I'm looking for guidance regarding hospice care...Mom lives with me and was just "officially" diagnosed in September, but has had all the symptoms for years. She is bedridden and relies on me for all of her needs. Well, long story short we started hospice care for her in November. Every time she has something new going on I have to explain to them that it is part of her disease...I need support from them not me explaining things to them. I guess I'm just frustrated.
On a side note my Dad is also here with me and he has cancer that has spread and we are just day to day with him also. He has hospice care also and I feel that they handle him better. I guess that's because unfortunately cancer is a common thing.
Thanks for listening