Time to Live: Made a bold move today,We... - PSP Association

PSP Association

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Time to Live

deew profile image
deew
23 Replies

Made a bold move today,We bought a motor home (new to us) and are going to do some traveling while my husband is still able.I have never drove a large motor home but I will give it my best try.Not sure how long he will last but at least its better then sitting here waiting.

Deidre in BC

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deew profile image
deew
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23 Replies
carehope profile image
carehope

Dear Deidre,

So happy that you're able to do something that should provide you and your husband with wonderful shared experiences and incomparable memories to last forever. Not many people ever make such a positive and adventurous life decision, even without any personal challenges !! I think it's a great idea ! Go for it ! Best wishes , Elise in L.I.

littlesupermum profile image
littlesupermum

enjoy!!! best wishes on your new adventures x

peterjones profile image
peterjones

good on yer deidre just give it a whirl before you do some seriouse traveling wont you mate\\ you have the right artitude its no different fromj a car just a little bit bigger mate

you can handle it \just allow a bit of room when turning for the length of your motor home i have a 18 foot 8 inches caravan i have just been up to Rockhampton aprox 700 klm away from me but i just took my time going up there \\\ there was no hurry and i felt good so off we went i\ might add some years i have belonged to a caravan club and just recently got my badge for 100 rallys thats going on one rally a month anyway thats digressing a bit but you will be fine after as little while you will feel as though you were

born behind the wheel have fun i have great admiraration for you and your husband

in the words of a famous man ===== ME === JUST DO IT \\\\\\\\ PETER JONES QUEENSLAND AUSTRALIA PSP SUFFERER YOUR BLOODS WORTH BOTTLING MATEY

heinrich profile image
heinrich

the best thing, you can do.

Best wishes, Heinrich

Pram profile image
Pram

Wonderful! All the very best !

deew profile image
deew

You all know that your are the best,,Im going to give my husband the best bucket wish list that I can .Its been a tuff week Im not sure how long he can do it.And if I go in to the poor house ,Oh well Im going know I gave my best friend a good send off.Im going to try to get a banner for the motorhome that says support PSP,still working on it. .

Take care of yourselfs

Deidre In BC

laroux profile image
laroux in reply to deew

You are awsome Deidre!! You should check out "vistaprints" to get a banner made, they are pretty quick and reasonable...just google it.

Joan

Alberta,Canada

Kirsty55 profile image
Kirsty55

Fabulous idea! Hope you both have lots of fun and adventures!

Kx

SuzieQ profile image
SuzieQ

How wonderful! I wish my hubby was well enough to do it. Sadly he's in a nursing home now as I was unable to care for him while undergoing my chemotherapy. It was a very hard decision but he is settled there. Unfortunately his PSP is accelerating far too quickly. I see you live in BC. One of our daughters lives in Abbotsford. The last time we visited was 2009 and we toured all over. What a beautiful, beautiful country. We always said that if our lives had taken a different path we would have moved there. Make the most of every minute you have with your hubby and enjoy your new motor home. I am really envious. Best wishes to you both and please keep posting on the site to let us know how it's all going. Take care.

SuzieQ xxx

SharonAB profile image
SharonAB

Dear DeeW,

You made me smile! Go for it.

I hired one about two years ago and as soon as I saw it nicknamed it "the monster truck". Didn't realise what was in the brochure would turn out to be so ginormous!! (?) (My cousins & daughter all put in request for one that would be big enough to not hear me snore.... Nice one people!!...)

Anyway - I became reasonably used to its width and length (or other drivers and my passengers got used to me - depends how you look at it!) Those over hanging trees - well that's another story.

Anyway the point of the story is we 'all enjoyed ourselves and have some very happy memories' and I am sure you will too!

Regards,

Alana - Western Australia

flicka profile image
flicka

You will never regret living life in adversity. Amazing memories to cherish. I salute your courage, both of you. ll All best wishes for your adventure Flicka x

manitoba profile image
manitoba

That's awesome. You deserve a lot of credit. We had a smaller unit for a while and enjoyed it very much. You will meet a lot of wonderful people. Enjoy the experience/

MarilynMorgenstern profile image
MarilynMorgenstern

Live every day as I did. Never to say your sorry that you didn't make every moment left meaningful.

MOMBCD1 profile image
MOMBCD1

I am sorry that your husband has psp but I think you have done the right thing

wifemo profile image
wifemo

Deidre - Enjoy!

We were lucky enough to have a small motorhome while Tony was OK to drive.

He was never a good passenger but as the PSP progressed, one day he said he didn't feel able to drive any more. The Caravan Club etc here run "manoeuvring courses" - the one I went on had two other lady drivers and a chap who had just changed from towing a caravan. We learnt some useful tips that day - including allowing for those pesky overhanging branches ..

You will have some fabulous memories to cherish.

Mo

Dear Deew,

What a fantastic idea. You do not have to go far at first, just get used to the mobile home and enjoy little excursions. I am sure you will both have lots of fun and pleasure and that's what it is all about!

Well done.

BarbR profile image
BarbR

Bravo! What a great move. How I wish I'd had the presence of mind t do that!

Macd profile image
Macd

Very best wishes in your travels it is very important to keep your husband fully involved in everyday life and to have him participate in as many activities at this time. Take along binoculars and if possible a spotting scope and a bird guide for the birds that are in the areas that you plan to travel to and share the fun a challenge of identifying the different species of birds that you see. This was one of the activities that my wife shared right up to the last days of suffering from PSP. You can both enjoy this activity and create a bird list of those that you both could identify.

Richard

ultramodern profile image
ultramodern

dear deew...well you've got the whole following of yea- sayers backing you up so there's no question you fired up everyone's imagination with your motorhome idea. You can handle the driving,I'm sure,with no problem.

And what a beautiful country to explore and enjoy with hubby by your side.

Go for it, bon voyage and watch out for grizzly's, Deew!

best, brian

NannaB profile image
NannaB

Hi Diedre, Brilliant! Go for it. We always said we'd get a motor home when we retired. When my husband was first diagnosed I suggested getting one but he said he had changed his mind so we didn't. It may have been because he was no longer driving and didn't fancy me doing it as I hardly ever drove our car. I would loved to have bought one but it's too late now. Have a wonderful time with it and collect lots of brilliant memories.

Best wishes

Nanna B

shasha profile image
shasha

I SO AGREE WITH YOU IT IS 100 TIMES BETTER THAN SITTING THERE WAITING FOR THE INEVITABLE - IN FACT WE WISH WE HAD DONE THE SAME THING OURSELVES BUT IT IS TOO LATE AS WE HAVE SPENT ALL OUR MONEY ON A SWIMMING POOL WHICH I HARDLY EVER USE -- #

MY LOVE AND GOOD WISHES GO WITH YOU XXXX

edkor profile image
edkor

GREAT ! Just go slow and Enjoy ! So very happy for you !

Heady profile image
Heady

Dear Deidre,

Well Done!!! How hard can it be, if a man can do it, so can you! I'm doing loads of things I never thought I could do, or even wanted to. Some I can do fine, others, well let's say the jury is still out. My husband and I travel to South Africa regularly from England. We bought a house a couple of years ago. We are going to keep going as long as we can. Yes, sometimes it's hard, but so is sitting here at home, it's just warm than UK, which helps S!

I'm sure some will be negative, please, please, don't listen to them. Life was designed for living and the clock is ticking, not just for our husbands but us as well!

ENJOY! ENJOY! ENJOY!!!!!!

Heady

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