granulomatosis with polyangitis/ Wegeners

[pattypoo01]

Was first dx with pmr (2018) and given lots of prednisone. Then gca was added with infusions of actemra. The prednisone was making me feel better. Nodules in my lungs were growing and in Sept of 23, I had a bronchoscopy and granulomas showed up. So gpa was dx. Now on rituxin, still on 7mg prednisone every day. I can't remember feeling normal. I'm sure I will get lots of good tips from health unlocked.

[DorsetLady PMRGCAuk volunteer]

Sorry to hear you now have GPA - you might get more info from the Vasculitis forum -we are PMR and GCA based with little knowledge on GPA,

Hope they can help you

healthunlocked.com/vasculit...

[pattypoo01 in reply to DorsetLady]

thankyou

[PMRpro Ambassador]

Sorry to hear about the change in diagnosis - but as DL says, we really aren't well up on GPA and you are more likely to find others with the same diagnosis on the VasculitisUK forum which DL has given you the link to.

[pattypoo01 in reply to PMRpro]

thankyou

[Nextoneplease]

Sorry to hear about this pattypoo01 and wishing you lots of luck xx