We had an appointment yesterday with GP. He right away said to Jim "You are losing weight". I said that that is why we were there. We talked and he said I was doing everything I could but because of the disease, eating wears him out and he is having more trouble swallowing which also takes a lot of effort. His drooling is profuse at this point as well which is a sign of swallowing difficulties increasing. He said the best I can do is just keep him as comfortable as I can. He gave me a prescription for Ensure, a meal replacement and said to keep doing what I could. I slipped back into his office and asked him what his prognosis was and he said that he figures that by the end of summer he will be in care and we are probably looking at around 6 months. Not good but we discussed feeding tube and we both agreed it would not give him any quality of life at this point. I guess that kind of answered my questions. We are going away next weekend to the Shriner's Convention as this is something he enjoys. It will be very difficult but even if he just gets into the parade he will be happy. He will probably sleep the rest of the time. Hopefully he will get some good times together with the boys. I will just have to look out for the good times he can have regardless how small.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.