Everyday seems to get worse. Jim has gone from totally independent for toileting to incontinent in a matter or weeks. He is now needing help getting in bed and out of bed. Getting to the bathroom and moving at all without help. Is it normal to progress so quickly in a matter of 2 months to spend 80% of time in bed. I am waiting till tomorrow when he goes into the ADP program for the first time. I only wish I knew the progression of this terrible disease. He was diagnosed with Parkinson's in 2010 at which time I thought that his symptoms just seemed to progress too quickly from what I read and saw of Parkinson's but no one seemed to listen. At that time he was struggling with perception and his sister insisted it was Alzheimers which i argued that it was something but not that. He had short term memory difficulties but not anymore that any man has. He had had a triple bypass and a valve replacement and never came out of that surgery the same. He is now incontinent and has difficulty with being able to clean himself after a bowel movement to sleeping constantly. He has difficulty chewing and eating and walking needs many cues and help. Is it normal to progress this quickly and now what can I expect. It is the unknown that is most difficult and not knowing how long I can cope. Venting is good.
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