I am as always full of admiration for everyone on this site surviving this horrible disease or caring for someone.
I am sure you can all identify that some days pass and everyone is remarkably unscathed and other days it feels like the world is imploding......well today is one of those days.
I don't think that anything else in my life results in me experiencing such a diverse range of feelings. I feel such intense sorrow for my dad (psp sufferer) as my he gone from being such a physically strong and independent person to someone who is wholly reliant on my mum for everything.
In an average day I can feel happy that dad hasn't had ANOTHER fall, then I watch him struggling to find the words to answer a question, watch him using his sense of feel rather than sight to locate his drink, watch him try to walk despite his 'glue foot' which renders him frozen to the spot. Feelings can be so overwhelming yet they feel misplaced as I am not the one with PSP.
I watch my mum, attending to my dad's every need and worry at how long she can manage everything for.
I feel terrified at what the future holds and how much worse this psp journey is going to get for my parents.
There is not a real question in this post, rather it is just a forum to past that I feel bleeeeurgh to people who may understand what I mean.
Thank you for reading and keep up the good work- you are an amazing bunch of people.