HE IS IN HOSPICE: AFTER FALLING TO MANY... - PSP Association

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HE IS IN HOSPICE

Auddonz profile image
28 Replies

AFTER FALLING TO MANY TIMES I CALLED HOSPICE AND THEY ADMITTED HIM IMMEDIATELY. I DID NOT WANT TO SEND HIM BACK TO THE HOSPITAL SINCE THEY THREW HIM OUT ANYWAY. I AM NOT DOING WELL.

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Auddonz profile image
Auddonz
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28 Replies
easterncedar profile image
easterncedar

Audrey, my dear. I'm glad he is being taken care of. Now you have to get some rest. You know you must. You may pick up the battle again later, but for now, he is safe, and really, dear, please, rest. Hugs, ec

Auddonz profile image
Auddonz in reply to easterncedar

EC, They will never let him come home. They have brought in the Dept of children and families and have determined they not let him come home ever again. I am so sorry I sent him there,

doglington profile image
doglington in reply to Auddonz

Oh, Audrey, please don't beat yourself up.

Maybe he will feel safer being nursed by professionals and you can keep yourself healthy and love him.

Big hug from Jean xxx

honjen43 profile image
honjen43

Oh Auddonz What a terrible time! You have done the right thing and he will be well looked after there!

You MUST give some thought to YOU! You sound like you are utterly exhausted!

Please go home and get some sleep! Or failing that, talk to the nursing staff and fry and find somewhere you can relax!

Have read your recent posts! Can you go see your own doctor and ask them for help for yourself? You can't go on like this without help. Ask for some for yourself! See if a different tack gets you both what is so obviously needed!

A BIG HUG from me for you. I am little help otherwise - but am hoping and praying that someone soon will see SENSE!

Love Jen xxx

Yvonneandgeorge profile image
Yvonneandgeorge in reply to honjen43

Audrey so sorry you are going through all this, my heart aches for you, go home get some sleep, you need sleep, otherwise you will just fall apart, then you will be no help to your husband, this PSP is such a horrible illness. George has been up for the last two hours, totally shattered, we are all with you Audrey, big hug coming your way. Yvonne xxxxx

Auddonz profile image
Auddonz in reply to Yvonneandgeorge

Yvonne they won't let him come home.

Yvonneandgeorge profile image
Yvonneandgeorge in reply to Auddonz

Audrey take a break and get yourself fit again, you can have quality time with don xxxxx

Kylie4951 profile image
Kylie4951

You know you ARE doing well!! You are doing fine! You got your guy to the right place where he is safe. Now you need to get a good days rest and you will be up to whatever again. Many prayers

abirke profile image
abirke

I echo ec. He is safe, now you need to get some rest, Audrey. Take up the your responsibilities later, for now get some sleep.....

((warm hugs))

AVB

-shelly26- profile image
-shelly26-

This breaks my heart. You will be in my prayers.

Heady profile image
Heady

I agree with everyone else. It's been obvious for ages that YOU were on your last legs. Now your husband is in the Hospice, in a safe environment, being well cared for. Go home, get some well earned sleep. Go to the doctors, get a check up, maybe some sleeping pills, to make you rest. PSP doesn't care who it wipes out, the more the merrier. Don't make its life easier by being totally exhausted. Your husband needs you, his wife, not some exhausted Carer who is well on the way to crashing.

Sending big hug

Lots of love

Heady

Auddonz profile image
Auddonz in reply to Heady

Heady, they are telling me he will not be coming home. His organs are shutting down. I was with him most of the day and he didn't respond much. They have brought in the Department of children and families. I know they won't let him come home.

1941mary profile image
1941mary

I am glad he is being cared for ... you definitely did the right thing . Please have some rest knowing he is safe . X

Robbo1 profile image
Robbo1

I agree with all of the above. Sending warm hugs and prayers. RX

jillannf6 profile image
jillannf6 in reply to Robbo1

me too

;lol jill

xxx

NanBabs profile image
NanBabs

You sound absolutely exhausted Audrey. You must look after yourself, someone else is caring for him but you need to care for you.

A few days rest will make you feel stronger, more able to face the next onslaught from this ***PSP !

Hugs xx

Auddonz profile image
Auddonz in reply to NanBabs

They are telling me he will not be coming home again. I was with him most of the day and he would talk to me and hardly ate.

NanBabs profile image
NanBabs in reply to Auddonz

That is the hardest part - knowing he will not be home again. My heart bleeds for you. When I had to take P into the nursing home, I knew he would not be coming back and it was very tough.

You have fought PSP on behalf of your husband to the best of your ability (and beyond !), now just let yourself be a wife again and spend the time you have left together.

Hugs. xx

doglington profile image
doglington in reply to NanBabs

Agree. It is so painful. Make the most of what you still have,

Love, Jean xx

Katiebow profile image
Katiebow

Thank goodness that your hospice took him in, you know he is being properly cared for there. I so feel for you Audrey, you certainly have had your fair share of heartache of late. Take this time to rest and restore yourself until he comes home again and try to get yourself to see your doctor and see what support is out there for you as it sounds managing on your own is becoming increasingly difficult in many ways.

Love and hugs

Kate xxx

Auddonz profile image
Auddonz in reply to Katiebow

They will not let him come home. One nurse said his organs are shutting down.

mamaw1965 profile image
mamaw1965 in reply to Auddonz

I don't understand why they won't let him come home? If that is where he wishes to be to pass. He can get Hospice care at home.

Katiebow profile image
Katiebow in reply to Auddonz

Oh no Audrey, all I can do is send you my love and support. Had he made his wishes know to where he wanted to be, Ben has said the hospice because they are there to support you, make sure he isn't in any pain and most importantly allow you to spend precious time with him without having to think of anything else. My thoughts are with you both Audrey.

Love and hugs

Kate xxx

ketchupman profile image
ketchupman

Love and prayers to you both.

Ketchupman

Marie_14 profile image
Marie_14

Dear Audrey, please please take care of you. He is safe where he is and will be well looked after. You HAVE to take care of yourself. You can remind me of those words another time! We are all much better at giving advice than accepting it? Just rest and rest! My prayers are with you.

Marie x

doglington profile image
doglington

You did the right thing, Audrey.

As everyone says you can help him most by looking after yourself so that you can show him how loved he is, whilst others keep him well.

Big hug, Audrey.

Lots of love from Jean xx

Nanny857 profile image
Nanny857

Dear Audrey, what a hell of a time you have had this past year. This PSP is everyone's worse nightmare and more. Don is in a safe place and being well looked after. Now you have to take this time and look after YOU. Plenty of rest, eat well and build yourself back up again so that you can fight another day and win. Sending you lots of love, thinking of you. ❤❤ Nanny857xx

PSPwife profile image
PSPwife

Thank goodness your hospice has sense! Take some time for yourself now. Sending warmest regards your way.

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