My mother was diagnosed 18 monthe ago with PSP.
This disgusting disease has robbed her of her speech, eyesight, mobility and ability to eat.
Mum has been in hospital for 6 weeks now, she is nill by mouth and is recieving minimal fluids. We cant believe she is managing to stay with us. She is still giving us the thumbs up at times and tries so hard to keep her spirits up.
Her morphine intake is increasing and im scared she is simply not ready to go despite everything she has been through. As with most PSP sufferers she cant communicate very well but understands everything. This is hell for all involved
Feeling sad and angry at the same time .