My father has taken a turn for the worst they say! He's been deteriorating for the last 4 years. He barely eats or drinks, his feet and hands are freezing, he constantly has chest infections and he's completely bed bound now. Within the last 3 weeks a 'end' care plan and medication needed for 'the end' is in place. His body is breaking down they say, no point taking him into hospital as there is nothing they can do different to what we are doing at home. He's very unsettled at night and is demanding but we don't know what he wants as communication is non existant.
I am so sorry for you and your father. I do agree with the suggestion below that a hospice might be an option at this stage. Do you have a GP who might refer your father? If not, I would contact your local hospice directly.
A hospice will support you and your family, as well as making sure gets the best possible pain relief and care. They may support you with advice even if you decide to keep your father at home.
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Breathing Difficulties and PSP
PSP - progressing right along
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psp peg tube dilema...advice + experiences please?
