Panacur (fenbendazole) report

[kapakahi]

So I tried it after getting all caught up in John's blog about it. I'm in nowhere near his situation when he started it - my PC has never left the gland in 11 years, and I've had four-count'em-four hifus in that time, each triggered by biopsy. IOW, hifu has never killed all the cancer (though it killed my sex life after so many treatments - the nerve bundles can take only so much boiling).

Last November my PSA was 0.9 - about the usual. But by April it had doubled to 1.8, and in May in was 2.27, so of course I was alarmed. No biopsy yet - I'm pushing for MRI-guided on the advice of my doctors, but the MRI-guided biopsy doctor, after looking at my MRI (admittedly showing kind of a messed-up prostate) said I didn't meet the "criteria," which are still a mystery to me (I'm working on this). I haven't decided what to do about the revived cancer, though I'm leaning toward another hifu (and not only because we get to go to France for it).

Anyway, after May's result, I bought some Panacur on Amazon - two 3-packet boxes. I got the 4-gram packets for big dogs since I am a big dog. Took them two successive weekends. I had another PSA test this week, one month after taking the Panacur. The PSA had dropped to 1.84. Is that a 19% drop? I'm bad at math.

I have no idea if the Panacur did that - PSA can go up and down for no apparent reason, but I'd done nothing myself to make it go up or down. But in my case anyway, the PSA has always varied by a tenth of a point - this time it was 4 tenths. Maybe it was the lab, maybe it was natural variation, maybe it was the Panacur.

So I think I'll take it again, and take it for longer this time, like a month until I have another PSA test. And then decide what to do about the cancer, if anything.

[Tall_Allen]

I think it may be time to give up on HIFU after 4 of them. Do you have any reason to believe that 5's the charm? If you want an excuse to go to France (Nice or Lille), there are a few places that offer salvage prostate SBRT. It is mostly for salvage after radiation, but they may be willing to treat after failed HIFU too. Look at the links in the following article for the hospitals and names of doctors:

pcnrv.blogspot.com/2016/08/...

[kapakahi in reply to Tall_Allen]

My doctor's first suggestion was SBRT - I've shied away from radiation because of its side effects, including those that can occur months afterward - and you know, Hiroshima, The China Syndrome, Chernobyl, etc. etc. etc. I can't deny such things have made an impact on my consciousness when it comes to radiation, even though I read here all the guys' success stories about having had SBRT. I haven't kept up on the latest advances though - my doctor (urologist) told me that it's come a very long way in terms of accuracy and effectiveness. And insurance would pay, which it won't if I have hifu in Europe. I'll have to look into it more closely. It would be a nice change to come home from Europe without a catheter and bag around my leg. And maybe the Panacur will actually work - I don't really have a belief in it, I'm going more on faith and hope, which can seem unreasonable to have. If it tasted awful and made me puke and was toxic to my system, I wouldn't take it. But it's cheap, maybe it works...

[j-o-h-n in reply to kapakahi]

Would you please give us more info about yourself... All info is voluntary but it helps us help you and helps us too.

Hope the Panacur works.

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 07/19/2019 11:00 AM DST

[x-rays1]

Good luck to you. Please keep us posted on how you are going. I will also be taking Panacur or something similar in the next few months. Most of the things I have read on it show great promise.

[tucker_man]

How does Panacur lower PSA? I ask because something like Saw Palmetto lowers PSA but it's literally lowing PSA itself, not the production of PSA (i.e., from healthy or cancerous prostate cells).

[RichNJ in reply to tucker_man]

Saw Palmetto lowers PSA but it's literally lowing PSA itself, not the production of PSA (i.e., from healthy or cancerous prostate cells).

Huh?

[tucker_man in reply to RichNJ]

This is what I was told when I questioned why Saw Palmetto was on the list of drugs not to take prior to PSA test. That it affected the PSA in the blood, not the cells producing it. I don't remember the circumstances any longer, but that's what stuck with me. I can't back that claim up with Internet research, in fact, I read the opposite--that it does nothing to serum PSA levels, so I don't know. Anyway, it doesn't change my question about how Panacur works.

[kapakahi in reply to tucker_man]

Fenbendazole is thought to kill cancer cells, which would lower PSA. I don't think the science is advanced enough to call it a theory - it's more like a hypothesis that needs further study - and it is being studied quite a bit. People with cancer tend to conduct studies on themselves.

mycancerstory.rocks/single-...

ncbi.nlm.nih.gov/pmc/articl...

npr.org/sections/health-sho...

nature.com/articles/s41598-...

canceractive.com/article/an...

[tucker_man in reply to kapakahi]

Cool, thanks! Interesting stuff.

[kapakahi]

correction: it wasn't John's blog, it was Joe's (Tippens) blog where I first read about fenbendazole.

[RunnerGrl]

Hello all...New here. My hubby has been taking the Panacur for weeks and his PSA has dropped from 10.5 to 7.3, so we are encouraged. He goes for a 3T MRI on Sept 9 so we will know what’s going on in his prostate then. I hope the cancer is undetectable at that time.

[kapakahi in reply to RunnerGrl]

I'm hoping for the best for you - sometimes I think hope is what the world runs on

[greatjohn]

I'm 10 weeks in on the panacur....did bloodwork and awaiting PSA results....

Hope it works for both of us 🐕🐕🐕😳

[RunnerGrl in reply to greatjohn]

I’m in a group of people with all different kinds of cancer and some are seeing fabulous results with it. Please let us know. I’m hoping it works for you as well.

[greatjohn in reply to RunnerGrl]

I'll be doing a follow up...as soon as I get my PSA results from Yesterday.

gJohn

[kapakahi in reply to greatjohn]

speaking of awaiting PSA results - I've always had to pry the results out of the doctors - the results come in quickly - it takes the labs a weekday or two to get the results to the doctor - PSA results have always been a source of some anxiety for me, of course, and my mind tends to catastrophize, though I've been extremely lucky so far I don't feel I have any right to feel lucky, but the doctors offices seem oblivious to the import - I have to call, and then they have to get back to me - they prefer that I get an appointment simply to discover this number - I have patient portals where they could post the results, and each time I look in three different portals (hospital, doctor and lab) and each time there's nothing - yeah, I know they're busy, god knows how many PSA results come in daily, but still...everything is automated and computerized and it should be easy so I don't have to sweat it, but nothing's changed in 11 years of living with this

(grumble grumble grumble)

[RunnerGrl in reply to kapakahi]

If you go to life extensions website you can order a PSA check there. You pay for it (about 25 bucks) and they send you a slip via email and you take it to a local lab. You can google which labs close to you work with life extension. Anyway, You give the lab tech the slip you print off and they draw the blood and send it in. in about 48 hours you get an email with the PSA result. My hubby does this on the regular. It has helped out waiting for results stress a ton. I hope this helps.

[kapakahi in reply to RunnerGrl]

Sorry to wait so long to reply. Your suggestion did help, a lot. I've been doing the Life Extension thing since December in combination with my regular doctor's lab orders. I did notice that LabCorp (LEF) and Quest (my doctor) measure PSA differently, and when a Quest result came in lower (1.1) than the preceding LabCorp result (1.4), I originally thought "great!" But Quest notes that its results may be 20% lower than a test done by a different method, and that turned out to be exactly right - the next LabCorp result showed no change from the previous LabCorp test. So now I use LabCorp exclusively, since that's the only lab LEF uses, while my doctor will send his requisition to any lab I want, so his orders will now go exclusively to LabCorp.

Bottom line: my PSA has declined from 2.277 last June (almost quadruple what it was in August 2018 - 0.6), when I started on fenben, to 1.4 and stayed at 1.4 for the last 3 months. Maybe it's plateaued - that's still more than double the August 2018 result, but at least it hasn't risen. I'll have another test in a week or so. I still don't know whether to have full faith in mebendazole/fenben. My liver enzymes have always remained constantly normal and I never have any digestive problems (well, for the last 2-3 months I've had constant constipation, which I've never had before, but I've read nothing about mebendazole causing that).

Thanks for the great tip, and cheers!

[Tosii2 in reply to kapakahi]

I had one portal that wouldn't post the results until 'the Dr.' had a chance to review it and give me the results personally, then the Dr would want me to have an appointment to get the results so he(usually) can charge for an office visit.... Not cynical here....

[greatjohn]

Mine comes to the portal...usually within 48 hours.

J

[Ramp7]

I stumbled onto Joe's compelling story by accident. From there, a young woman was mentioned, Jane McLelland. She is a twenty year cancer survivor. She wrote a book, "How to Starve Cancer", and has a Facebook page. Her ideas are controversial and thought provoking. I've been taking Fenben for about 14 weeks. I'm also on my first 3 month shot of Lupron, so effects are totally masked while under hormone therapy.