Nebuliser

[Yvonneandgeorge]

Can anyone recommend a nebuliser? Need to buy one for George don’t think doctor will give us one, please any information would be so appreciated Yvonne xxxxxx

[Suebatt]

Hi Yvonne can you not get one through your doctor or specialist as that’s where we got ours from

Sorry I’ve no other info about it

Hope your both ok

Sue x

[Yvonneandgeorge in reply to Suebatt]

Thank you xxx

[Satt2015]

Yvonne honey, hospice should provide/lend to you I believe......

I would also speak to the gp as surely this isn’t something you need to buy and/or equally have to choose!!

Please keep us posted on what happens!

Sending you a great big squeeze x

[Yvonneandgeorge in reply to Satt2015]

Waiting for doctor to ring me xxxxx

[NannaB in reply to Yvonneandgeorge]

🙏🏼 🤞 ❤️ XxxX

[Katiebow in reply to Yvonneandgeorge]

Hope you get it sorted for George lovely lady. xxx

[Yvonneandgeorge in reply to Katiebow]

Yes in the end xxxx

[Yvonneandgeorge]

Amanda thank you for the squeeze xxxxx

[Nanny857]

Sounds like you need lots of squeezes/hugs Yvonne at this stressful time, so here's a big one from me too. (( )) I think that's how to do it online 🤞❤

[Yvonneandgeorge in reply to Nanny857]

Oh thank you I need all the hugs I can get at the moment, why do these doctors make things so difficult? Thank you for the hug. Yvonne xxxxx

[crab2093 in reply to Yvonneandgeorge]

({{*)}} there is a star hug ... best I can do

[Yvonneandgeorge in reply to crab2093]

Thank you xxxx

[Heady]

Sorry no knowledge.

Sending huge hug and so much love.

Lots of love

Anne

[Yvonneandgeorge]

Thank you Anne have ordered one from amazon, should be here tomorrow, so stressed with the doctors I need the saline, after many phone calls I have to rush down to the chemist, the doctor gave me enough for one day, aren’t our lives stressful enough with all this bloody s....t ? Be thinking of you beautiful friend on your holiday, have a wonderful time, love you loads . Yvonne xxxxxx

[Dickenson2 in reply to Yvonneandgeorge]

Yvonne were Trinity not helpful as have seen them on their shelves? Xox

[Yvonneandgeorge in reply to Dickenson2]

I have ordered one from amazon Pauline, coming today. Hope you are ok x

[Heady in reply to Yvonneandgeorge]

You will be in our thoughts Yvonne.

Lots of love

Anne

[Yvonneandgeorge in reply to Heady]

❤️💕❤️💕

[Katiebow in reply to Yvonneandgeorge]

sh---t being the operative word. xxx

[Yvonneandgeorge in reply to Katiebow]

I have got the nebuliser from amazon today, DN showed us how to use it, marvellous george seems better today, nightmare yesterday, felt really. Stressed, no centre today for George, still coughing and choking but I think this is how it’s going to be. Yvonne xxx

[Karynleitner in reply to Yvonneandgeorge]

Isn’t Amazon wonderful. They have come to our rescue a few times. I am so sorry you are going through this tough time. I know many have dealt with severe choking. This is one thing that truly frightens me. It may be my breaking point for homecare. Right now it’s one day at a time.

Sending good wishes. Happy to hear George seemed better. Perhaps this will pass.

You are in our thoughts and prayers

[Yvonneandgeorge in reply to Karynleitner]

Thank you, yes amazon is amazing. Yvonne xxxx

[Cuttercat in reply to Yvonneandgeorge]

Keep using saline. You can use as much as needed. Charles reaches for it when he needs it. George will do as well. Praying it will help him.

Spring allergies and pollen have caused problems for Charles. I've been keeping house closed for now and keeping dust and pollen out until season ends.

Hugs

Cuttercat

[Nanny857]

Does George have an Occup Therapist, or has PSP Assoc assigned a Specialist Advisor to you. Could they not help you get one through NHS. You shouldn't have to buy one. Another option is borrowing one through the Red Cross.

Life is s--t with PSP and you don't need unsympathetic GPs handing out prescriptions for 1 day that is totally out of order. (( )) more hugs lovely lady.

[Yvonneandgeorge in reply to Nanny857]

No none of those. I have ordered one already, it stressed me out so much today, could not have another day like that, They should come and liver with someone with psp, things would soon change. Sendin you a big hug. Xxxxxx

[Nanny857 in reply to Yvonneandgeorge]

Yvonne, they would run a mile...

Hope Nebulizer arrives soon to take some of the stress off you.. xx

[Katiebow in reply to Yvonneandgeorge]

xxxx ❤️

[Yvonneandgeorge]

Yes I think you are so right xxxx sending you a big hug xxxx

[daffodil48]

what are you using in the nebuliser. Maybe this could help my husband's coughing and choking.

[Yvonneandgeorge]

Just saline used it a few times it does help him. He seems to have the breath problem every 6 weeks , will keep using it xxxxx

[Cuttercat]

Dear Yvonne,

We have this through Hospice. Hope you can as well. We ONLY use saline now. The albuterol caused major irritation and coughing (and you and I know how that is). Let me know what happens.

Cuttercat

[Yvonneandgeorge in reply to Cuttercat]

Cuttercat I brought mine from amazon I don’t think he likes it, but going to keep using it, seems like it is doing him good xxxxx

[Mnd0vrmnky]

I bought colloidal silver to add to the water for our nebuliser. Should aid in killing any bacteria that might cause pneumonia. I've tested it with 80/20 water/silver with no irritation whatsoever. The couple of times he's used it he didn't have the patience to hold it for more than 5 mins, and because it didn't help clear his lungs instantly he couldn't be arsed using it for any prolonged period. I will insist if he starts to get pneumonia though. Only had food in his lungs a handful of times so far. Separating wet and dry food stuffs stops this from happening for now.

[Yvonneandgeorge in reply to Mnd0vrmnky]

Thank you, he seems to be using it ok, xxxxx

[Cuttercat]

Dear Yvonne,

Are you using Zantac? We do at every meal and it has eased the pain in the esophagus. Another idea we are employing.

Glad saline is helping.

XXX

Cuttercat

[Yvonneandgeorge]

No but will ask for it thank you for sharing feeling really stressed last week, maybe it’s lack of sleep. Yvonne xxxxx