These things are certainly sent to try us, and keep us guessing..
Saw GP on 13th August having been experiencing headaches which I thought were migraine, but had not had the aura thing which has happened previously. He felt it was likely to be GCA and commenced me on 60 mg pred, plus pain relief. Eyes checked on 15th - thankfully at that stage, and still now - no problems. 16th artery biopsy. Reduced pred on 17th to 50mg - headache back with avengence - back up to 60mg! GP again 24th - change in pain relief, still not really resolving. Weight loss - 9lbs in 10 days - great, but probably not the best way..
Consultant today - biopsy none conclusive, ESR still up even though on 60 mg pred - reducing pred by 5mg for 2 weeks - change of pain relief, (fingers crossed this works) - head scan asap, poss referral to neuro for advice, not ticking the boxes for it to be totally GCA, nor conclusive link with RA, which I have had for 12 years. I rattle with so much medcation - they think some levels are masked, such as ESR, due to methotrexate injections I have been doing for 4 plus years, and sulph ++. Also, apparently issue re my jaw - it's clicking and causing problems when eating, this should not be happening either..
Now it's just waiting... Took this afternoon to drink tea and watch rubbish tv to get my head around all this - everyone is so caring and asking how I am, but I do not really know!!
Back to work tomorrow - need routine and distraction.. Would just like a decision and a way forward.... please...
Anyone's thoughts and observations greatly received - it's fantastic to see the support given to all on this sight. Sometimes you can feel so isolated, and it's not always easy to talk to those who are close to you - they often get emotional etc, especially my hubby...
Thanks for reading x