Another Move: A room has become available in... - PSP Association

PSP Association

9,232 members11,335 posts

Another Move

Robbo1 profile image
14 Replies

A room has become available in the Home that was our first choice. It is a Nursing Home, many of the staff have worked at our local hospice. There are four patients to each carer.

I don't feel too bad about moving B. The manager of his present home left suddenly just before B got there, having not turned up to do B's assessment at the hospital. There is a temporary manageress there at present. The staff are lovely, but grossly overworked. The place is, in my opinion, understaffed. B was left in bed one day with only a pullover, pad and pants on due to all his trousers, shirts, pants and pajamas still being in the laundry. ( They had a problem with staff in there as well.) I went down to find some of his clothes and met one poor lady struggling with a backlog of washing for over fifty patients.

The CHC meeting took place yesterday. (Again!) Don't know the outcome but hoping that it is positive, as the new place is more expensive.

B moves on Monday. I hope it goes well. At present the only stimulation he gets is when I go or friends drop in. X

Written by
Robbo1 profile image
Robbo1
To view profiles and participate in discussions please or .
14 Replies
Yvonneandgeorge profile image
Yvonneandgeorge

Fingers crossed that it all goes through, good luck with the new home, sounds lovely. Yvonne xxxxx

Zeberdee profile image
Zeberdee

Seems a very wise decision. Hope CHC do the right thing for B and I really hope all goes well. Jxx

Katiebow profile image
Katiebow

Sounds a much better option, fingers crossed it's all agreed.

K xx

Tippyleaf profile image
Tippyleaf

Hope the move goes well and the CHC funding comes through.

Love Tippy

Robbo1 profile image
Robbo1

Thank you all. The trouble is I can't forget what B used to say when we came back from a holiday, "East, West, home is best!".

I find that sitting with him at the home he is in, is exhausting. I'll shave him, read to him or move him to another place, but I am getting more and more depressed by it all. I know he wants me to stay longer, but three hours is all I can manage, without getting visibly upset. Yesterday I sat in the car in the garage and thought,that if I left the engine running it would all be over. I won't do it, but it shows how low J feel at present.

Sorry to be so negative. I' m just missing him greatly. X

NanBabs profile image
NanBabs

Robbo,

Like you I`ve had some very low moments but I stop and think what P would do without me visiting daily and looking out for him in lots of ways - including still fighting to get CHC reinstated. I also think of the impact it would have on my family if I wasn`t here.

Like you I find that 3 hours daily is as much as I can do, plus the fact that the longer I stay, P seems to become more `clingy` and hangs on to my hand.

One step, one day at a time.

xx

Robbo1 profile image
Robbo1 in reply to NanBabs

Thank you for your insight. NanBabs. Its good to know there are others out there struggling with the same issues. Today, B slept for the whole time. X

Marie_14 profile image
Marie_14

Robbo good luck with the move. The present place doesn't sound good so hopefully it will be an improvement?

Marie x

Robbo1 profile image
Robbo1 in reply to Marie_14

Thank you Marie. The staff are lovely, there just aren't enough of them! X

Noella21 profile image
Noella21

I hope this will be better for you both. It is a real concern how understaffed these homes tend to be. It is the same here. They have two staff for 30 total care patients.

johns65 profile image
johns65

Tomorrow we will face the same situation. Jim will go to our local Nursing Home after being fitted with a PEG tube. He thinks he will get to come home and I will take care of all his needs but I am having a really hard time explaining to him that is not the case. You see I had a heart attack two weeks ago while sitting in his hospital room during the PEG tube surgery. I cannot take care of him at home everyone tells me. I know too, that I can't but it is so hard to come right out and tell him, "You can't come home". How is everyone else handling this situation? This is my "rant and rave" this morning from Minnesota.

Robbo1 profile image
Robbo1

The home B has just gone into is lovely, surrounding a level and very nice garden. Staff ratio is about 1to 6 so I am hoping that he settles in well. He has a largish room but needs to be good and not fall or they will move him to where they can see him better. Here's hoping all will be well! X

Kevin_1 profile image
Kevin_1

Hi Robbo1

I wonder whether dropping a line to the CQC might be in order?

My fear is always for those who don't have an involved family member.

We had a similar thing in a BUPA home. They were clearly running with minimal staff who generally seemed very good... but just too few of them. The new home is dreadfully expensive despite having max. CHC funding. But, the difference is astounding.

I do hope you get the funding and the move.

Best

Kevin

xx

Robbo1 profile image
Robbo1

Thank you Kevin. I think the problem stems from the manager suddenly going and, I think, some staff. They were bringing in new carers when B left.The new home is lovely but B wants to come home with me, it breaks my heart to leave him. He does not seem to comprehend how ill he is. The home is expensive, but at home care would be more so.

We had another CHC meeting, this time supported by one of my daughters and by my son who had filed a complaint about the last one. This time CHC funding has been recommended, but it has to be ratified.

My heart tells me to bring B home, my head tells me that it is impractical. There is no peace with PSP is there? X

You may also like...

Moved on

residents transition to a nursing home. A bed had become available at a nursing home which the...

Sudden loss of ability to move?

me to come home from work, and in the 15 minutes that took, he lost the ability to move his...

PSP - Sara Stedy & hospital bed have moved in

hoping Sara is as well. I now feel like we have our armor and are ready to take this on. That being...

Another big adventure!

power wheelchair (with attendant controls for me). His wife is an official backseat driver (every...

Another hospital trip

was extremely constipated . his poor tummy is so swollen. They said go home and take 45 MLS of...