Not a medical forum 'per se' - Positive Wellbein...

Positive Wellbeing During Self-Isolation
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Not a medical forum 'per se'

crazyfitness
crazyfitnessAmbassador

Evening all

As there are many of us on this forum with medical conditions I thought I would ask a question.

I've been suffering with very itchy skin since about last August and it's getting worse lately. I am itchy on my legs, arms, trunk, back, shoulders and neck, it was so bad last night on one of my arms that I had to get an ice pack out of the freezer and place it on my arm until the itching stopped and I could go to sleep, it wasn't the best night I have to say as my tummy was also playing up (I have IBS).

I have been to the doctor, he's referred me to the hospital and sent a skin sample and it's come back that I have thickening of the skin and other conditions but my doctor said my skin is 'complicated' - I had to be different. I had a call from the hospital on Monday but I still don't have a date to be seen but as they phoned I think I may here some time soon, I really hope so.

I've tried a myriad of creams, anti histamines etc, does anyone know of any good anti itch cream or an anti histamine that's worked for them? I tried Witch Hazel this week but that doesn't work, I have Eurax which works for a few minutes but then the itching starts again, E45 anti itch, hydrocortisone from the doctors, even that's no longer working.

Thank you.

Alicia

155 Replies
oldestnewest

Poor you, you look as if you've tried everything. As soon as I read it I thought of an oat bath soak. Wonder if it will help

womenshealthmag.com/uk/beau...

Craftyperson
CraftypersonReading Rabbits in reply to Buddy34

That is very soothing

crazyfitness
crazyfitnessAmbassador in reply to Buddy34

Thank you Buddy34, I've heard oats are good so thank you.🙏🌈❤

Buddy34
Buddy34 in reply to crazyfitness

Also one of the guys on the running forum suffers from this . Not saying this is what you've got but as you are also out daily on your bike it's just a thought 😊

nhs.uk/conditions/polymorph...

crazyfitness
crazyfitnessAmbassador in reply to Buddy34

Thank you for that Buddy, I'm going to have a look now.

Alicia :)

Hi Alicia, Many people find changing their diet can help. Why not make a food diary and see if the itching is worse after eating certain foods. I think I would also go on line and find out what foods can cause itching. I actually have experienced some uncomfortable itching a few months ago. But as I'm pre diabetic with kidney disease I found out that itchy skin can also be linked to this.

I hope you get to see a hospital consultant soon as a problem like this can and is so miserable.

😢😩😧

Troilus
Troilus in reply to RoadRunner44

Have you changed your washing powder?

crazyfitness
crazyfitnessAmbassador in reply to Troilus

Yes I have but I'm using an eco one that's designed for sensitive skin.🙏

Troilus
Troilus in reply to crazyfitness

It could be the culprit. My dad got an itchy rash across his shoulders and all over his back. I had changed my washing powder from the cheap Lidl one to something else, can’t remember what. Dr prescribed hydrocortisone but it wasn’t clearing up. Then I remembered about the washing powder. I changed back and rewashed all of his clothes and bedding. Only then did the cream start working. It might be worth trying your old powder. Worth a shot.

crazyfitness
crazyfitnessAmbassador in reply to RoadRunner44

Thank you.

I've been keeping a food diary since January as I'm following the low fodmap diet for IBS, sorry I should have said. I really can't cut out anymore food. Oh my goodness, I feel for you being pre diabetic and kidney disease.

Thank you and I hope so too. I had food poisoning in November 2018 and I'm pretty sure that's what's affected my skin it certainly did my tummy.

I hope your skin calms down as well. I'm thinking of you.

Take care

Alicia🌈❤🙏

I was going to say Eurex because that was what helped me last year, I’ve suddenly started itching again, initially I thought it was the heat but thinking about it I think it’s more likely to be some medication that’s been increased. My pharmacist told me previously that it’s sometimes the covering what they put on medication to form a tablet if that makes sense.

I’m sure you know to have cool showers and pat rather than rub yourself dry.

Wishing you all the best. 😊

crazyfitness
crazyfitnessAmbassador in reply to Happyme123

Hi Happyme123 thank you for your reply. I do use Eurax and it helps a little but the relief doesn't last long. The only thing working is using an ice cold pad which is what my leg is resting on at present.

That makes perfect sense yo me and I'm sorry you are itching as well, it drives me nuts, I feel for my hubby who has Eczema

Thank you and yes I have cool showers, it's been easier in the lovely weather we had.

Wishing you all the best as well.

Take care

Alicia🌈🙏

Have you tried coconut oil, it’s antibacterial

crazyfitness
crazyfitnessAmbassador in reply to Mydexter

No I haven't, thank you for that, I'll give it a go.🙏

I was just going to suggest coconut oil too, you've beaten me to it. Great minds! Try it crazy fitness.

Craftyperson
CraftypersonReading Rabbits

I have multiple allergies, eczemaand contact dermatitis and have to take anti histamines every night otherwise I'm itching all night, usual ones don't work for me was on atarax for years and they worked great but a supply problem meant I'm now on fexadenadrine which seems to be as good. Don't use anything with a perfume in to wash with, use non bio washing powder and if your washing machine allows it add extra rinse. Last year I tried aveeno shower gel and I can't believe the difference in my skin also do a moisturiser practice nurse gave me free sample of that. I've had a patch of eczema on my arm for 10 years yes years and was given everything for it including strong steroid creams and it always came back within days of stopping use. BUT it's now gone!!!! I recommended it to someone else and it's helped them too. Don't have too hot a.bath or shower and avoid tight fitting clothes. Hope some or all of these help and you get in to hospital soon take it it's to dermatology dept? I also had a form of phototherapy under dermatologist with benefit of a suntan on nhs

In my case I had itching which drove me mad, turned out to be an allergic reaction to grapefruit. I only found out by doing an exclusion diet where you cut most things out and then reintroduce food groups one at a time.

Strangely I don't have a problem with oranges or lemons so it is not all citrus fruits.

A food diary as suggested is the start point.

I would expect you to have a hospital appointment soon as they rang, maybe ask about seeing a dietician if they can't find another cause.

Good luck

Ellie

crazyfitness
crazyfitnessAmbassador in reply to ellj

Thank you and I'm so glad that you found out what it was, strange it's not all citrus fruits.

Sorry I should have said I'm following an exclusion diet under a Dietician for IBS, it's called the low fodmap diet.

I hope it's not too long but as you say, they rang me so it shouldn't be long.

Thank you.🙏🌈

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

I did the.fodmap few years back sorted out my problems with bowels hope it works for you

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

Thank you, it's been working brilliantly but I'm have a horrible blip at the mo, think it's the food grade multivitamins I've been taking so I've stopped them now.

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

Yes some multi vitamins can cause problems I was told not to take any supplements while doing mine. I've since found a lactose free pro biotic with pre biotic in and even been able to re introduce some things hadn't been able to but not mushrooms unfortunately nor onions and garlic. Did your dietician tell you about asofetado? Gives you taste of garlic and onions without the side effects so can still have my spicy foods.

crazyfitness
crazyfitnessAmbassador

Oh my goodness, I feel so for you, at least I understand my husband now as he was born with Eczema. And you have Dermatitis as well, I'll mention those anti histamines to my GP.

I've never tried Aveeno shower gel but I will be now thank you so much. I have a cool shower all the time as fmdoctor told me to do that and wash in non sulphate products.

I love the sound of your free suntan.😉🌈🙏

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

I was born with eczema too ( and a full set of teeth but that's a different matter) and was so bad at one time my eyes would be closed shut on a morning and had to go to hospital to have them opened and mum was taught how to bathe them open on a morning. I used to use aqueous cream as soap but couldn't use in shower as so slippy so when found out how good aveeno was asked if could have that on prescription instead and they said yes. Dibrobase is a good soothing moisturiser but think.can only get on prescription so ask about that. The suntan was good as I never tan my skin doesn't like sun surprise surprise but one day I forgot to take my cross and chain off and I had a white cross on chest!!!!

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

I feel so for you and my hubby said that when he was little he wore bandages and was bathed. When I first met him his legs were bandaged up. You really were bad when you were little bless you. My hubby uses aqueous cream as soap but I said to him yesterday that I was going to look at Aveeno and I will use it first and if it works on my I will also ask for it on prescription and I hope hubby will as well.

Thank you, I will ask about Dibrobase. Oh my goodness you really did catch the sun that day.

Thank you so much for your help.

Alicia :)

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

Glad to have been of help and hope it works. Hubby will know how slippy it can be and hard to clean off!!

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

Thank you and it certainly is slippy as I always have my shower some time after him.

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

Yes although it says don't use in shower if need to use it everywhere have to and I've.nearly slipped a few times

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

I've often gone in the shower after my hubby and slipped and banged my knee. I'm more cautious now when I get in after him.

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

Don't blame you

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

Yes best to step in tentatively 😊

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

I found it was more of a problem getting out but then again just me using shower mind you sometimes would still be slippy from time before

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

It certainly can be sloppy from person using before, hair conditioner another one that makes the bath slippy

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

I don't have a problem with conditioner probably cos hair short.....usually LOL so don't use much

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

You'd better get extensions then LOL😂

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

No just need a haircut!!!!

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

Ha ha. Night night🌈

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

Night night sleep tight don't let the bedbugs bite LOL

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

It was a very good night, no need for the ice pack - yay😂

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

Good nothing worse than being too warm and itchy in bed

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

Quite, couldn't agree more

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

Unless you've gone through it can't understand how bad it is, and how much it spoils your sleep. I sleep with bedroom window open all year round unless rain coming in.

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

Agree, I also sleep with bedroom window open all year round, the only time it's closed is if we have gales, we live on the coast.

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

Yes I forgot the wind aspect mine blew shut one night and I thought it was going to break. Got into bed other week and thought NO air in here then remembered window cleaner came back and he'd shut them

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

Yes I have to be careful when it's really windy, particularly Westerly or Southwesterly.

That's the problem with having window cleaners, they shut the windows and you forget.

Craftyperson
CraftypersonReading Rabbits in reply to crazyfitness

I must remember to follow him round opening Windows, I also get in shower and think why is it so steamy then realise he's shut that too!!!! The wind mainly comes across fields towards front of house and bedroom at back so doesn't happen often

crazyfitness
crazyfitnessAmbassador in reply to Craftyperson

Yeah you'll have to then your bathroom won't steam up.

Hi my daughter has problems with itching in particular at night she’s had a million blood tests all what came up was low iron but even then the itching hasent stopped it’s been a year now doctors don’t know why it happens.last night was a bad night for her I can only think that her skin and reaction to heat is part of the problem and it Dosent like drying out whatsoever.she takes a liquid antihistamine at night before bed and also I noticed she has to have a Luke warm bath before bed and never too hot she also has coconut oil on we tried lots of creams but this has seemed best.she also has water by her bed.i will point out that I don’t think it’s a heat rash per say as it can happen when it’s cold and no prickly rash it’s still a mystery to me.x

crazyfitness
crazyfitnessAmbassador in reply to Afrohair

Thank you Afrohair for your reply and I feel for your daughter. I am convinced mine is down to my gut biome but of course I'm no expert on that front, they are studying more and more on the gut and eventually I think it will answer a lot of problems. The reason why I think it's the gut with me is because of food poisoning I had in November 2018 and I reacted so badly that it ended up with Post Infectious IBS. I've had IBS since 1996 but I was able to deal with it as I used to have pain and constipation but when I had the food poisoning it turned it completely on it's head and I ended up with acute nausea and diarrhoea most days. I'm now following the low fodmap diet and am so much better.

I have a shower that's a cool as I can stand it but I haven't tried the coconut oil, someone else mentioned it as well. Yes my skin was playing up through the Autumn and Winter as well so the weather conditions don't seem to affect it either.

I really hope your daughter's skin gets better and she can find out why. I have been very fortunate in that my doctor referred me to a Dermatologist and I had a sample taken and I have thickening of the skin and other problems but I don't know what they are.

Anyway, here's hoping your daughter's condition clears up or she is able to have a sample taken to find out why.

Thank you :)

I take acidophilus probiotic as I suffered from a lactose allergy and ibs ,haven’t suffered hardly anything since taking them ,change the probiotics every 6 months so that I don’t become used to them ,good luck x

crazyfitness
crazyfitnessAmbassador in reply to Tinker26

Thank you for that Tinker26, I've taken Acidophilus before but can't take any probiotics at the moment as I'm following the Low Fodmap diet for IBS and if I take them it could skew the results but I'm definitely going to look at this when I've finished the reintroduction phase.

BTW - I can honestly say the Low Fodmap diet has made a huge difference to my IBS.

Alicia xx

Hey Alicia- You have my sympathy and empathy.

I am a retired RN and can share a couple ideas.

*I have had episodes where I have skin eruptions (like psoriasis I guess, but just labeled 'dermatitis'). It has happened on one shoulder and also on my fingers. After trying everything I could think of in OTC meds and creams, I saw a dermatologist and

I was prescribed Triamcinolone Acetonide Cream USP 0.5%

It was $100 for a small tube. But it works and so has been worth that.

These breakouts occur when I am stressed out, so there is a psychological factor involved too.

*I saw the suggested oatmeal bath, that's sure worth a try.

*I also find adding a cup or 2 of baking soda to a warm bath can be very soothing.

*Another product that I recommend is Caldascene powder and/or cream. I learned about it as part of the skin care program for a quadriplegic woman. She had problems with itching skin and that product resolved it. I use it myself and love it.

*Finally, and just as an aside- I also have had terrible reaction to poison oak or poison ivy, really severe. I love garden/yard work and will break out from something that triggers allergic rash.

So what I do now is put a cheap face mask on my arms,hands and legs. It contains "diatimaceous earth" and that makes a good barrier.

(I look like 'The Mud Woman" because it is brown/blackish, looks like mud.)

I still cover my arms, legs and hands with long sleeves, pants and gloves, but I am so sensitive to something I take all these precautions before getting in the dirt.( I love plants!)

So when I am done, I come in strip off clothes for laundry and then wash allover with vinegar.

I have a small spray bottle that I put vinegar in. Or I just wet a washcloth with some vinegar and wipe off my arms and legs.

Then shower and wash again.

I hope you find relief. Constant itching is awful.

Pati

crazyfitness
crazyfitnessAmbassador in reply to needsmusic

Hi Pati

Thank you so much for your reply, it is much appreciated.

I've just looked for the Triamcinolone Acetonide Cream USP 0.5% but cannot find it in the UK, sorry I should have said I was from the UK. I understand the relation between mind and body as my IBS can be worse when I'm not feeling great. I'm so glad the cream works for you and that you have found something.

Definitely, oatmeal seems to be a very good thing and that's something I'm definitely goingn to try. I never thought of baking soda so thank you.

Thank you for the recommendation of the Caldascene powder and I can see I can get that in the UK.

Oh no, that's not good particularly as you love gardening. You certainly have to go through a long process to rid yourself of the toxins from the Poison Oak or Ivy. I've heard of Diatimaceous Earth.

Thank you and at least I sympathise and understand my hubby who was born with Eczema, his is particularly bad at the moment so we have a ritual of moisturising each other's back.

On the annoyingly positive side: it’s good to be different. To a certain extent.

I hope things improve quickly.

crazyfitness
crazyfitnessAmbassador in reply to daveh121

Ha ha, it's good to have a positive side. At least the cooling pad I got out of the freezer in the middle of the night worked on my arm, good job I was hot in bed ;)

Thank you :)

Sorry Alicia, I don’t. But I also have a skin condition that doctors dont know what it is? Ready?...Liquids make my hands n feet peel. Sometimes my hands Completely Lose ALL of my skin. When that happens my hands can’t touch Anything because then it’s becomes Raw and painful. Thankfully the peeling doesn’t hurt. I get these empty blisters that out of habit I pull the skin off. I was offered steroids but long use of that could cause Cancer. There’s No Cure. I wish you the Best to find Help you Need🙏

You poor thing, that sounds dreadful. x

It’s embarrassing, I rarely bath because of this. I do clean myself with a wash cloth n gloves. Of course you can’t bathe with gloves on. This is a secret my ex husband didn’t know. I would go into the bath room and turn the shower on and pretend I took a shower washed my neck n arms. He never knew, we were married 14 years it was hard to live with that secret 😩

I really feel for you, it must be absolutely dreadful. x

crazyfitness
crazyfitnessAmbassador in reply to Want2BHappy3

Oh my goodness, I really feel for you, that's awful and I'm surprised with all of the knowledge out there that they don't know what it is. Mind you, I do think the skin has to be one of the most complicated things.

I'm thinking of you.

Take care xx

It's the largest organ in the body so that's probably why and of course, over the years it takes such a battering in one way or another. x

crazyfitness
crazyfitnessAmbassador in reply to springcross

Yes funny you should say that as that's exactly what I was thinking when I was reading the responses to my query earlier today.

Take care xx

Hi there sorry to here that yeah my mum also gets alot of itching and has tried everything you have taken but there is one and it helps her alot her doctor used to piscribed it but not anymore it's called arjun menthol just type it in good in sure you can also get it from boots amazon and maybe few more and let me know if its worked take care xx

crazyfitness
crazyfitnessAmbassador in reply to Rabs550

Hi Rabs550

I'm sorry your mum gets a lot of itching as well, you do see all these creams which claim to stop itching fast but none of them do. Thank you for the name of the menthol cream, I'll have a look at that one.

Thank you

Alicia :)

Rabs550
Rabs550 in reply to crazyfitness

It is really good because she also tried loads E45 and lots from the gp nothing helped so check it out anyway and goodluck x

crazyfitness
crazyfitnessAmbassador in reply to Rabs550

Thank you, much appreciated.

Alicia x

You could try Dermol emollient for washing, they also have a moisturiser as well which might be better for your skin, I use both and my doctor prescribes them for me.

crazyfitness
crazyfitnessAmbassador in reply to Lizard28

Thank you Lizard28, I will have a look at that one and see if my doctor will prescribe it.

Alicia :)

Hidden
Hidden

My daughters have that, are you stresses out from this, and were your stressed before it even started to happen on you skin. If so stressed, and getting an infection causes it, and makes it worse

crazyfitness
crazyfitnessAmbassador in reply to Hidden

Thank you and I think you've 'hit the nail on the head' so to speak as I had a bout of food poisoning in November 2018 and it reversed my IBS to IBS with diarrhoea and nausea and I can't cope with this, it's the nausea I find very hard. I've been with a Dietician since January following the Low Fodmap diet and that is working.

Hi

I've been using beaute pacifique it's a danish cream, not cheap but has vitamin A and has worked wonders on my skin.

crazyfitness
crazyfitnessAmbassador in reply to Donna-mari

Thank you Donna, much appreciated.

Alicia :)

If it's not working from the outside, it probably needs to be approached from the inside but have you tried Sudocrem? There was a big thing made about it a few years ago when it first appeared, my B-i-L uses it & he likes it so it must be OK.

crazyfitness
crazyfitnessAmbassador in reply to springcross

I agree, I think this is more the inside i.e. my Gut Biome. I've tried Sudocrem and that didn't work for me unfortunately.

I appreciate your response.

Alicia :)

You're very welcome. There is always, if you have an open mind, homeopathy which treats the person as a whole and I have also had a lot of success with my dogs over the years with it, more so that conventional veterinary drugs etc, but going back to topical treatments, Graphites was always a go to for me if I had any rash, dry or itchy skin and it always worked but it is a homeopathic remedy. x

crazyfitness
crazyfitnessAmbassador in reply to springcross

Thank you. I agree it's good to have an open mind and I really am convinced it's my gut. I'll have a look at Graphites as I do think homeopathy is good.

Alicia xx

katieoxo60
katieoxo60Visually impaired

Sure I heard somewhere on here and in medical articles that the docxtor can give you a tablet to reduce the itchy skin. At least if there is it would help till the hospital investigate the problem . Good luck.

crazyfitness
crazyfitnessAmbassador in reply to katieoxo60

Hi Katie

Thank you for your reply. My doctor did prescribe anti-histamines but unfortunately they didn't work.

Thank you for your good luck message.

Alicia :)

Hi, I have eczema and peripheral neuropathy and get itchy patches on my feet, especially bad at night. I use Emla cream, which is lindocaine/prilocaine, it won’t heal anything but will stop you scratching until you bleed. You can get it at the chemist without prescription but I buy it online. The tubes are small and quite expensive but work for me. Hope this suggestion helps.

crazyfitness
crazyfitnessAmbassador in reply to VelvetSky

I'm sorry you have Eczema as that's a horrible condition, my husband has it and was born with it and I know what his skin is like. I've not heard of that cream but I will have a look online so thank you.

Alicia :)

Hi. Are you on an anticoagulant.? I had itchy skin and hIves for months until I asked my cardiologist to change me from Xarelto to Eliquis . He wasn’t too optimistic about it and said it would take 4-5 weeks to get it out of my system. Sure enough It worked. Still get an occasional spot on new anticoagulant but goes quickly. I had tried all types of creams diets and seen several dermatologists befor this. All to no effect. Hope u find some reason for your itching

and can address it.

crazyfitness
crazyfitnessAmbassador in reply to Jill13

Hi Jill, no I'm not but I do know that some medication can cause itchy skin, I'm only taking Omeprazole. I'm so glad you were listened to and it worked, well done.

Thank you and I hope so too but am convinced it's coming from the gut.

Alicia :)

Feel so sorry for you . What works for me is Pure Epsom Salt Baths and Shower Gels . And for moisturising Pure Coconut Oil and for day use Childs Farm Products .

Dermol products also worked for me . Both Bath and Lotion .

You must get referred to a Dermatologist Consultant .

crazyfitness
crazyfitnessAmbassador in reply to Benpanesar

Thank you Ben and a couple of other people have mentioned Coconut Oil so I will certainly give that a go, I have some in my cupboard. I've tried Child's Farm but unfortunately that doesn't work for me.

I'll have a look at the Dermol products as well so thank you.

I'm on the waiting list to see a Dermatologist so am hoping it'll be soon.

Alicia :)

katieoxo60
katieoxo60Visually impaired

Soap powder can be a culprit or things you use on your skin some of the old fashioned remedies work better as no additives. Some things you may have used for a long time get their ingredients altered which can cause change. Or often dosage changes in drugs can be a culprit. Liver illnes and other things can cause skin irritation the list is endless. Good luck with finding something that works for you as itchy can drive you crazy .

crazyfitness
crazyfitnessAmbassador in reply to katieoxo60

Hi Katie

Thank you for that and I'm now trying to buy the purist of washing liquids I can buy and I don't use fabric conditioners. I'm on Omeprazole but no other drugs fortunately.

Thank you.

Alicia :)

Hi I wonder if you have the start of an autoimmune disease called Scleraderma. Itching all over was the first symptom I had as the skin gradually thickened. It lasted a long time before I was diagnosed by an antibody test, but then just went off. I was later diagnosed after having raynauds in my fingers. I think there are specialist treatments, which help the itching but you'd need to see your GP for the referral to hospital. Good luck with it.

crazyfitness
crazyfitnessAmbassador in reply to KatieAnna

Hi Katie

Thank you for your response and I didn't even think of any kind of disease, all I've been thinking about is it's my gut as I had food poisoning in November 2018 and my IBS changed overnight to severe by having acute nausea and diarrhoea every day, I'm now on the Low Fodmap diet and am much better with my tummy but my skin is still bad.

I've seen my GP and am waiting for an appointment to see a Dermatologist but of course everything is delayed because of the current awful situation.

Alicia :)

Hi Alicia

I hope I haven't caused you any concerns with this, but I rarely hear of people who have the whole body itching thing. I had it in 2000 for a year. My GP tested my liver enzymes which came back as normal. The itching lasted for a about a year during which my skin got tighter in several places, especially my hands and back, but again my GP couldn't diagnose it and I was otherwise fine. I just layered on tons of moisturiser. When I got severe raynauds five years later, another GP referred me to rheumatology where I had the antibody tests revealing the Scleraderma diagnosis. As things slowly progressed I also had the typical gut problems of Scleraderma, but I'm generally well otherwise. It's a very mixed disease with lots of different presentations, and it's rare, but skin thickening and itching are early signs, as I have discovered through the other people on this website in the Scleraderma and raynauds section. I wouldn't normally suggest that anyone should even think about having a rare disease, but after the torture of the itching I wish I'd known about it then, as there are treatments other people have been given and found helpful. When you see the dermatologist you could mention your gut symptoms alongside the thickened skin and itching and ask them if they think you could benefit from a rheumatology referral, or you could chat with your GP. From my experience GPs don't understand it very well, but the dermatologists know what to look for when Scleraderma is flagged up. I hope you get to the bottom of it and something simple is causing it. Whatever you do,

DON’T GOOGLE SCLERADERMA!!!

Good luck and I hope everything settles down soon. Xx

crazyfitness
crazyfitnessAmbassador in reply to KatieAnna

Hi Katie

Don't worry you haven't, I'm not naturally a worrier.

I have a friend who has Raynauds, amongst other things. I'm sorry that you have the gut problems as well as for me that's the worst place in the body to be ill, I find tummy problems hard to deal with but since following the Low Fodmap for IBS the problems are far and few between now.

Thank you, when I see the Dermatologist mention Scleraderma and see what he thinks. Don't worry, I'm not going to Google it.

Thank you and I hope that you are as well as you can be.

Take care

Alicia xx

I hope you eventually get sorted. You're right about how horrible gut problems are, but my consultant is great and I'm well supported and coping with it day to day with careful diet controls and meds.

Take care of yourself and best wishes for the future. X

crazyfitness
crazyfitnessAmbassador in reply to KatieAnna

Thank you Katie and I'm sure I will, there's been loads of help on here. Gut problems are awful and my doctors have been amazing so that's good, I'm so pleased your consultant is great, that's very good to hear.

Thank you and you take care as well.

Alicia xx

I get terribly itchy skin, too. I couldn't figure out what caused it. I actually use Tinactin spray. I discovered by accident that it works for me because I once had a case of athlete's foot from showering in a gym. Years later, when the itching of my body started and nothing worked, I grabbed the tinactin as a last resort and it worked.

I recently discovered that problems with the liver can cause itching. I'm going to ask my doctor about this soon because he ordered liver lab tests, which is why I looked it up and found out about the itchiness.

crazyfitness
crazyfitnessAmbassador in reply to DesertDeuces

Thank you for your response DesertDeuces. That's really good finding out by chance that the spray worked, I'll look for that one. I can understand the last resort as when it's that bad you will resort to anything.

Yes the liver can cause problems with itching, I've had the tests and mine have come back fine, I'm now waiting for the Dermatologist appointment but I don't know how long that will be because of the current circumstances.

Alicia :)

Hi Alicia, after developing dry flaky skin, which after a biopsy turned out to be eczema, GP put on Hydromol moisturising cream

crazyfitness
crazyfitnessAmbassador in reply to Jennymary

Hi Jennymary

Thank you, I will have a look at that one. Also, sorry you have Eczema.

Alicia :)

Callendersgal
CallendersgalModerator

Itching does drive you crazy Alicia. I suffer too, it having started with the extreme dry skin of old age and what I find is that you can't find one cream which will work universally. I must have spent hundreds of pounds on different products, some of them 'medically' formulated and others commercial solutions. It doesn't seem to matter in my case whether they are scented or strictly clinical. All, after a while, stop working. So I rotate and continue to experiment. It's not ideal but the best I can manage.

If it was me I would steer well clear of things like witch hazel which is astringent and will cause further itch. Emollients are the way to go. And do you wash with emollient creams and not any soapy products? That's vital. I never feel they clean like soap, but better to be moisturised and not itch than scrubbed clean with soaps and itchy. Best of luck. It's not easy. I hope you can find a solution that works for you.😊🌺

crazyfitness
crazyfitnessAmbassador in reply to Callendersgal

It really does Callendersgal and I'm so sorry you suffer too. Yes my skin is a lot drier and it started to dry up when I started the menopause 11 years ago. I've spent a lot on creams for them not to work and bought one online and it was the worst cream ever, it was so think you almost needed a knife to scrape it off.

I read about Witch Hazel online so will stop using that, thank you. I only use sulphate free products in the shower after my GP told me too, I agree they don't work like soap but are much better for the skin.

Thank you and I'm sure something will work but I never realised how bad itching could be until my skin started playing up, now I understand my hubby who was born with Eczema, that's a good thing as I now have empathy.

Alicia :)

You poor thing, it sounds terrible! My itchy skin problems not as severe as that and I have success with certain moisturisers. There are times when I have to resort to ice packs for the fleshy part of my lower arms below the elbow. It seems scratching makes it even more itchy too! You mentioned skin thickening so I ask if scleroderma has been mentioned?

I hope it calms down a bit for you until you get some successful diagnosis and treatment. 😊

crazyfitness
crazyfitnessAmbassador in reply to Sekka

Hi Sekka

Thank you very much for your response. I get a little relief from Eurax but it only last for a very short while then the itching is back. Ice packs do work very well but it's hard when you are itching in more than one place. It's strange but I'm the same at the fleshy part of my lower arms below the elbow as scratching does seem to make it work. Thank you and yes someone has mentioned Scleroderma.

Thank you and with all the help and replies I have on here I'm bound to get something that works.

Alicia :)

Sekka
Sekka in reply to crazyfitness

Even if it's only moral support and understanding of your awful discomfort!

Sometimes I think it's possibly medication side effects too, but good luck and let us know. We autoimmune people are so special!! 🤗

crazyfitness
crazyfitnessAmbassador in reply to Sekka

Totally agree and people on here are so lovely.

I've got a phone call with the doctor this afternoon, he wants to speak to me about medication so I'm compiling a list of the recommend creams on here.

Fortunately I'm only on Omeprazole and as soon as I've finished the pack they're going.

Take care🙏🌈

Hi,

You say you have IBS... A cover all diagnosis for simply what doctors don't know or don't understand.

Do you have acid reflux?

Research how Probiotics and Prebiotics can help you. Possible low stomach acid will lead to vitamin deficiencies. Acid reflux is frequently as a result of too little stomach acid...See organic apple cider benefits, it helps digestion amongst other things...it's all connected. The skin is the largest organ in the body, it is also responsible for excretion...

Sorry for telegrammatic response, feeling very unwell at the moment...

crazyfitness
crazyfitnessAmbassador in reply to Poppy_the_cat

Hi Poppy_the_cat, yes I have IBS and have had it since 1996. They are getting better with IBS and finding out more and more, the problem is it's different in a lot of people.

Fortunately I don't have acid reflux.

Unfortunately I cannot take Probiotics or Prebiotics at present as I'm following the Low Fodmap diet for IBS and it could skew the results which I totally understand. I'm in the reintroduction phase now so hopefully not too much longer before I can find out my own tailored diet, then I'll be able to take both again. I will look at ACV though as I have some 'Mother' in my cupboard.

I'm so sorry you are feeling very unwell at the moment, I feel for you and I really hope you are better very soon.

Take care

I hope you are working with a bona fide dermatologist. My very first nephrologist said sun tanning booths can help some patients with skin itching when there isn't a specific cause. Obviously there is a trade off , health wise.

I have severe psoriasis and my derm prescribed narrow band UV therapy. It eliminated the itch and most of the psoriasis plaques. But done in a controlled environment, it evidently is harmless.

crazyfitness
crazyfitnessAmbassador in reply to LutherPDX

Hi LutherPDX, yes I'm going through the NHS in the UK.

I didn't know that you could use a tanning booth in a controlled manner.

I'm so sorry you have severe Psoriasis but so pleased that the UV therapy eliminated the itch and the Psoriasis plaques.

Thank you :)

Itching is so very dreadful isn't it as it seems to take over your life! I've quickly scanned the other replies, so if I repeat what others suggest, I apologise in advance. I found that wearing and sleeping on 100% pure cotton or silk (!) helped. Also I have heard about oat baths but I was recommended using the water that plain rice has been cooked in and that worked brilliantly. There is a cream (which is not cheap) called Zambesia Botanica which also added to relief.

I really hope that some of the advice on this forum hits the nail on the head for you. It shows how many people suffer with similar complaints. My son suffered for years and we all felt so bad for him that I was crying sometimes because it was so uncomfortable and we lost count of the hospital visits.

Good luck

crazyfitness
crazyfitnessAmbassador in reply to richard1962

It really is Richard and I didn't think much of it before when my poor husband used to scratch himself silly, he has Eczema and was born with it, I now understand him and have every empathy. Not a problem at all and you haven't repeated anything at all.

I've not heard of water from rice so thank you for that. I'll have a look at the cream as well.

The replies have been really good and I'm so thankful that people have taken the time to reply, it heartwarming. That would have been so hard for you seeing your son like that, there's nothing worse than watching your children with it.

Thank you.

Alicia :)

Well done to you for reaching out in this forum: such a good idea as there is so much experience out there. Good luck with it all and let us know if anything works. Yes, it was hard watching a tot suffer till well into his teenage years. I wanted to have it instead of him!

crazyfitness
crazyfitnessAmbassador in reply to richard1962

Thank you and it's a very good forum, there really is a lot of experience and ideas and you see how some people are suffering day to day but they just carry on regardless, they are real troopers, just like your son. I can understand how hard that would have been as I'm a parent of two girls but they are both adults now and one has her own children. I would rather have something myself than a child for sure.

Yes, my son is also a father now: and I'm still in shock that he is married and his wife adores him and his son gives him the most adoring looks. It is truly a blessing and worth every minute of the 100% giving for so many years!

crazyfitness
crazyfitnessAmbassador in reply to richard1962

Isn't it lovely to see your children flourish and grow into men/women. I'm so glad he's in a loving relationship, that means a lot, particularly for us as parents and then of course grandparents.

It is life affirming particularly in these troubled times

crazyfitness
crazyfitnessAmbassador in reply to richard1962

Oh it certainly is, couldn't agree more.

Most people suffer from loose, thin skin as they get older... if you could discover what causes think, tight skin you might be able to make a fortune!

The cure for thick, dry skin (calluses) on the feet is to grind it off.

It might seem masochistic - but when I get itchy or thick skin, I scrub or grind it off until it stops itching!

crazyfitness
crazyfitnessAmbassador in reply to S11m

Skin is such a minefield as there are so many things that can go wrong with it.

I don't see a problem with the way in which you treat your feet, it's what works for you that matters.

Has your physician ordered blood work? Sorry you are going through this. I have one itch on my back and it drives me crazy. Prayers

crazyfitness
crazyfitnessAmbassador in reply to sassykitty

Thank you sassykitty, yes I've had my bloods taken and they came back clear. Isn't it awful when you get that itch and it doesn't go away. Thank you for your prayers and the same to you for your back and hope that you also find something.

Alicia x

I have type 2 diabetes and my skin gets very itchy. I have found that bathing top often cam cause this to get worse. Something that helps is good soak in Dr. Teals. You cam find it on Amazon. Wishing you short wait for the hospital.

crazyfitness
crazyfitnessAmbassador in reply to Kitten58

I'm sorry you have diabetes, that's enough in itself. I do shower every day but I have the shower on cool and use sulphate free products as that's what the doctor told me to do. I'll have a look at Dr Teals - thank you.

Yes I hope it's not much longer now.

Thank you :)

Interesting, I just finished reading an article in The people’s pharmacy saying that using the original listering(amber color) helps with the shingles and eczema itching. Maybe you’ll want to give it a try?

crazyfitness
crazyfitnessAmbassador in reply to yesendi

Thank you yesendi, I'll have a look at that one.

Alicia :)

Oh dear - sorry to hear youre having a bad time I've only heard about oat bath soaks but not spoken to anyone about details as Ive just heard people talking about them in passing

Give it a try -my fellow members are giving it very positive reviews

crazyfitness
crazyfitnessAmbassador in reply to Sara_2611

Thank you Sara for your reply and agree that oats do seem to do the trick so I'll definitely be giving that a try for sure.

Alicia :)

ok Good luck Alicia -keep us all posted

crazyfitness
crazyfitnessAmbassador in reply to Sara_2611

Thank you Sara, will do🙏

take care stay safe

crazyfitness
crazyfitnessAmbassador in reply to Sara_2611

Thank you Sara and you xx

You are welcome x

crazyfitness
crazyfitnessAmbassador in reply to Willowrabbit

Thank you xx

Hi, I would like to help but not sure of the ointment, if had lots of things wrong with me, but one thing I do know is that aloe Vera gel works wonders on many ailments, try it, you have nothing to lose and it might just work, good luck, x

crazyfitness
crazyfitnessAmbassador in reply to Willowrabbit

Hi Willowrabbit, thank you for your reply and I've also heard that Aloe Vera as a drink for the tummy is good but I never thought of it for the skin. I will definitely have a look at that one.

Thank you xx

Ask them if one of your shower bells or body washes can make this issue. I was getting very dry skin on my legs, arms, back. My doctor ask if I use hot,hot water, which I did sometimes, I've cooled it down some and well like a lot of women do use skin cream or lotion everyday! It has helped, hoping they find resolve with your issue 🙏🏽

crazyfitness
crazyfitnessAmbassador in reply to Spanaway

Hi Spanaway, thank you for your response. My doctor did say about reducing the temperature of the shower, which I have done, and about using Sulphate free body wash and shampoos which I've also done. The cream I now use on my skin is only the stuff for bad skin i.e. Eurax, Cetraben etc.

Thank you.

Alicia :) xx

I use Udder cream on my hands and feet. The Xeloda drys my feet and hands. My scalp is a problem and today I used aveeno skin relief. Had to get it on Amazon. Thanks Reenie

crazyfitness
crazyfitnessAmbassador in reply to Rbeth

Thank you, that's another one for me to look at, really appreciated. Aveeno is another one I was looking at.

Thank you Reenie🙏

I use a cream called Triamcinolone Acetonide Cream usp, 0.1% made by Perrigo in the USA. It is a prescription from my Dr. Hope that helps.

crazyfitness
crazyfitnessAmbassador in reply to winabago

Thank you, that's very helpful.

Alicia🌈🙏

Hi

About 10 years ago I had an accident and had to have an elbow replacement....after a while I started to have red patches on my skin...especially my neck, chest and arms....my gp thought I may have been allergic to the titanium implant. She gave me a cream called cetraban and told me to keep it in the fridge. When my skin itched I lathered myself with this cold cetraban and it seemed to do the trick. Don’t think it was the implant that caused it, never did find out what it was, but the cream was really good and my skin was very soft and hydrated! Worth a try. You can use it regularly and not like hydrocortisone cream that can thin the skin.

I feel for you as there is nothing worse as once it starts itching that’s all you think about!🤔

crazyfitness
crazyfitnessAmbassador in reply to Foxie1234

Hi Foxie1234

I'm so sorry you had to have an elbow replacement, that's a lot to contend with.

I've been using Cetraben but never thought to store it in the fridge, what an excellent idea, thank you.

It really is, you really focus on the itch.

Thank you🙏

I wish I could help; I also itch, but it is a symptom of PBC. If you had that, you’d know. So I am afraid I cannot help.

crazyfitness
crazyfitnessAmbassador in reply to Stub007

Thank you so much for replying, I'm really sorry you also itch.

Take care

Alicia🙏

Bethamethasone Val. 0.1% worked for me

crazyfitness
crazyfitnessAmbassador in reply to Boutska

Thank you, much appreciated.

Alicia 🙏

I had something similar about 12 years ago. Not just itching, but a rash on top of it. It was related to histamines going wild because of food intolerance aggravated by histamine rich intake: wine, sardines, tomatoes, etc. A diamine oxidase (DAO) supplement cured it. May not be applicable to your situation, but it may be worth it to check it out. Good luck.

crazyfitness
crazyfitnessAmbassador in reply to Max225

Thank you for your reply Max, that's very helpful. I'm glad you're all good now.

Alicia👍

I too have suffered for years. Itchy crawling under the skin, hives, rashes some eczema all over. I am reading a book called the eczema diet by karen Fisher and it covers everything from diet, medicines, reasons, chemicals etc. It explains in depth what to do.

It is making a lot of sense to me as I also have an on going gut problem which is the hardest to cope with.

The book talks about leaky gut and explains what to do about it.

I will be following the suggestions given and hope it helps.

I have spent years and money trying to resolve these problems.

Hope you find an answer and let us itchy people know. Good luck

crazyfitness
crazyfitnessAmbassador in reply to E3178

That sounds like a very interesting book, I am convinced it's my gut biome that's doing this. I'm going to look at that book, thank you.

I have IBS and am following the Low Fodmap diet and it's working for me, I'm so pleased.

Oh I'll definitely be sharing it with you all, especially if something works.

Thank you and I really like the sound of the book.🌈👍

Hi Alicia,

Have you tried Aloe Vera gel, or even the plant itself if you just break open a leaf and rub directly onto the skin.

Very gentle and has worked for me a number of times.

Hope it helps,

Mariah x

crazyfitness
crazyfitnessAmbassador in reply to mariah222

Hi Maria

No I haven't but someone else mentioned it so I'll give that a go, thank you.

I'm glad it's worked for you.🙏🌈

I have a very itchy body and my scalp, in particular, has got so much worse lately that my head got covered in sores as I scratched and picked at them constantly. After trying all sorts of prescription stuff, finally a doctor prescribed some Betacap Scalp application which has some steroid in. It has worked a treat but, it can only be used on scalp. My itching is related to NASH induced Liver Cirrhosis plus an annoying picking problem that is very common called Hyde’s disease or Prurigo. I’ve done it since a child and it is a habit I struggle to control. Good wishes to you that all this may help.

crazyfitness
crazyfitnessAmbassador in reply to Splodge60

Oh my goodness, I feel for you as the scalp is very hard to control but glad the cream worked. I've heard of the habits where people pick at spots etc, pull hair out and it's awful.

I really hope your itching eases, skin is a difficult thing to control isn't it.

Take care 🌈🙏

I appreciate your understanding. Mostly I get told “stop doing it” xx

crazyfitness
crazyfitnessAmbassador in reply to Splodge60

Wouldn't it be great if we could just stop doing things, that doesn't help at all, understanding is what is needed.

Please take care

Alicia xx

I have this, its awful! Its from stress. Lately benadryl & aloe veta gel has helped some.

crazyfitness
crazyfitnessAmbassador in reply to Tara52

Hi Tara

I'm so sorry you have it as well. Thank you for letting me know what helps,much appreciated.🙏

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