This is my understanding of the situation. If Frank is in a nursing home/care home and is receiving help with dressing/feeding. toileting etc he is entitled to Nursing Needs Allowance and the home should automatically apply for this to the PCT. This money is paid directly to the home and should be deducted from the fees (if you pay) If you have a social worker contact her/him and dont be put off or side tracked. You have to shout loud and long. Mention CC and say you want to apply for this for Frank. Enlist anyone who will listen hospice social worker, doctors, community nurses. You need everyone to fight your case. The application form is long and you are awarded points for certain things concerning Frank's present condition. If you dont get enough points to qualify this time you can re-apply in (I think 3 months) and go through the whole process again. Phew!! We are still waiting for the answer - it will be soon time to re-apply!! Best of luck. It is true who shouts loudest gets , which should never be. The professionals know or should know that this disease gets worse and what the implications concerning care are.
Hang in there