Difficulty breathing. Scans and tests leav... - PSP Association

PSP Association

9,266 members11,356 posts

Difficulty breathing. Scans and tests leave doctors clueless. Antibiotics/steroids don't help

Alex46 profile image
5 Replies

My friend had been in the hospital for some time now having difficulty breathing (needs oxygen mask). He started coughing a month or so ago. He does not smoke, no asthma, lives healthy lifestyle playing sports. One thing that might be worth mention is that he managed to get chickenpox couple of years ago which probably affected his immune system quite badly, but he did recover fast.

At first doctors decided to give stronger and stronger antibiotics. With time he became worse and now that the scans and tests apparently do not show anything, they have NO IDEA what is wrong. Having tried steroids the temperature finally went down from 40 Celsius to 36. Problem is that he still needs oxygen supply. One of the doctors proposed to put camera into lungs through the nose so they might be able to see something, but the lack of oxygen makes this very risky.

Myself I experienced very difficult 3 weeks of cough and mucus. I have personally pulled through. Unfortunately I think I might have passed that something onto my friend, still not sure.

I know this is very vague but any suggestions on this mystery would be very welcome.

Written by
Alex46 profile image
Alex46
To view profiles and participate in discussions please or .
Read more about...
5 Replies
cabbagecottage profile image
cabbagecottage

Do you think it could possibly be happening because of poor posture . This is partly the case for my husband . He is a lot more slumped and head leaning forward causing any organ o become restricted . That's apart from the motor problem

cabbagecottage profile image
cabbagecottage

Do you think it could possibly be happening because of poor posture . This is partly the case for my husband . He is a lot more slumped and head leaning forward causing any organ o become restricted . That's apart from the motor problem

zjillian profile image
zjillian

I don't know what country you are in but next step would be to move your friend to the nearest teaching hospital with a good diagnostics department.

Jill

Costa Rica

jillannf6 profile image
jillannf6

HI I agree with cabbage cotttage and jill CR above

yo need a dxs soon b4 your friend gets any worse-i may be,poor posture hwih is causing the problem - has he seen a neuro for a dxd??

lol Jill in the UK AND PSP person

:-) hugs and xxx 2 you both

jillannf6 profile image
jillannf6

see below

You may also like...

New here. Husband diagnosed first with PD now PSP

of the day. Eats candy all day , coughs and chokes , but doesn't cough at all at night or when he...

It's been two weeks. A new year starts tomorrow.

we have been through so many phases of this disease. And it gave him such trouble, even years ago....

I’m new to the site. My husband has CBD

I guess I’m just looking for support through this process from people that understand it better than

Hello from Indiana, USA

etc. We are very fortunate to have supportive families who live close to us. However, we have...

In Hospice as of now.

hospice. I kept telling the nurse she would have to get the doctor to sign off on this. It may...