Long term SBRT toxicities

[pd63]

2 weeks post SBRT 5 sessions for low risk intermediate and the short term SEs have diminished, no longer taking the flomax and rectal issues were minimal.Are the acute/short term SEs severity a predictor for long term/ chronic SE issues?

[Jpl506]

I’m 4 years out and so far the side effects remain minimal. I did have the 12-15 month post treatment flare but I was warned about it so it wasn’t surprising. Otherwise I remain very happy with my outcome.

[ToolBeltZia]

I am 4 months post SBRT had minimal GI side effects for 10 days. And essentially no urinary side effects. I am continuing Flomax as I had BPH prior to starting this rollercoaster ride. Have 28 days of Orgovyx left ( of 6 month total). So far it has been an easy ride. And my PSA at 3 months was 0.09, down from 7.8.

Stay Strong Brother

[Tall_Allen]

No. It's the other way around. Those who experience late term SEs have almost always experienced those same SEs acutely.

[Nordman]

Your question is of interest because I am in almost exactly the same position. In my case it was 7 fractions rather than 5. I am 2 weeks post RT tomorrow. The side effects thus far have been minimal, and hopefully that will continue. My flow was not that great prior to the RT and I had the constant sensation of incomplete emptying of the bladder, and slower flow. I resisted taking medication and urination has mostly improved. At the rectal end it has been mostly excess wind (gas), which could have possibly been improved by a more specialised diet, but the wind too is diminishing.

I am assuming like me you did not have HT?

If I understand Tall_Allen, minimal initial side effects seems to correlate with reduced longer term side effects (which I think you were alluding to). Tall_Allen I would be interested in reading the reference on this.

Jpl506, when you mention flare at 15 months, is this PSA flare?

[pd63 in reply to Nordman]

Not PSA flare, urinary and rectal

[mchale in reply to Nordman]

Good to hear SBRT did not make your urinary symptoms any worse. I have a IPSS of around 12-15, Pelvic pain comes and goes. I need to schedule my MRI Linac SBRT treatment soon, was diagnosed late June, Decipher score low, .29, PSA steady 4.5 for last 4 years. GL 7 3+4.

[Jpl506]

Flare in urinary symptoms. It was damn hard to get started a few times but it only lasted a couple of weeks. Also urgency and the feeling of incomplete emptying. I never had any rectal symptoms during or after treatment.

[MarkS]

I finished 37 sessions of EBRT last week. I had "flares" of needing to go quite urgently for a wee or a poo. Generally only once a day for a poo, so that was OK. I had difficulty starting to pee, but was given Flomax for that which eased that somewhat. But sometimes I was getting up every hour in the night. Since finishing the EBRT, both have eased a bit. I now take the Flomax in the morning and drink less water now I don't have to super-hydrate and the night time issue has reduced to 3-4 times.