actemera question : on September 7th, I slipped on... - PMRGCAuk

PMRGCAuk

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actemera question

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on September 7th, I slipped on my back wet steps falling on my back and breaking three ribs, 8,9 and 10. I called my doctor to see if I should increase my prednisone and was told no, I am on 4mg. The following Friday I was having trouble breathing and went back to the ER. They then found out I had a hemothorax.( blood in my left lung) they inserted a check tube ( through my breast) you heard that right. Then they had to move the tube two days later because it was resting on my aorta!! Lucky to be alive at this point. End result, I was discharged from ICU after the tube was removed five days later. They told me just to see my GP within 3-5 days. I contacted a pulmonologist the next day. He was shocked as to why they went through my breast and referred me to a wound center. I called my rheumatologist when I was informed I still had done blood in my lung but would not need surgery. There is a concern about pneumonia so I am doing daily deep breathing exercised. I then informed him the wound treatment involves them flushing the wound three times a week and packing it. This will be the third week without Actemera. One more week I will be a month behind. I get monthly injections.. I have PMR and GCA. Right now I do not have any pain. I am concerned if I am not permitted to go back on the actrmera due to the lowering of my immune system. Has anyone else in the group had anything issues, surgery ect affecting the use of actrmera?

Thank you.

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Plains
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DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

This seems to have posted twice.. have replied to other one.

But have copied here.

No advice on Actemra, but just wanted to say my goodness what a lot you’ve been through - hope you soon improve, and best wishes sent - and a virtual hug 🤗.. definitely not a real one.

Angelsmummy profile image
Angelsmummy

How absolutely awful for you,sounds horrific!Wishing you all the very best and hope you get some relief from it all soon.xxx💐💐💐

Plains profile image
Plains in reply toAngelsmummy

Thank you very much!

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