I hate UTI's and all that comes with them and I hate the way they change my mum.
My mum is not herself again - always complaining and nothing ever good enough, her leg hurts and the duvet is too heavy so I massage her leg and change the duvet for a lighter one but that's not right either , she says her neck hurts and the pillows feel like they have rocks in so I change them many times but none of the 10 we try are right I have run out of ways to get her neck and head comfortable, the pads she wears for Incontinence make her sore ( barrier cream is used every change) again I try to adjust but nothing is right , the carers we have three times a day she says are rough and pull and push her about and none of them are gentle i have tried to explain to her that as she is nearly bed bound the only way she can be changed is by them pulling and pushing her into place so they can do their job but after less than a week she wants to change the carers ! She has just told my 9yr old son that he doesn't care about her and no one does when he has been sleeping on the sofa near her for almost 2weeks so she can adjust to being downstairs and so she is not alone , He was so upset but I told him to ignor what she said she didn't mean it it's just the infection but sometime I think this must be what she really thinks and means as it's not the first time she's said hurtful things .
Mums appetite disappears when uti takes hold it's just such a worry and I Just don't know how much more I can take !
Had the community nurse first visit today and she was here got a call that the hospice has referred mum for CHC so assessment is 19/Dec something else to worry/think about in a turbulent time.
Forget my first sentence I hate PSP and all that comes with it I am losing the will to fight the c**p it throws at us.