I just wanted to introduce myself. I was diagnosed with prostate cancer in February of 2016 when my PSA rose to 10.6. I was GS 7 (4+3) and aggressive treatment was recommended. I chose RP and had surgery in April '16. The pathology report showed an extra-prostatic extension, but negative margins and negative lymph nodes. My PSA was undetectable. The surgeon declared me "cured" and I was very relieved. Unfortunately, I experienced a BCR (.05) in April '17. I was devastated as I truly believed that my cancer was gone. I was assigned to a radiation oncologist and received 6 weeks of ADT (Lupron and bicalutamide) prior to 40 radiation treatments. I opted to stay on ADT until April of 2018 as I found studies that showed slightly better outcomes with extended ADT. It has been 18 months since the end of ADT and I am still undetectable.
Here are some personal observations. The RP knocked me back a little more than I expected. I was pretty miserable for about a month. I found it uncomfortable to sit long. I did not experience significant incontinence, but I was unable to obtain an erection. The ADT did away with any sexual desire and reinforced the ED. About six months after cessation of the ADT, my libido started to return and then, out of the blue, I woke up with a morning erection. My erections are pretty normal now (but I would swear that my penis is shorter, does that happen?). I don't really have any incontinence to deal with. I have a rare small leak, usually with exertion or an unusual movement. (I have to be extra careful when passing gas. ) Of course, all my orgasms are "dry", but satisfying.
I guess I am luckier than some and I get more and more confident with every undetectable PSA test. I appreciate being able to compare notes with all of you. Best wishes to all.