How do I stop MY eyes leaking?: The tears... - PSP Association

PSP Association

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How do I stop MY eyes leaking?

Debbieann profile image
19 Replies

The tears just seem to .......leak

Xx

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Debbieann profile image
Debbieann
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19 Replies
goldcap profile image
goldcap

If you figure it out let me know:(

abirke profile image
abirke

Why they call that dry eye...I cannot remember. But B's eyes do the same thing. They say if you use Saline solution regularly , it helps

abirke profile image
abirke

Wait you don't mean emotional crying , do you I am such a dulce....if you are crying here is a Huge hug....probably won't stop the tears....but here I am!!! I have this dog, Darcy for four years now...keeps chasing the neighbor kids on a bike!!!I told Darcy she keep chasing those kids I'm taking away her bike [drum roll please!] My foster Grandson was studying about Australia the other day. He exclaimed, that kangaroos can jump higher than houses....To wit I replied, "I did not know that houses could jump at all!" Ya learn something new everyday, right Da? I hope your leaking eyes get resolved one way or tuther , girl...

(HUGS)

AVB

NannaB profile image
NannaB in reply toabirke

Oh AVB, thanks for making me laugh after a very disturbed night. I like starting the morning chuckling.

Have a good day.

X

Debbieann profile image
Debbieann in reply toabirke

Thank you

jzygirl profile image
jzygirl

That I'm afraid is what psp and a lot of other diseases do to you. I find my eyes leak a lot now especially if I'm being hugged. Be brave and get lots of kleenex in..... other brands are available.... just remember that if you wear glasses the nice soft balsam tissues leave your lenses smeared. Jane xx

NannaB profile image
NannaB in reply tojzygirl

A virtual hug for you Jane. Hope it doesn't make you cry. How are you doing? I wonder why folk being nice to us makes us cry. I'm fine when people are being "normal" but as soon as they show sympathy I have a job coping. Weird isn't it.

Take care, thinking of you often.

X

jzygirl profile image
jzygirl in reply toNannaB

The virtual hugs I can cope with. As the people in 5he church found out the warm embrace is my undoing more tearstains on Sunday then any other day. I think because of all the problems I've had to deal with it has kept me occupied. Now all we have got to do is wait for the funeral. Jane xx

NannaB profile image
NannaB in reply tojzygirl

💐 🍷

X

Julieandrog profile image
Julieandrog

i find swearing helps so here goes, this s*** , F***ing, b*****d disease ! there do you feel better now! mum did say there would be days like these, i woke up crying this morning i'm not sure if it is the weekends and we feel the loss or our lives as we knew it more,

much love

julie x

Debbieann profile image
Debbieann in reply toJulieandrog

Yes I find weekends worse, I guess it's because I used to look forward to the weekend, now there's nothing to look forward to

Love Debbie x

Heady profile image
Heady

Friday nights are my worst. The weekends, I find quite relaxing, we have no Carers in, so no clock watching.

As to stopping that leaking eye. Funnily enough, I have the same problem! Lots of rest helps. Have you started going down the road of applying for CHC yet? It would definitely help, you could get some respite booked. I find that an enormous help. S came out of his last one, two weeks ago and I am still coping not tooooooo badly(as of 11.13am) I expect a crash is looming, but enjoying this brief period of calm, until it arrives. Did have a small one a couple of nights ago, but managed to bounce back. I have S on Wiltshire Farm Foods now. They come already puréed, all I have to do, is shove them in the microwave. Now I have the time and energy to feed him, reasonable(!!!) patiently. Another stress point got rid of. Totally against all my principles, but it's working.

Debbie, we all get stressed. It's finding the areas that cause the stress and thinking of a solution, that will help you manage your life a bit better. Which will in turn, reduce the leaking eye syndrome. As Julie has said, shout and swear as much as you can, to release the pent up stress. Don't know if you have a pet, but they are a lovely place to ditch unwanted anger. Get a big fluffy toy, use it as a kicking ball, when things get tough. Most of all get on here and rant and rave about the things that are getting you down. Stop bottling every up. These feelings have to come out, hence the constant crying. You know we are all here for you, with that huge broad shoulder,for you to rest your head on, have a good cry, then dust you down and send you onwards and upwards.

Lots of love

Heady

doglington profile image
doglington

Let me know if you find a cure !! I have had this much of the time since diagnosis. Like nannaB , its especially if people are kind or caring.

I just see it as protracted grieving. Seeing Chris coping so stoically is just so awful.

At present we are having unbroken nights but I still feel so miserable. I think for me it is the lack of hope.

Love and a big hug, Jean xx

1941mary profile image
1941mary

I too cry often ... I March when mum was first diagnosed I just couldn't stop . At work when colleagues asked after mum or friends ! I now just keep thinking that mum would hate me upset so I try to be as positive as possible . But it's easier said than done when I look at how brave my mum is trying to be and the constant changes in her ... it breaks me !!

To every reader today I'm sending you huge hugs and love . I find so much comfort in you all .. THANKYOU XXX

Georgepa profile image
Georgepa

If anyone is nice to me ,sympathetic,understanding etc then that's me gone .Given the moment I could well up over the weather forecast .I think we are all living on the edge and it doesn't take much to tip us over .

teej profile image
teej

Mum finds that keeping the room dark and wearing dark sunglasses helps this problem. She has tried all kinds of different eye drops for dry eye that didn't help. Systene or Sistene eye drops seem to be the best for her but nothing has really "worked" There was an earlier post with a lot of replies and suggestions that you may find useful if you can find it

Katiebow profile image
Katiebow

I cried for England when Ben was diagnosed and I read up on PSP, now I just feel numb most of the time. I often feel that I would like a really good sob to get rid of the pent up emotion but the tears just won't come. There seems no happy medium does there Debbie. Take care and sob away, this disease spreads its evil web and snares it's victims and families unmercilessly. PSP certainly sucks.

Love and hugs

Kate xx

Debbieann profile image
Debbieann in reply toKatiebow

Hi Kate, how's Ben?

Xx

Katiebow profile image
Katiebow in reply toDebbieann

Hi Debbie, Ben happy to be home after 12 weeks in hospital but his mobility has been badly affected and toileting much more of an issue. His hospital bed is downstairs, wet room almost up and running thank goodness. Have carers in the morning now as he isn't able to do anything without help and I know I can't do everything myself without cracking up. What about you?

K xxx

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