...I'm very pleased to report that since the night I left the hospital on 5-23, after experiencing a cluster of days I'd awake so physically ill in the morning - scary ill, but fine yet exhausted the rest of the day, those episodes have not returned, ever so thankfully.
And, since I found out on 5-30 that not only did I have severe sleep apnea, but the more serious variety, that being central nervous system apnea, I am no longer fighting it. By that I mean, I would awaken exhausted from poor quality sleep with or w/o the intense dreams toward dawn during which the physical symptoms would arise. Because I knew I had a poor night's sleep, I'd force myself not to nap during the day in hopes of getting a good nights sleep, in spite of being/feeling exhausted beyond words and totally unproductive.
Now that I'm aware of the apnea and the very fundamental ill effects it's been having on me, probably over the long-term, I'm not fighting day time napping at all. I believe I've previously posted I'd nap a few times a day from the exhaustion of PSP, but I would limit it severely to try to get a decent nights sleep.
Now being informed, and with the psychological barriers out of the way, as I continue to sleep of poor quality during the night, I'm freely letting myself nap on and off during the day which has helped me feel more stabilized. The oxygen company still hasn't contacted me to start the process of mask fittings, machine calibrations, and adding a second, more sensitive machine to make the C-Pap machine more effective. I will call my Doc's office and give them a prompt to make sure they get in touch with me.
I'm not expecting perfect improvement/results with the C-PAP therapy, but given how severe my apnea is, I'd consider even a 40 percent improvement a great victory; I will allow myself open for more, tho...)
My youngest, Melissa, who just returned home from college after returning for a semester after a year's respite from an unsuccessful experience there, actually made the Dean's List! 3 A's, an A-, and a B. I am so very proud of her. What a comeback. But it encompassed far more than just on an academic level.
My oldest, Katy, has been going thru the very tedious and frustrating process of getting social services in the County we moved to. It was to be a flawless transition as she never relinquished her services from our former County, and her Social Worker, Jacob, went to great lengths with completing the loads of necessary paperwork, and making several phone calls to ensure she wouldn't fall thru the cracks.
But unfortunately and maddeningly, she did. It's been a source of great stress for her and myself. She has always had special services due to her disabilities since pre-school thru the several years of education leading to her graduation last May from a 3 year transitional program for young adults with special needs.
She absolutely needs structure and the ability to socialize which is difficult for persons with the types of disabilities she has. But the friends she has made and friendships she's maintained are priceless. There is a large employer supported work program in this County we were told by living in it, should make it even easier to get into.
Didn't turn out that way due to a bunch of bureaucratic muckety-muck; those who have to deal with these governmental agencies there to 'help' can perhaps relate to how crazy-making the process can get.
Lived here 8 months but had to wait 2 for her to be considered a resident; started the process at that time tho her social worker had done all he was to do in advance of that 2 month window of time. Poor Katy's just been twisting in the wind all of this time with a handful of confusing and discourage visits from the intake worker.
Today, Finally, we got the call that sounds like everything is finally moving in the right direction but no firm guarantees yet. That is still leaps better than where it was stagnating for the longest while.
Our former home is finally completed of it's numerous repairs and is going on the market for sale this week. Yea! That was a long haul by itself.
Finally, after many rain delays (it's been raining at an incredible frequency here; a meteorologist stated this morning out of the last 2 or perhaps 3 months, we've had 27 sunny days), my cousin Bob is coming over to help me in my beautiful yard and start planting flowers in some of the many gardens.
Just wanted to share. A handful of very important matters outside of the PSP have come together or are currently coming together. Much to smile about and be appreciative of right now
Love,
Judy
Update on Mum
when the carer is ill
