Yesterday was a bad day, for what was no apparent reason, I couldn't stop thinking about my Mum. Every song that came on the radio seemed to set me off, I saw an article in a magazine that Mum would have loved previously and that set me off, the builder came round to talk about a new kitchen and the poor bloke looked terrified when I said to him "My Mums brilliant at colour and space, I'll ask her and get back to you" and then promptly burst into tears.
I know I can still ask Mum but what will happen is she will repeat back to me what I've just said so even though I try and include her and make her feel like she's still involved, its a very different conversation.
To finish me off a "well meaning friend" text me suggesting I watch a programme on dementia as it might give me some help and understanding about what's going on with my Mum - I'm sure there would be elements but do people not think that we haven't explored everything we can possibly find on the subject? I know she meant well but it was slightly preachy....
It probably doesn't help that I'm a Life Coach so people's reaction is often "well you're in the right profession, your coping skills must obviously help with all of this?"
Well yesterday I didn't cope......so there!!!
Today is another day, lets hope one of my clients doesn't moan about breaking a nail, I might just have to tell them where to get off
Written by
Katet68
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Kate I'm sorry that you've had a sob day. It is hard to stay strong all the time and this is when you need people that understand what you are going through either because they are in the same situation or have been there. I find if I'm having a sob day the last thing I want is someone saying you are trained or some such nonsense because I get that look and say are you for real.
you must hang onto the memories and I know you are still making new ones with her. But like the rest of us you are grieving for what has been lost and this psp is a dirty rotten thief it keeps taking bits and pieces of our loved ones so each day we grieve a little love a lot and laugh some.
A SOB day is a must or we would loose our marbles and then where would be. I had one on Tuesday (Brian's birthday) and because he was at the hospice I was able to wollow in my grief and tears. Big hug to you. Janexx
My turn Kate!!! This life sucks at times, doesn't it!!! My mum has alzheimers, so with her and S, feel like life is giving me a very hard kicking.
But we will get through this, don't know how, don't know when, there is no other choice, if we get up in the morning, then we have to put up with what goes on, before we go back to bed! One of life's rules is, children have to out live their parents, so I'm afraid we are stuck, that last thing our Mothers need, is that rule to be broken!!!
That doesn't mean it's easy, or that you can't rant, scream and cry about your mums illness and how it's effecting her or YOU. I know you feel guilty about expressing your feelings, when it's her that got the disease. DONT,!!! PSP is very social, the more people that suffer, the better it likes it!!! Your mum and S have the illness, but it's you, your Dad and me, with all the other carers that have to suffer its affects!
Bring on that client with the broken nail and get stuck in!!!
Those who deal with PSP have those types of days. Your past is your past, it has nothing for you so don't go there. Each day is a chance to start fresh. Jimbo
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A Special Day!
mum was told august this year she has psp
Nearing the end 
