Same boring repetitive news, my PSA remains at <=0.08 after completing 3 years of ADT (including 39 sessions of EBRT) for very high risk locally advanced (regional) prostate cancer.
Never thought such boring repetitive news could be so joyful!!!
I’m definitely in the VERY lucky category (obviously my radiation oncology team and local PCP team are responsible for my good luck!!).
My testosterone level has skyrocketed to an unbelievable 🔬2. Yes you read that correctly, just 2. I know that if it’s coming back, it could take 18 months to 2 years. I knew what I was signing on to at the outset.
However I didn’t really believe that 3 years later I would show no evidence of disease and have an undetectable PSA and be alive and well!!!
I’m living beyond my dreams 🥳🍾
Hugh
Written by
Aodh
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Hugh, as your T level rises so, too, will your PSA.
I am now 27 months since my last of 25 EBRT sessions and 18 months since my last three-monthly hormone injections (Zoladex). I had 6 ADT injections in all.
Rad onc said that the hormone injections were necessary to lower my T level in order to make the rad sessions more effective.
In just six months before I had the rad treatments, my PSA went from 18.6 to an "undetectable" <0.02, and my T level dropped from 8.3 nmol/L (Canadian measurement and equal to about 90 US) to an also "undetectable" <0.4 (4-5 US).
My latest three-monthly blood-letting showed that my T level has now returned to just above its pre-rad level (8.6 or 95 in USA), and my PSA doubled to 0.04.
If PSA reaches 0.1, I will enquire, but feel pretty good until it goes up to 0.2.
Hugh, as a postscript to my recent posting, like you, I, too, was on Casodex, but only for 30 days commensurate with my first Zoladex injection.
I do a lot of continual research on my condition and found out that 25 EBRT were just as effective as the 40 that were originally planned for me.
Likewise, I learned that 6 injections were just as effective as the 8 that were originally planned for me.
My rad onc, who I think is fantastic, agreed with me on both counts.
However, if i had to do it over again, I would have a serious discussion with rad onc to lowere injections to 3, maybe 4.
The side effects of the hormone injections and the rad treatments have been very uncomfortable and are doggedly persistent even 18 months after my final injection.
Like you have experienced, I too expect the treatment side effects to last quite some time especially from ADT. I just rejoice that It looks that I may have a durable remission ahead of me!
The help and support that I have received here on Malecare has been invaluable to me; I feel a responsibility to be here for others also, irrespective of how durable my remission may be. I’ll always chime in when my experience may be helpful.
I am so grateful for this site and the people on it.
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Gleason score change from 3+4 to 3+3 with perineural invasion noted under Active Surveillance 
My journey starting at young age <40
3 Months post ADT (Orgovyx) Still having hot flashes and fatigue-doing blood test in two weeks..for hopefully nadir..
Worked Out Well
My Current Story
