should I go to the Isles of Scilly ?: I’ve got GCA... - PMRGCAuk

PMRGCAuk

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should I go to the Isles of Scilly ?

Gardening2811 profile image
7 Replies

I’ve got GCA , PmR and LVV.

mum down to one and a half pred .

Just wondering if it’s too risky to go to Scilly as they only have a tiny hospital?

Husband’s business is going into liquidation and I thought it would be good to “ get away from it all” with our dog for a week.

oh I’m on Tocz too.

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Gardening2811 profile image
Gardening2811
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7 Replies
Gardening2811 profile image
Gardening2811

sorry not mum but im

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

If you are down that low, I doubt you’ll have any problems [but I get your drift ] -but do you have enough Pred to take extra for a few days just in case you flare?

Make sure travel insurance are aware - and are you flying or ferrying across? No taper whilst you’re away.. and enjoy/

By the way you can edit post easily enough - just select ‘More V’ under post, Select Edit, make necessary changes and just post again…

Gardening2811 profile image
Gardening2811 in reply toDorsetLady

Thank you for your reply DL.

Hoping to use the helicopter because it is quicker and would give us more time to drive to Penzance …we live in Southampton.

Yours and Snazzy’s replies are the reassurance I needed,I think.

Thank you both

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toGardening2811

You're welcome, and enjoy...

SnazzyD profile image
SnazzyD

Emergencies are dealt with using the Cornwall Air Ambulance if the hospital can’t help. Are there any particular issues you are concerned about? Sounds like it could be lovely, as long as you plan the journey to be as little stress as possible. I gather the ferry can be ‘exciting’.

Gardening2811 profile image
Gardening2811 in reply toSnazzyD

Thank you for your quick reply- I’m feeling really well but just concerned in case I had an adrenal crisis .

PMRpro profile image
PMRproAmbassador

They use helicopters to transfer to the mainland if anything were to crop up that required ICU and they will have the necessary medication on the island for an adrenal crisis provided it is recognised.

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