I am a little confused as my husband, Ben's GP and neurologist don't seem in any hurry to get things underway that we will need put in place in the future. Ben is still in denial about his condition so can't discuss things with him at present but I get scared that his condition may deteriorate more quickly than they expect. The GP has come across PSP twice before and said he was actually seeing a patient today who was diagnosed 10 years ago. Ben has deteriorated cognitively over the past 3 months and has experienced inbalance the past 2 years. He isn't working or driving at the moment, he imagines that he will get better send return to work and driving but I very much doubt that. Am I being too pessimistic?