Just got the letter this morning - CHC funding rejected - passed all the recommendations of the various panels - turned down by the final finance panel .Will obviously appeal but it will all take more time so my care plan is up the spout for the moment as I can't keep paying out £100 for night sitters three times a week .To do that I have had to stop my day care except for two hours - so I will have to do a major rethink . Getting up in the night sometimes over a dozen times doesn't seem to constitute a primary health need nor having to put my wife in a standing hoist to keep her upright whilst I wash her and dress her .The fact that I keep her clean and her skin in good condition counts against us - if I didn't try and let her get sores and smelly would probably have got us extra points . Feeling very disheartened - I give my wife 24 hour care and some bureaucrat somewhere deems she doesn't need it. I suspect if it said motor neurone on her notes and not PSP it would have been rubber stamped or am I just being cynical .
A "fed up " Georgepa