delusions distinguished PSP from diffuse Lewy body disease. Supranuclear vertical gaze palsy and increased age at symptom-onset distinguished PSP from MSA. Gait abnormality, severe upward gaze palsy, bilateral bradykinesia and absence of alien limb syndorme separated PSP from corticobasal degeneration. Postural instability successfully classified PSP from Pick's disease. The present study may help to minimize the difficulties neurologists experience when attempting to classify these disorders at early stages."

The supranuclear gaze palsy is pretty telling for PSP/CBD.

The thing is that if it is PSP/CBD there is not much that can be done other than manage some of the symptoms. We had a top neurologist (we got lucky) and apart from prescribing meds. for some of the effects of the illness there was little he could do.

Poor sleep - Clonazepam

Incontinence of urine: Solafenacin and Betmiga

Anxiety - Citalopram - though we stopped that and found little difference.

High Blood pressure - Amlodapine and Rampiril

Pain in neck - Co-codamol with Omeprazole to protect the stomach. - Massage worked better and we stopped these.

Constipation - Lactulose

Massage and physiotherapy help a lot both for keeping the muscles from tightening up (causing pain) and for preserving their use.

I'm not sure this will help.

Best

Kevin

[amrittsk in reply to Kevin_1]

Thanks

[Katiebow]

Can't add any advise that Kevin has so eloquently replied to you post. I hope you manage to find support and expertise near to Rudrapur, India is a very big country and to travel such long distances could be very stressful to get to see neurologists who has good knowledge of movement disorders. You will pick up lots of useful information on this site that will prove invaluable to support you mother along this journey.

Warm wishes

Kate xxx

[amrittsk in reply to Katiebow]

Ya hopefully

[raincitygirl]

Good luck amrittsk: If there is no tertiary Neurologist near you, could you contact one of the large teaching hospitals or centres that Kevin identified, and see if they would consider a video conference with you and your Mom?

As Kevin says, even if you get a confirmed diagnosis, there is really nothing to be done for it. You end up just managing the symptoms. Kevin kindly listed the most common ones, but please keep posting here: people will be happy to share their experience of symptoms and treatment. But why am I telling you this? You've been a member here much longer than I have!!

Good luck and hugs,

Anne G.

[anjelihazari]

Dr. Joy Desai - 9820009850

[amrittsk in reply to anjelihazari]

Which city, any address

[raincitygirl in reply to amrittsk]

amrittsk, if you don't get a reply on this string from anjelihazari, did you know you can send a private message that will connect with her personal email? You click on the icon for chat at the top of the screen (2 bubbles).

Good luck!

[anjelihazari in reply to amrittsk]

Jaslok Hospital, Mumbai.

please contact them on the numbers given below for address and other details.

Dr. Joy Desai - 9820009850 / 7498127847

[nidhikadam]

Dear Amrittsk,

My dad had PSP and we were among the lucky ones to get it diagnosed very early by the first neurologist we saw. He was Dr. Sunil Malik in Bhopal, M.P. We took alternative opinion from Dr. B.S. Singhal. You can get their numbers on internet or you can simply shoot videos on various tasks like seeing up and down, walking - sitting - walking etc. And then show the videos to the doctor.