Good outcomes and experience with Eas... - Prostate Cancer N...

Prostate Cancer Network

4,903 members3,041 posts

Good outcomes and experience with Eastern US SBRT, LDR, HDR centers?

cdj70 profile image
10 Replies

Thank you for this forum and to all of you that are willing to share and post your journey down this road we’re all traveling together!

51yo in Charlotte, NC. PSA 6.0 drove MRI PIRADS 4 of 1 lesion then Fusion biopsy 16 cores (4 ROI + 12 template). Hopkins 2nd opinion path shows 4 ROI cores all with 3+4 with 20% GLS4 as highest and 2 of12 other template cores 3+3 and PNI. DECIPHER score 0.21 = Low. Repeat MRI at Duke 6 months after last one confirms PIRADS 4 of 1 lesion <1cm capsular abutment but no ECE and Prostate Volume 40mL. Latest PSA 5 months after biopsy now 7.4.

Duke mulitdisciplinary visit recommending RP, but I’m not comfortable with QOL outcomes and most everyone I know that has had RP has also needed f/up RT so I am leaning toward keeping anatomy intact and doing RT.

I’m willing to travel for treatment and thank you for any advice you might have for me and my situation.

Written by
cdj70 profile image
cdj70
To view profiles and participate in discussions please or .
Read more about...
10 Replies
NYC_talker profile image
NYC_talker

Happy to help. Please see my posts on LDR at MSKCC in New York, and others here who did SBRT at MSK as well as those who did HDR at MSK. Good luck in deciding on a treatment -- you're in the right direction IMHO.

Tall_Allen profile image
Tall_Allen

Bridget Koontz at Duke. I'm not big on multidisciplinary meetings.

TylexGP profile image
TylexGP

Take a look at my bio. I did HDR Brachytherapy followed by EBRT at MSKCC; also was on ADT plus Zytiga prior to RT. I chose RT because I had a suspect node and the Urologist told me if you need RT post RP that any incontinence issues would likely remain where they were at the time of RT. I looked at RP and may have gone that route if it was contained to my prostate.

Scooter22 profile image
Scooter22

Pirad 5 lesion, ECE, PI, Intermediate unfavorable. I had 5 sbrt treatments in Nov. @ Duke w/fiducials & Spaceoar. Started Orgovyx adt 4 wks. B4 radiation & am scheduled for 18 mos. of the adt.. Everything has been virtually painless & professional at Duke. Of course, I have no other experiences to compare but so far I can’t imagine the process going much smoother anywhere else. Now it’s a watch & wait game just like everyone else. 🙏

Odnad profile image
Odnad

UNC REX just opened a new cancer center in Raleigh and UNC Chapel Hill has a cancer center and does cyberknife just not sure if they do it for PC. You already know about Duke.

CarverD profile image
CarverD

I was treated with HDRBT as a mono therapy about 18 months ago. So far all good. Worse part of the whole thing was pulling my own catheter the Friday morning after each of the two Thursday treatments. Side effects are minimal to nonexistent.

I am same as Scooter: 6 mos. Orgovyx ( started 2 mos. before SBRT @ Dana Farber ). Smooth sailing, almost no SEs. Eas an interesting experience. Now we just get on with life and monitor. Quality of life is high :D.

jimalong51 profile image
jimalong51

Talk to Dr. Gottschalk at UCSF.

Darryl profile image
DarrylPartner

Sign up for our free weekly Prostate cancer newsletter malecare.org/prostate-cance...

cdj70 profile image
cdj70

Thank you all for your responses. I’m currently still investigating brachytherapy options due to balance of efficacy and hopefully reduced risk of secondary cancers since 3 grandparents lived into their 90s.

You may also like...

SBRT or LDR Brachytherapy Treatment Options for 54 Year Old w/GG2 Diagnosis

one of these cores was 3+4=7, involving 15% of the core. Scheduled for a fusion biopsy next week....

SBRT for favourable intermediate - interested to hear your experience

3T-MRI no EPE, nothing visible yet in lymph or seminal, correlates to biopsy. 23cc gland. PSA 0.7.

Perplexed Pathology Report Findings

my record: Biopsy showed: GS 6 in 2/15 cores, 10% of each core. Both positive cores were from...

New Diagnosis - feeling overwhelmed

3 x 6.2 cm, with a PSA density of .04 and a PIRADS 4 lesion. A biopsy of 16 cores showed benign...

Biopsy 2 years post treatment

successfully treated with MRI guided SBRT for a PIRADS 5, Gleason, 3+ 4 fully contained lesion on...