After thought: This showed me how much what makes me happy, has changed. My hopes are far different and much sadder now as psp marches on. Hope is sure a precious thing and feeling helpless to help someone you love is one of the worst feelings ever. (I was first introduced to that feeling when Mama died at 34 from aggressive/fast acting cancer when I was a dumb 16 yr old who did not know how to help.) I miss having "hope" to stall psp, and since all I ever post is SO DURN DEPRESSING because I come here and read and cry and pray for us all. So, I thought I should share this moment of being GLAD for a change. Soo ok Daddy has recently been assigned a nurse who checks in on him about once a wk at this time and she told his wife the other day she can tell he's eating a good diet because his skin looks good and it heals despite being bed bound for going on a year. I reposition him during the night and cook all his suppers and put a lot of effort and thought into meal planning especially because there are serious limitations to what he can manage to chew and swallow and because his appetite is half what it was before psp. I'm working on a budget too, so that's a lot of criteria. HOWEVER... knowing for sure it's helping him made every step I've walked on my plantar fasciitis, and every minute of planning meals and cooking... SO WORTH IT!! I and we feel excruciatingly helpless in the face of this brutal disease that has no treatment much less a cure, so this really made me feel... not quite as helpless. And as I write this I see, it's full circle, couldn't help Mama but I've helped Daddy. I just wish I could do more (aaaah so negative!) haha I tried!