That's the truth! My cat does the same for me. She looks for me in the house sometimes and just starts talking to me. She did that today at lunch time.
Hi TDS, they are gorgeous, bless them. Annie looks quite contented there. How are you feeling now - a little better (if not a lot) than the last time you posted hopefully. I hope you've been taking things easy and resting. Take care. xx
Unfortunately, my most recent scans have been less than promising. Tumours at the base of my skull and along my spine have been seen that weren't evident on previous scans... We're trying to maintain a sense of normality, though. I really have been listening to my body and resting: not much choice in the matter as my legs and feet have swollen up to gargantuan proportions π΅ If I could only get this rubbish pain under control, too!
Thank you for your kind words. I hope you are keeping as well as you possibly can π xx
I am really sorry to hear that, it must have come as a nasty shock - life is such a bitch sometimes. I sincerely hope that you don't get any more bad news as you have enough to contend with. I will be thinking of you and hoping the doctors can get the pain under control somehow. π πΉ π xx
I think you're all right to be honest, we have been saying that for a long time now. The rich are getting richer and the poor getting poorer (it's looks like I'm about to burst into a song π) and the good people are getting a raw deal but the bad people are thriving. Something ain't right here somehow. xx
I'm so sorry to hear you have had yet more bad news, you've got enough to cope with as it is. You are in my thoughts and prayers. Thinking of you as always. All my love Lynne xxxx β€οΈπβ₯οΈπ
Some of my twin brother's (hundred or so) tumours are at the base of his skull... and, after kemo, when he was in hospital with pneumonia, the pain killers were not effective. Fortunately he is out of hospital now, he is taking his kemo again and the pain comes and goes when he is tired.
Sounds as though your brother has achieved a degree of pain management and I'm glad. Unfortunately, there's no certainty where pain is concerned; the trick is to stay one step ahead of it, if that makes sense? Head it off before it takes root and becomes intense.
Hello Sherin What lovely dogs you have I was going to message you on Monday to see how you are Hope all is ok love and the weather is not too much for you Take care as Always Xxx Brian
That is so nice of you to say so. You are a very kind, caring, compassionate, supportive and courageous lady. All my love Lynne xxxx β€οΈπ€πππβ€οΈπ
Annie looks as though she is quite enjoying herself. Bella and Keisha are waiting for that second pause to jump out. How lovely and cute the look. It's great seeing you post a beautiful photograph of your best chums. ππΆπΆπΆπΈ
Keisha ended up panicking and exited the tableau pdq! We wouldn't be without them, Sue. Our home is simply warmer with them in it. One day, I hope you'll meet them! π₯°ππΎ xXx
Now I can see π how you are crammed for room on the sofa , but they are beautiful little things and I can see π that they would get there own way . Take care my friend x
Iβm sorry your pain is not under control my dear poetic friend ... Iβm surprised at how people can get addicted to hydrocodone . I donβt take it because it doesnβt touch my bone pain at all. Iβm sending you love , love and more love.
I'm determined to remain buoyant for as long as I can. I take 40 mg Oxycodone in the morning and another 40 mg in the evening, plus liquid oramorph SOS. Because it fails to control the bone and nerve pain, I'm also on Nortriptyline 75 mg, taken at night. My calcium and potassium levels are out of whack, so I have to take those supplements, too. And a host of other drugs. I've just re-counted the number of tablets I have through the day - every day: 24. No wonder I rattle!
Love reciprocated in full measure... and I'm wishing your pain away β£οΈβ£οΈπ₯°β£οΈβ£οΈ
I just love your beautiful furry friends, they look great fun, each with their own amazing character.
Oh, l am so sorry that you now have even more bad news, you are so very brave and such a positive person, well done!
I am sure your family are so proud of you knowing how you are suffering such physical and mental pain.
I can sadly only wish you peace and my prayers while you are suffering so much.
I was on 100mg of OxyNorm daily, prescribed by the local hospitals βpain teamβ, l was so out of it and eventually ended up in ICU, my kidneys gave up eventually processing OxyNorm and all the other pain killers that l was being prescribed, including Oxycodone.
Pain is a body βcomplaintβ that in my experience no medical prescription can ever remove completely. At times it reduces the pain then makes you completely out of it mentally.
As l have said, my prayers and thoughts are with you. God bless, take care, Tim.
I'm grateful for your kind words and concern ππββοΈ
I have been wary of high doses of pain relief and try to keep liquid Oxycodone to a minimum. It's hard, though, when the only way you're going to be able to get out of bed is by downing a good 15 ml. I'm so sorry your painkillers affected you systemically to the point where you required intensive care. I was prescribed Gabapentin for pain late last year in addition to all the other pain relief Evil, evil drug. It took its toll on my body and my mind and I came off it cold turkey (unwise, as it then made me incredibly weepy for a couple of months while my brain acclimatised itself to the absence of the psychological buffer it had built up). I'm so relieved I'm not on that particular drug now and I have made it clear that I'm not prepared to take it again.
I'm not sure about my family being proud of me! They're certainly empathic, though, and they help me live as normal a life as can be expected. I would be in a far worse position without them...
Thank you so very much for your last message, it was so very kind of you to go to so much trouble.
Gabapentin, l have been prescribed this medication for quite a few years now. The worst time was when I was in hospital for a joint replacement and the same pain team suddenly doubled the dose that l was on which had been increased three days before. I told them this fact but said that this dose would help me. When my wife came to see me l was mentally somewhere else and she told the ward nurse to please sort out my medication politely. Which they did fortunately.
For the last two years l have weened myself off of Prednisolone completely (a very dangerous medication) and am now down to 100mg of Gabapentin a day, hopefully l will start reducing this 100mg very soon. This is off of my own bat, my GP was always just too happy to give me double what I needed. This is extremely dangerous, especially with the likes of Oxinorm etc. My worst medication experience was with Methotrexate, that is a long story! I too went βcold turkeyβ while I was in ICU, unbeknown to me.
I wish you well TheSnowDriven and hope that the Oxycodone continues to give you relief, it is such a fine balance.
I wish you Godspeed with easing off on the Gabapentin and I'm glad you've been able to do this with the Prednisolone: my late father was on this steroid for many years and I'm convinced it damaged him systemically.
Likewise, one of my cousins has been on Prednisolone for asthma for three decades now, and has put on so much weight, and - with that weight - is experiencing so many accompanying symptoms, it's heartbreaking.
Isn't it strange how physicians are sometimes so script-happy, yet they may hold off prescribing a specific medication to other patients who are desperate to receive it? I have no experience of Methotrexate, but it sounds as though it should be approached with caution, to say the least!
I would like, very much, to ease off on the Oxycodone, but I see no prospect of this, given the levels of pain I'm experiencing at present.
Thank you for your kind thoughts, Tim; I reciprocate them in full measure.
Thank you TheDrivenSnow for your kind thoughts, there are times that you need that extra help to cope with pain and if Oxycodone helps you l am pleased for you.
Prednisolone, weight gain on the face (moon face) back of neck, shoulders and stomach (l just cannot shift the weight on my stomach). I was 95kg and dropped to 75kg very quickly after stopping Prednisolone. Cataracts in both eyes, thin skin, Osteoporosis, oh the list goes on and on! I was on it for over seven years and am very pleased to be off of it now.
I am still in a lot of pain most days but trying desperately to teach myself to pace myself and not overdo it.
We should all get together and write a book on the pros and cons of medication.
Take great care of yourself, l am always so impressed with your positive outlook to your life. Always, best wishes to you and your family, Tim.
When I came home from a month-long stay in hospital last year, Annie was the ultimate therapy dog. She had been sleeping on my.pillow every night while I was away and wouldn't leave my side when I was discharged from hospital and on complete bed rest. Keisha moped throughout my absence, too. We had only had our skittish Blee for a month before I was taken in, so she really couldn't care less either way! But dogs that have formed a bond with you will invariably be affected and make any absence that bit harder. They sense emotion and are sensitive to change and disquiet. More empathic than human beings in some instances!
They are gorgeous.Pets give us so much don't they.I have never been without pets at any time in my life- even if it was only a budgie or gerbils!
I am truly sorry to hear about your bad news. As a relative newbie to the forum it is taking me a while to get up to date about members. Sending you big hugsβ€
Thank you, MB - and welcome to our hugely supportive community π
I had a veritable zoo growing up, so interacting with animals comes naturally to me. They add a fabulous dimension to our lives and I believe they teach us a great deal, especially as we are growing up. π
Thank you. My brother and his wife used to rescue and breed Cavaliers.My parents had one and he was such a character. He once took my auntie's false teeth out of her handbag and ran off with them! I'd love a dog but my husband doesn't like them. We've got a rabbit, Dylan, a small bun with a big personality.
Cuteness overload! Cavs are fabulous: made for cuddles!
I started out with two bunnies growing up... Ended up with 18!!!! I have vivid memories of chasing them all around our back garden, trying to herd them back into their hutches with the assistance of our resident shepherd, our golden lab Sandy! Dylan sounds rather wonderful ππ
πHe is fun.Ive posted about him a few times on here.Hes a bit of a pain at times. My parents' cav never liked my husband.He used to sit at the bottom of the stairs growling and barking whenever he was upstairs.I think he sensed that he didnt like dogs!
Your parents' cav sounds like Annie and Bella when my mum's carers visit! They turn into ferocious, feral, horrid little monsters. The rest of the time, butter wouldn't melt. Lucky we've got a children's gate installed across part of the hallway or the carers would have been ripped to shreds by now! I jest, of course, but they do get very annoyed and voluble (the carers AND the dogs!)
I think the feeling was mutual and Charlie ( not a very original nameπ)knew it.He was a character. One day he decided to run into the greenhouse and back out again-straight through a pane of glass.Not a scratch or drop of blood! Sadly he suffered from fits and had to be put to sleep.It broke dads heart as they were inseparable.
I have thought about you so often and seeing your post yesterday was lovely.
What would we do without our fur babies and their unconditional love.
I am desperately sorry that your pain is still not controlled and pray that it can be eased.
My heart aches for you and your family but your strength inspires me.
I wish you continued strength to bear the things you cannot change.
Sad fact is that though the medics would truly want you to be pain free that is not always possible and it hurts them too not to be able to give that to you.
Hello, Ellie. I'm so grateful for your concern and kindness. Yes, my medical caregivers in Oncology at the hospital, my GP practice and the consultants at my local hospice are all doing their best to keep my pain to a minimum. There are limitations, though, and those limitations are established by our bodies. No matter how hard anyone tries, there is a point beyond which no medical preparation will help. They have even said to me that the most I can hope for is that the edge will be taken off the pain. Bone and nerve pain is evil and insidious... My family look on helplessly as I contort my body so I can hoist it out of bed (there was a time - last year - when I couldn't even do that, though, so I'm grateful that I'm able to for now...
Thank you, Ellie. You're very thoughtful and empathic ππββοΈπ
oh how lovely your dogs are they are beautiful.so sorry you have had recent scans and now tumors have shown up that were not there before bless you,as if you do not already have enough to deal with.you are a very brave young lady,i hope you get some relief from the pain you are having.take care hugs love princess.nice to see you had put a new post on as i was wondering how you was.stay blessed
Hello! I'm pleased to hear from you after what seems like ages, but - in reality - is probably just a couple of months?
I'm OK! Really I am! The usual niggles, some additional pain and swelling, the difficulties with medication that I've come to expect π, but I could be a lot worse...
I'm trying to normalise the results of my most recent scans. The best way to do that is to get from one day to the next unscathed! In other words, sweat the small stuff!
Really good to hear from you! I hope you are keeping as well as can be expected - and that your spirits are high ππ
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