Back to me second home: Hi all Well two... - PSP Association

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Back to me second home

Suebatt profile image
10 Replies

Hi all

Well two weeks home and back again in hospital infection again . I'm so having doubts as to where I'm living these days

Sounds awful but Archie so doing my head in cause they aren't moving him yet so while I went outside they give him a buzzer and he's done nothing but press it till I have taken him off him

Oh the joys of what's happening with this damn disease

Sue xx

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Suebatt profile image
Suebatt
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10 Replies
Satt2015 profile image
Satt2015

Rubbish Sue, total rubbish!! You must feel like your going mad?! Draining.com!! Hugs x

Althea-c profile image
Althea-c in reply toSatt2015

Ditto 💛🙏

Suebatt profile image
Suebatt in reply toSatt2015

Yeah I went mad years ago lol

Sue xx

Althea-c profile image
Althea-c

So sorry to hear he is in hospital again. Althea 💛🙏

doglington profile image
doglington

What a night mare, Sue. I know I just feel like " Stop the world. I want to get off !!! "

Want to join me ?

But I can't abandon Chris !!! Its even more awful for him.

Jean xx

Suebatt profile image
Suebatt in reply todoglington

Yeah be nice and I agree carnt leave them nobody to fight there corner

Sue xx

Yvonneandgeorge profile image
Yvonneandgeorge

I agree with you both, have to stay and fight for them, bloody PSP xxxxx

honjen43 profile image
honjen43

My love did the same!! When I asked why, he said he was turning something on and off. His other comment was that he wanted to see if the nurses were there!!! I liked that one!

Does not solve the problem of how such a patient can call a nurse when he really needs one when they can't push the buzzer. Initially there were two people in the hospital room. I called the nurse for both people several times!

Didn't help my friend either who was in a hospital ward in good nursing home in final stages of a brain tumour. She was also unable to push the button or call a nurse. She said the nights were aweful!

So far, have not heard of any satisfactory solution, even regular nurse visits, since nurses can't guarantee such regularity.

Hugs

Jen xxx

Suebatt profile image
Suebatt in reply tohonjen43

Hi Jen

He can still use the buzzer when I'm not there he is always pressing it

Sue xx

honjen43 profile image
honjen43 in reply toSuebatt

Long may that continue.

Hugs

Jen xxx

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