Told dad dead by weekend

[Elsie22]

Dad very ill. Off legs weds. Dr said lucky if he gets to w.end. but still here. Have they panicked us too soon. Told he was dying. I think it's the next stage. How long now. Nurse is on long term sick.

[Escada29]

Hi I don't know but I do know they don't give up that easily!

[NannaB]

Try not to panic. Hold his hand, talk to him about you and your family if you have one, tell him you love him, invite folk in who may want to see him before he goes. After 11 days of waiting, I told my husband it was OK for him to leave me and I would be alright. He went a few hours later.

Thinking of you all at this difficult time.

XxxX

[Hidden]

That's so hard. Four weeks ago my dad had a terrible episode, his obs were at their worst, had paramedics out, told us he would go that night. 2 weeks later he had another infection, told the same and he's still alive and kicking. Emotional roller coaster.

[Duffers]

Hello elsie. The truth is nobody knows when someone will go. Most PSP sufferers are fighters. They told us ger would go in few days but he hung on for two weeks. Maybe thats the professionals way of telling us that time is running out so spend as much time as you can with your dad. God bless.

Marie

[Elsie22]

Yes well interestingly, after the panic call from the ditsy GP last weds, who has been pretty lame all the way through, he IS still here. And now after a few nights of the same I recalled what the Parkinson's nurse said back in July. That dad would lose his legs next.

And so this is where we are at. So now battling with other people who panic when he holds his breath for 15 seconds and ring you to say AGAIN...get down here. Only to be presented with dad just settling into his night sleep breathing. So im off to work today. Can't play the watching game.

Cos we've been on high alert since weds im relaxing into a pattern with dad.

He always was an obstinate bugger lol. Thank you for wishes. My poor sister is off on her honeymoon on Monday. Told her to go. She got married last June bless her. Xxx

[Elsie22]

And where I live no one had heard of PSP. I've had to educate the residential home his GP etc.

Just shame when he went off his legs I didn't stop and think what the nurse said. Of course had no support as Parkinson's nurse on long term sick. Hospice never phoned me like they should have.

And yes rollercoaster is the word since Weds. Xxx