I know i never posted much at all, i always observed and pulled from all your strength always been kind of a quiet and to myself person. My husband Ben passed of PSP on 8/6/16 after being diagnosed in 6/2010. Was married 36yrs and it was a horrible experience seeing the man of your dreams fade away but we went thru it all with Psp n if theres anything i can answer to any of u all bout what our experience was, i would share. Thank u all for ur post, keep doing it cause u are all a great support. Luv to u all.
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dcamacho53
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So sorry for your loss. I know we are headed down that road too . Some soon ,others later. I try not to think about it too much and will deal with it when it happens. Making the most of the time we have. Glad to hear you are still willing to share and that this community has been a support to you. Still here for you if you need to talk. hugs and peace to you.
Dear Ms DC, I don't know you yet know you all to well. Strained stressed tired and now alone. I am sorry for your loss . At these low times in our lives I must lean on the only thing that seems to be there no matter where I am at....and that is the Love of God...knowing that He is there gives me great comfort and I would like to share His loving words with you at this sad hard time....Keep us on your dial....if you ever need to scream, we are hear!
AVB
Remember DC,
He Healeth the broken in heart and bindeth up their wounds. Psalm 147:3
For our light affliction, which is but a moment, worketh for us a far more exceeding and eternal weight of glory. II Corinthians 4:17
For as in Adam all die, even so in Christ shall all be made alive. I Corinthians 5:22
So sorry for your loss. My dad has had PSP for a number of years now and we have been told he's in the late stages. I'm not sure what the late stages really are and what to expect will he eventually need a peg to be fed or is every case different? X
Every case is different, I believe. The issue of PEG feeding is a major one. Best to be prepared with a decision on that before it is imposed on you. There is a lot of information available on this site if you use the search function. Best wishes, Eastercedar
We're so similar. My wife died on 7-9-2016 and was diagnosed with Parkinson's on 1-5-2010 and later with PSP in March 2011. And we were married for 35 years. She was only 54. My heart still aches. I guess it will for the rest of my life.
So sorry for your loss. I rarely posted myself but took comfort from everyone on this site knowing you were not alone. I have just come back from a funeral of a lovely lady who had PSP. My husband is 70 and has PSP since 2006. At present he is in hospital with a second dislocated shoulder in 8 weeks. I am waiting for help at home. His speech swallow mobility and eyes slowly getting worse. He is in total denial so it is very hard to bring help into the home but at this stage I have to be strong and demand help. I feel so sorry for him but it is so hard when he keeps saying there is nothing wrong with him. I would like to know how you coped and did Ben go downhill very quickly. Once again so sorry for your loss I send a BIG HUG xxx
I have just found your post. I am new on here and not sure what I am doing half the time!
I am so sorry you have lost your loved one. Although he is now free of it and you can rest? Please post more. You have been through it and can help those of us facing it. We all need each other to battle this evil condition.
I hope you are taking care of yourself and remembering the good times.
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I'm new to this please be gentle with me
Update to my post on the U-Step 2 Walker, the best walker for those with PSP
Complicated afternoons
Linked to trauma??
