looking for a PSP Clinical Trial

[trixie66]

My husband was diagnosed with PSP this year and we have been looking for a clinical Trial. We live in Buffalo NY but would travel to another state if we have to. If anyone can help we would appreciate it very much. ThankYou

[Hidden]

Here is a list

clinicaltrials.gov/ct2/resu...

[enjoysalud in reply to Hidden]

You are the best!

Margarita, Los Angeles, CA, USA

[Christine47]

This may be a long shot, but there is another member whose wife is using Tasigna. He feels it is really slowing the progression. There is a clinical trial posted using it for Parkinson's. You might want to see if they would accept an Atypical PD patient. ClinicalTrials.gov Identifier: NCT03205488 Recruiting Nilotinib in Parkinson's Disease •Parkinson Disease •Drug: Cohort 1:Nilotinib Oral Capsules (150mg or 300mg) •Drug: Cohort 2: Nilotinib Oral Capsules (dose to be determined from Cohort 1) •Drug: Placebo •University of Alabama at Birmingham Birmingham, Alabama, United States •Barrow Neurological Institute Sun City, Arizona, United States •University of Colorado at Denver Aurora, Colorado, United States •(and 19 more...)

You can learn more about his experience at supportpsp.com

[Kristin447]

Hi my husband just started a clinical trial in NY. Columbia University-Presbyterian Hosp. We are traveling there from Boston tomorrow for his final screening apmt on Monday. If you search my name I posted the contact info. Good luck.

[daddyt]

Hi. If you go to CurePSP.org, you'll find information on clinical trials state side.

Tim

[Kristin447]

ARRISE TRIAL by ABBVIE:

Hi, here is the person you can contact regarding the trial.

Solciris A. Dominguez

Clinical Research Coordinator

Staff Associate

Center, Department of Neurology

Columbia University College of Physicians and Surgeons

630 West 168th Street P&S Unit 16

New York, NY 10032-3795

Phone number: 212-342-2380

Fax: [phone]

Email: [e-mail]