After 4 years (including a Normal Pressure Hydrocephalus diagnosis - was that ever right?) I am fully expecting a PSP diagnosis for my 83 year old mother in the next day or so. In fact if the neurologist doesn’t confirm my fears I will ask them to explain why she doesn’t have PSP as the minute I discovered this condition and read the sysmtoms I pretty much knew straight away.
I can see from this forum that we have a long and cruel road ahead, but if I might be so bold to ask, is there anything I should know at this stage to ask for, or to ensure she gets in terms of support, medication that might help. I realise there is no ‘cure’ but am picking up that some medicines may help with symptoms or slow disease progression?
Thank you in advance and I will keep you posted as our journey progresses. Feeling a bit devastated at the moment.